request for paper sent
", "tags": [], "relations": {}, "dateAdded": "2016-09-15T09:29:52Z", "dateModified": "2016-09-15T10:01:18Z" } }, { "key": "KDKEZTVV", "version": 5, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/KDKEZTVV", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/KDKEZTVV", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/698342/items/IDR8ZVT9", "type": "application/json" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "KDKEZTVV", "version": 5, "parentItem": "IDR8ZVT9", "itemType": "note", "note": "request for paper sent.
", "tags": [], "relations": {}, "dateAdded": "2016-09-15T09:28:10Z", "dateModified": "2016-09-15T09:28:22Z" } }, { "key": "BI9T3SN7", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/BI9T3SN7", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/BI9T3SN7", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Nordfeldt and Jonsson", "parsedDate": "2001-02", "numChildren": 0 }, "data": { "key": "BI9T3SN7", "version": 2, "itemType": "journalArticle", "title": "Short-term effects of severe hypoglycaemia in children and adolescents with type 1 diabetes. A cost-of-illness study.", "creators": [ { "creatorType": "author", "firstName": "S.", "lastName": "Nordfeldt" }, { "creatorType": "author", "firstName": "D.", "lastName": "Jonsson" } ], "abstractNote": "The aim of this study was to describe costs and other short-term effects of severe hypoglycaemia in children and adolescents with type 1 diabetes. The study comprised a geographic population of 129 patients <19 y of age with families prospectively registering detailed data after self-reported severe hypoglycaemia. In the period Jan.-Dec. 1998, 16 events were reported with unconsciousness and 95 events without unconsciousness but needing the assistance of another person. Of all events, 20-30% had effects requiring the assistance of people other than parents, school absence, parents' absence from work, extra transport and/or telephone calls. Patient (family) activities were cancelled after 10% (5%) of events. Increased worry for parents was reported after 8% and poor sleep after 7% of events. Hospital visits took place at 5% and hospitalizations at 3% of all events. Patients with severe hypoglycaemia indicated lower global quality of life (p=0.0114). The average socio-economic burden for events of severe hypoglycaemia was estimated at EURO 17,400 yearly per 100 type 1 diabetes patients. Average cost was estimated at EURO 239 per event of severe hypoglycaemia with unconsciousness or EURO 478 yearly per patient with unconsciousness, and EURO 63 per event of severe hypoglycaemia without unconsciousness but needing assistance from another person or EURO 307 yearly per patient in this category. These are conservative estimates and do not include unpaid time and other intangibles, possible road traffic accidents, disabling or premature deaths. CONCLUSIONS: The results suggest the potential for socio-economic savings and increased quality of life for patients and families from severe hypoglycaemia prevention programs.", "publicationTitle": "Acta paediatrica (Oslo, Norway : 1992)", "publisher": "", "place": "", "date": "2001 Feb", "volume": "90", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "137-142", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Acta Paediatr", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0803-5253 0803-5253", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 11236041", "tags": [ { "tag": "*Cost of Illness" }, { "tag": "*Health Care Costs" }, { "tag": "Adolescent" }, { "tag": "Child" }, { "tag": "Child, Preschool" }, { "tag": "Costs and Cost Analysis" }, { "tag": "Developmental Disabilities/diagnosis/epidemiology/*etiology" }, { "tag": "Diabetes Mellitus, Type 1/*complications/drug therapy/*economics" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Hypoglycemia/complications/*economics/therapy" }, { "tag": "Insulin/economics/therapeutic use" }, { "tag": "Male" }, { "tag": "Prospective Studies" }, { "tag": "Quality of Life" }, { "tag": "Severity of Illness Index" }, { "tag": "Sweden/epidemiology" }, { "tag": "Time Factors" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "IDR8ZVT9", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/IDR8ZVT9", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/IDR8ZVT9", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Whittemore et al.", "parsedDate": "2003-10", "numChildren": 1 }, "data": { "key": "IDR8ZVT9", "version": 2, "itemType": "journalArticle", "title": "Quality of life in school-aged children with type 1 diabetes on intensive treatment and their parents.", "creators": [ { "creatorType": "author", "firstName": "Robin", "lastName": "Whittemore" }, { "creatorType": "author", "firstName": "Andrea Dann", "lastName": "Urban" }, { "creatorType": "author", "firstName": "William V.", "lastName": "Tamborlane" }, { "creatorType": "author", "firstName": "Margaret", "lastName": "Grey" } ], "abstractNote": "PURPOSE: The purpose of this study was to examine the child, parent, and family factors associated with quality of life and metabolic control in school-aged children with type 1 diabetes on intensive treatment. METHODS: A cross-sectional analysis was performed of child, parent, and family psychosocial variables with child quality of life and metabolic control. RESULTS: Families of school-aged children were able to intensively manage type 1 diabetes, achieve good metabolic control (< 7.5%), experience good quality of life, and cope well with the demands of treatment. However, increased depressive symptoms were reported in children (8%) and a parent (29%). CONCLUSIONS: Most school-aged children and families in this sample coped well with the demands of intensive treatment. However, intensive psychosocial support may also be indicated because managing a complex chronic illness is stressful and potentially difficult for some families.", "publicationTitle": "The Diabetes educator", "publisher": "", "place": "", "date": "2003 Sep-Oct", "volume": "29", "issue": "5", "section": "", "partNumber": "", "partTitle": "", "pages": "847-854", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Diabetes Educ", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0145-7217 0145-7217", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 14603873", "tags": [ { "tag": "*Psychology, Child" }, { "tag": "*Quality of Life" }, { "tag": "Adaptation, Psychological" }, { "tag": "Adult" }, { "tag": "Child" }, { "tag": "Critical Care/*methods/psychology" }, { "tag": "Cross-Sectional Studies" }, { "tag": "Depressive Disorder/diagnosis/etiology" }, { "tag": "Diabetes Mellitus, Type 1/complications/*drug therapy/metabolism/*psychology" }, { "tag": "Family Health" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Insulin Infusion Systems" }, { "tag": "Male" }, { "tag": "Multivariate Analysis" }, { "tag": "Parents/*psychology" }, { "tag": "Regression Analysis" }, { "tag": "Social Support" }, { "tag": "Surveys and Questionnaires" }, { "tag": "Treatment Outcome" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "UR3CNN8P", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/UR3CNN8P", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/UR3CNN8P", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Stahl-Pehe et al.", "parsedDate": "2014-09", "numChildren": 0 }, "data": { "key": "UR3CNN8P", "version": 2, "itemType": "journalArticle", "title": "Quality of life in intensively treated youths with early-onset type 1 diabetes: a population-based survey.", "creators": [ { "creatorType": "author", "firstName": "Anna", "lastName": "Stahl-Pehe" }, { "creatorType": "author", "firstName": "Klaus", "lastName": "Strassburger" }, { "creatorType": "author", "firstName": "Katty", "lastName": "Castillo" }, { "creatorType": "author", "firstName": "Christina", "lastName": "Bachle" }, { "creatorType": "author", "firstName": "Reinhard W.", "lastName": "Holl" }, { "creatorType": "author", "firstName": "Karin", "lastName": "Lange" }, { "creatorType": "author", "firstName": "Joachim", "lastName": "Rosenbauer" } ], "abstractNote": "OBJECTIVE: To evaluate factors associated with self-reported generic, chronic-generic, and condition-specific quality of life (QoL) impairments in intensively treated patients with early-onset and long-duration type 1 diabetes. STUDY DESIGN: A total of 840 11- to 21-year-olds with type 1 diabetes onset before 5 years of age and at least 10 years diabetes duration completed questionnaires including the generic Revised Children's Quality of Life Questionnaire (KINDL-R), the DISABKIDS chronic-generic module (DCGM-12), and the DISABKIDS diabetes-specific module with impact and treatment scales to assess QoL. Regression analyses were conducted using sociodemographic, health-related, and diabetes-related independent variables. RESULTS: The strongest associations were observed between QoL scores and diabetes-specific factors, especially glycemic control and treatment satisfaction. The adjusted mean differences [regression coefficients beta (standard error)] between patient groups with high risk vs. optimal glycemic control were beta = -4.6 (1.1) for the KINDL-R total score, beta = -8.6 (1.5) for the DCGM-12, beta = -14.4 (1.9) for the diabetes impact score, and beta = -21.1 (2.7) for the diabetes treatment score (all p < 0.001). The mean differences between patient groups with poor vs. very good treatment satisfaction were beta = -5.9 (1.3) for the KINDL-R total score, beta = -8.5 (1.7) for the DCGM-12, beta = -9.4 (2.0) for the diabetes impact score, and beta = -15.0 (2.9) for the diabetes treatment score (all p < 0.001). In addition, recent severe hypoglycemia and an insulin regimen without an insulin pump were negatively associated with the QoL scores. CONCLUSION: Good glycemic control and a high level of treatment satisfaction are associated with a positive QoL in youths with early-onset type 1 diabetes.", "publicationTitle": "Pediatric diabetes", "publisher": "", "place": "", "date": "2014 Sep", "volume": "15", "issue": "6", "section": "", "partNumber": "", "partTitle": "", "pages": "436-443", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Pediatr Diabetes", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1399-5448 1399-543X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 25298998", "tags": [ { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Age of Onset" }, { "tag": "Child" }, { "tag": "Data Collection" }, { "tag": "Diabetes Mellitus, Type 1/*epidemiology/*therapy" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Hypoglycemia/chemically induced/epidemiology" }, { "tag": "Insulin Infusion Systems" }, { "tag": "Insulin/administration & dosage/adverse effects" }, { "tag": "Male" }, { "tag": "Socioeconomic Factors" }, { "tag": "Surveys and Questionnaires" }, { "tag": "Young Adult" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "HP96E2DE", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/HP96E2DE", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/HP96E2DE", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Guttmann-Bauman et al.", "parsedDate": "1998-06", "numChildren": 0 }, "data": { "key": "HP96E2DE", "version": 2, "itemType": "journalArticle", "title": "Metabolic control and quality-of-life self-assessment in adolescents with IDDM.", "creators": [ { "creatorType": "author", "firstName": "I.", "lastName": "Guttmann-Bauman" }, { "creatorType": "author", "firstName": "B. P.", "lastName": "Flaherty" }, { "creatorType": "author", "firstName": "M.", "lastName": "Strugger" }, { "creatorType": "author", "firstName": "R. C.", "lastName": "McEvoy" } ], "abstractNote": "OBJECTIVE: To examine the relation between metabolic control and self-assessed quality of life in adolescents with IDDM. RESEARCH DESIGN AND METHODS: The Diabetes Quality of Life (DQOL) questionnaire for youths was given to 69 subjects with IDDM aged 10-20 years at the time of their outpatient visit. Subjects with IDDM of < 1 year's duration or with documented psychotic disorder or mental retardation were excluded. Metabolic control was assessed by the mean HbA1c during the preceding year (long-term), by a single HbA1c at the time of the visit (short-term), and by the number of acute events related to IDDM in the preceding year. RESULTS: The DQOL score correlated with mean HbA1c (beta = 6.13, R2 = 0.22, P = 0.0122) and single HbA1c (beta = 3.94, R2 = 0.18, P = 0.05). Self-health assessment was the best predictor of DQOL score (beta = -44.42, R2 = 0.45, P < 0.0001). The Worries subscale score on DQOL correlated with the occurrence of acute events (beta = 6.97, R2 = 0.2, P = 0.006), but did not correlate with either HbA1c level. Correlations of mean HbA1c with the predictors were stronger than the correlations of single HbA1c with the same predictors. CONCLUSIONS: Metabolic control and quality of life are two important outcomes of IDDM care. In our study, adolescents in better metabolic control report better quality of life. Both components need to be addressed in developing successful diabetes treatment strategies for adolescents with IDDM.", "publicationTitle": "Diabetes care", "publisher": "", "place": "", "date": "1998 Jun", "volume": "21", "issue": "6", "section": "", "partNumber": "", "partTitle": "", "pages": "915-918", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Diabetes Care", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0149-5992 0149-5992", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 9614607", "tags": [ { "tag": "*Psychology, Adolescent" }, { "tag": "*Quality of Life" }, { "tag": "*Self-Assessment" }, { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Blood Glucose/metabolism" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/*blood/*psychology" }, { "tag": "Ethnic Groups" }, { "tag": "Hemoglobin A, Glycosylated/analysis" }, { "tag": "Humans" }, { "tag": "Minority Groups" }, { "tag": "Patient Selection" }, { "tag": "Regression Analysis" }, { "tag": "Reproducibility of Results" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "FJA7H45K", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/FJA7H45K", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/FJA7H45K", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Graue et al.", "parsedDate": "2003-10", "numChildren": 0 }, "data": { "key": "FJA7H45K", "version": 2, "itemType": "journalArticle", "title": "Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments.", "creators": [ { "creatorType": "author", "firstName": "M.", "lastName": "Graue" }, { "creatorType": "author", "firstName": "T.", "lastName": "Wentzel-Larsen" }, { "creatorType": "author", "firstName": "B. R.", "lastName": "Hanestad" }, { "creatorType": "author", "firstName": "B.", "lastName": "Batsvik" }, { "creatorType": "author", "firstName": "O.", "lastName": "Sovik" } ], "abstractNote": "AIMS: To describe perceived functional health and well-being and diabetes-related impact, worry and satisfaction with life in relation to demographic and clinical variables in a population of adolescents with type 1 diabetes. To compare perceived functional health and well-being between adolescents with diabetes and a group of healthy controls and to analyse the relationship between generic functional health and well-being and diabetes-related impact, worry and satisfaction with life. METHODS: A total of 130 adolescents were invited to complete the Child Health Questionnaire (CHQ-CF87) and the Diabetes Quality of Life (DQOL) questionnaire modified for youths. A total of 115 (88.5%) subjects participated in the study; mean age 14.5 y (SD 1.86), mean duration of diabetes 6.99 y (SD 3.77, range 1-16 y), mean HbA1c 9.3% (SD 1.62, range 6.2-14.0%). Forty-eight percent of the subjects were girls. RESULTS: When compared with healthy adolescents, subjects with diabetes reported a significantly lower degree of general health. The CHQ-CF87 scales showed that higher age in adolescents with diabetes was associated with lower scores for mental health (p < 0.001), self-esteem (p < 0.001), behaviour (p = 0.004) and general health (p < 0.001). Findings from the DQOL questionnaire showed that older adolescents were more worried (p < 0.001), perceived a greater impact of diabetes on daily life (p = 0.008) and lower diabetes-related life satisfaction (p < 0.001). The scores for girls were lower than those for boys in assessment of mental health (p < 0.001), self-esteem (p = 0.004) and family cohesion (p = 0.002). Girls also reported a greater impact of diabetes (p = 0.028), more worries (p = 0.001) and less satisfaction with life (p = 0.006) than boys. Neither HbA1c, nor other clinical variables could sufficiently explain the variations in DQOL or CHQ-CF87. CONCLUSIONS: Health-related quality of life varied significantly by age and gender, but less so by HbA1c and other clinical variables. Adolescents with diabetes reported a significantly lower degree of general health than that reported by healthy controls. The CHQ-CF87 is a valuable supplement to DQOL, allowing for comparisons with the general population.", "publicationTitle": "Acta paediatrica (Oslo, Norway : 1992)", "publisher": "", "place": "", "date": "2003 Oct", "volume": "92", "issue": "10", "section": "", "partNumber": "", "partTitle": "", "pages": "1190-1196", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Acta Paediatr", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0803-5253 0803-5253", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 14632337", "tags": [ { "tag": "*Health Status" }, { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Case-Control Studies" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/blood/*psychology" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/metabolism" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Regression Analysis" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "8VAW7H66", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/8VAW7H66", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/8VAW7H66", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "D'hooge et al.", "parsedDate": "2011-04", "numChildren": 0 }, "data": { "key": "8VAW7H66", "version": 2, "itemType": "journalArticle", "title": "Influence of combined aerobic and resistance training on metabolic control, cardiovascular fitness and quality of life in adolescents with type 1 diabetes: a randomized controlled trial.", "creators": [ { "creatorType": "author", "firstName": "Roseline", "lastName": "D'hooge" }, { "creatorType": "author", "firstName": "Tinneke", "lastName": "Hellinckx" }, { "creatorType": "author", "firstName": "Christophe", "lastName": "Van Laethem" }, { "creatorType": "author", "firstName": "Sanne", "lastName": "Stegen" }, { "creatorType": "author", "firstName": "Jean", "lastName": "De Schepper" }, { "creatorType": "author", "firstName": "Sara", "lastName": "Van Aken" }, { "creatorType": "author", "firstName": "Daniel", "lastName": "Dewolf" }, { "creatorType": "author", "firstName": "Patrick", "lastName": "Calders" } ], "abstractNote": "OBJECTIVE: To evaluate the effect of combined exercise training on metabolic control, physical fitness and quality of life in adolescents with type 1 diabetes. DESIGN: A double-blind randomized controlled trial with patients receiving combined aerobic and strength or no training. SETTING: University Hospital Ghent (Belgium). SUBJECTS: Sixteen children with type 1 diabetes were randomized into a control group (n = 8) and an intervention group (n = 8). INTERVENTIONS: Patients participated twice a week for 20 weeks in the combined aerobic and strength group. The control group continued their normal daily activities. MAIN MEASURES: Before and after the intervention anthropometric variables (weight, length, BMI, body composition), metabolic control (glycaemia, HbA1c, daily insulin injected), aerobic capacity (peak Vo(2), peak power, peak heart rate, 6-minute walk distance), strength (1 repetition maximum of upper and lower limb, hand grip strength, muscle fatigue resistance, sit-to-stand) and quality of life (SF-36) were assessed. RESULTS: At baseline, none of the measured parameters differed significantly between the two groups. There was no significant evolution in the groups concerning anthropometric indices, glycaemia and HbA1c. However, the daily doses of insulin injected were significantly lowered in the training group (0.96 IU/kg.day pre versus 0.90 IU/kg.day post; P < 0,05), while it was increased in the control group. Physical fitness increased significantly in the training group. General health, vitality and role emotional had a tendency to improve. CONCLUSION: Combined exercise training seemed to lower daily insulin requirement and improve physical fitness, together with better well-being.", "publicationTitle": "Clinical rehabilitation", "publisher": "", "place": "", "date": "2011 Apr", "volume": "25", "issue": "4", "section": "", "partNumber": "", "partTitle": "", "pages": "349-359", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Clin Rehabil", "DOI": "10.1177/0269215510386254", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1477-0873 0269-2155", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 21112904", "tags": [ { "tag": "*Physical Fitness" }, { "tag": "*Quality of Life" }, { "tag": "*Resistance Training" }, { "tag": "Adolescent" }, { "tag": "Belgium" }, { "tag": "Body Mass Index" }, { "tag": "Cardiovascular Physiological Processes" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/*rehabilitation" }, { "tag": "Exercise/*physiology" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Insulin/administration & dosage" }, { "tag": "Male" }, { "tag": "Metabolism/physiology" }, { "tag": "Sickness Impact Profile" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "4GDZ3MVB", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/4GDZ3MVB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/4GDZ3MVB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Mills et al.", "parsedDate": "2015-12-18", "numChildren": 0 }, "data": { "key": "4GDZ3MVB", "version": 2, "itemType": "journalArticle", "title": "Health-related quality of life of Taranaki children with Type 1 Diabetes.", "creators": [ { "creatorType": "author", "firstName": "Sarah A.", "lastName": "Mills" }, { "creatorType": "author", "firstName": "Paul L.", "lastName": "Hofman" }, { "creatorType": "author", "firstName": "Yannan", "lastName": "Jiang" }, { "creatorType": "author", "firstName": "Yvonne C.", "lastName": "Anderson" } ], "abstractNote": "AIM: To evaluate health-related quality of life (HRQOL) in children/adolescents with type 1 diabetes in Taranaki compared to siblings without diabetes/chronic disease. METHODS: The Pediatric Quality of Life Inventory (PedsQLTM) was requested in those with type 1 diabetes (n=67), their parent(s), and their siblings (where available). Age, gender, ethnicity, Deprivation Index, and clinical information were collected. Regression analysis was conducted to explore differences in HRQOL scores between diabetes patients and their siblings, adjusting for confounding factors. Predictive effects of aspects of diabetes on HRQOL were evaluated. RESULTS: 56 diabetes patients participated (84% response), and responses from 35 siblings were obtained. Exclusions (n=14) included those with type 1 diabetes for <6 months, type 2 diabetes, and other long-term medical or psychiatric conditions. Good level of agreement was found between parent-proxy and child report. There was no difference in HRQOL between the diabetes group and their siblings (mean -4.37, 95%CI [-10.67, 1.92]; p=0.17). Poorer diabetes control was associated with worse HRQOL (mean -0.32, 95%CI [-0.63, -0.01]; p=0.04). CONCLUSIONS: Surprisingly, HRQOL in children/adolescents with type 1 diabetes was similar to their siblings. This was encouraging as type 1 diabetes may not adversely affect HRQOL to the degree expected in Taranaki children.", "publicationTitle": "The New Zealand medical journal", "publisher": "", "place": "", "date": "2015 Dec 18", "volume": "128", "issue": "1427", "section": "", "partNumber": "", "partTitle": "", "pages": "25-32", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "N Z Med J", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1175-8716 0028-8446", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 26914001", "tags": [ { "tag": "*Health Status" }, { "tag": "Adolescent" }, { "tag": "Age Distribution" }, { "tag": "Child" }, { "tag": "Child, Preschool" }, { "tag": "Diabetes Mellitus, Type 1/epidemiology/*psychology" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "New Zealand/epidemiology" }, { "tag": "Prevalence" }, { "tag": "Quality of Life" }, { "tag": "Retrospective Studies" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "67SI2N9N", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/67SI2N9N", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/67SI2N9N", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Hahl et al.", "parsedDate": "2002-08", "numChildren": 1 }, "data": { "key": "67SI2N9N", "version": 2, "itemType": "journalArticle", "title": "Health-related quality of life in type 1 diabetes without or with symptoms of long-term complications.", "creators": [ { "creatorType": "author", "firstName": "J.", "lastName": "Hahl" }, { "creatorType": "author", "firstName": "H.", "lastName": "Hamalainen" }, { "creatorType": "author", "firstName": "H.", "lastName": "Sintonen" }, { "creatorType": "author", "firstName": "T.", "lastName": "Simell" }, { "creatorType": "author", "firstName": "S.", "lastName": "Arinen" }, { "creatorType": "author", "firstName": "O.", "lastName": "Simell" } ], "abstractNote": "OBJECTIVE: To measure subjective health-related quality of life (HRQoL) of patients with type 1 diabetes and describe the influence of symptoms of diabetes-related long-term complications on HRQoL. METHODS: The 15-D health-related quality of life measure (15D) was used to measure HRQoL of a representative sample of Finnish insulin-treated patients expected to have type 1 diabetes. Background data were gathered with a separate questionnaire. A tobit (censored regression) model was constructed to estimate the effects of symptoms of complications on HRQoL and to separate these effects from those of other health problems and aging. RESULTS: The 15D scores declined markedly with increasing age, and the prevalence of symptoms of long-term complications increased. The tobit regression model showed that these symptoms have a significant negative influence on HRQoL. The model explained over 50% of the variation in the 15D scores. CONCLUSIONS: High prevalence of symptoms of long-term complications combined with their significant negative influence on HRQoL causes substantial losses in terms of quality of life and utility from both individual and societal perspectives. Thus, the importance of secondary prevention, i.e., prevention of complications by better metabolic control, and also the so-far theoretic possibility to prevent type 1 diabetes itself is emphasized.", "publicationTitle": "Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation", "publisher": "", "place": "", "date": "2002 Aug", "volume": "11", "issue": "5", "section": "", "partNumber": "", "partTitle": "", "pages": "427-436", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Qual Life Res", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0962-9343 0962-9343", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 12113390", "tags": [ { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Aged" }, { "tag": "Diabetes Mellitus, Type 1/complications/*physiopathology" }, { "tag": "Disease Progression" }, { "tag": "Female" }, { "tag": "Finland" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Middle Aged" }, { "tag": "Self Efficacy" }, { "tag": "Sickness Impact Profile" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "2BD73IJU", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/2BD73IJU", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/2BD73IJU", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Tahirovic et al.", "parsedDate": "2012-03", "numChildren": 0 }, "data": { "key": "2BD73IJU", "version": 2, "itemType": "journalArticle", "title": "Health-related quality of life and metabolic control in children with type 1 diabetes mellitus in Bosnia and Herzegovina.", "creators": [ { "creatorType": "author", "firstName": "Husref", "lastName": "Tahirovic" }, { "creatorType": "author", "firstName": "Alma", "lastName": "Toromanovic" }, { "creatorType": "author", "firstName": "Elnur", "lastName": "Tahirovic" }, { "creatorType": "author", "firstName": "Hidajeta", "lastName": "Begic" }, { "creatorType": "author", "firstName": "James W.", "lastName": "Varni" } ], "abstractNote": "The primary objective of the study was to examine the relationship between generic and disease-specific HRQOL scores and metabolic control in children with Type 1 Diabetes Mellitus (T1DM). This cross-sectional study included 65 consecutive children between ages 5 and 18 years with T1DM. According to their values of glycosylated hemoglobin (HbA(1C)), the children were assigned to one of two groups. In Group 1 (N = 21) were the children with HbA(1C) values < 8% (good to moderate metabolic control) and Group 2 (N = 44) were children with > 8% (poor metabolic control). To evaluate generic and disease-specific HRQOL scores in children with T1DM in relation to metabolic control, we used the PedsQL 4.0 Generic Core Scales and the PedsQL 3.0 Diabetes Module. The patients in Group 1, by pediatric patient self-report and parent proxy-report, had statistically better disease-specific HRQOL scores on the diabetes symptoms, treatment barriers, treatment adherence and worry domains in comparison with Group 2. We also found significant correlations between the total generic HRQOL scores and HbA(1C) for both parent proxy-reports' Spearman's coefficient of rank correlation rho = -0.257; p = 0.0412 and pediatric patients' Spearman's coefficient of rank correlation rho = -0.269; p = 0.0313. The current findings suggest that poor glycemic control in children with T1DM is associated with lower generic and disease-specific HRQOL scores in developing and transitional countries.", "publicationTitle": "Collegium antropologicum", "publisher": "", "place": "", "date": "2012 Mar", "volume": "36", "issue": "1", "section": "", "partNumber": "", "partTitle": "", "pages": "117-121", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Coll Antropol", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0350-6134 0350-6134", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 22816207", "tags": [ { "tag": "*Health Status" }, { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Bosnia and Herzegovina" }, { "tag": "Child" }, { "tag": "Child, Preschool" }, { "tag": "Cross-Sectional Studies" }, { "tag": "Diabetes Mellitus, Type 1/*metabolism/*physiopathology/therapy" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Hyperglycemia/metabolism/physiopathology/therapy" }, { "tag": "Male" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "24KAKQ3W", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/24KAKQ3W", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/24KAKQ3W", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Froisland et al.", "parsedDate": "2013-09", "numChildren": 0 }, "data": { "key": "24KAKQ3W", "version": 2, "itemType": "journalArticle", "title": "Health-related quality of life among Norwegian children and adolescents with type 1 diabetes on intensive insulin treatment: a population-based study.", "creators": [ { "creatorType": "author", "firstName": "Dag Helge", "lastName": "Froisland" }, { "creatorType": "author", "firstName": "Marit", "lastName": "Graue" }, { "creatorType": "author", "firstName": "Trond", "lastName": "Markestad" }, { "creatorType": "author", "firstName": "Torild", "lastName": "Skrivarhaug" }, { "creatorType": "author", "firstName": "Tore", "lastName": "Wentzel-Larsen" }, { "creatorType": "author", "firstName": "Knut", "lastName": "Dahl-Jorgensen" } ], "abstractNote": "AIM: To examine health-related quality of life (HRQOL) in children and adolescents with type 1 diabetes on intensive insulin treatment. METHODS: All children and adolescents with type 1 diabetes above 8 years of age scheduled for follow-up at 21 paediatric departments in Norway, and one of their parents was invited to describe HRQOL by completing DISABKIDS questionnaires. HRQOL was related to sociodemographic factors (i.e. parental economy, education, marital status and to level of physical activity and disease characteristics, obtained from the Norwegian Childhood Diabetes Registry). RESULTS: Nine hundred and thirty seven (48%) and one of their parents responded. Mean duration of diabetes was 4.9 years (SD 3.3), 51% were girls, 56% used insulin pumps, and 44% used multiple insulin injections, predominantly of long-acting and rapid insulin analogues. Mean HbA1c was 8.5% (SD 1.3). Lower HRQOL scores were significantly associated with higher HbA1c, being a girl and experience of diabetes ketoacidosis. Mothers scored lower than fathers on total score and most subscales. No significant differences in scores were found between users of an insulin pump and multi-injection treatment. CONCLUSIONS: Health-related quality of life was related to metabolic control and gender, but not to mode of intensified insulin treatment.", "publicationTitle": "Acta paediatrica (Oslo, Norway : 1992)", "publisher": "", "place": "", "date": "2013 Sep", "volume": "102", "issue": "9", "section": "", "partNumber": "", "partTitle": "", "pages": "889-895", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Acta Paediatr", "DOI": "10.1111/apa.12312", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1651-2227 0803-5253", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "(c)2013 Foundation Acta Paediatrica. Published by John Wiley & Sons Ltd.", "extra": "PMID: 23738648", "tags": [ { "tag": "*Quality of Life" }, { "tag": "*Sickness Impact Profile" }, { "tag": "Adolescent" }, { "tag": "Age Factors" }, { "tag": "Body Mass Index" }, { "tag": "Child" }, { "tag": "Cross-Sectional Studies" }, { "tag": "Diabetes Mellitus, Type 1/diagnosis/*drug therapy" }, { "tag": "Diabetes mellitus type 1" }, { "tag": "Dose-Response Relationship, Drug" }, { "tag": "Drug Administration Schedule" }, { "tag": "Female" }, { "tag": "Follow-Up Studies" }, { "tag": "Hemoglobin A, Glycosylated/metabolism" }, { "tag": "Humans" }, { "tag": "Injections, Subcutaneous" }, { "tag": "Insulin Infusion Systems" }, { "tag": "Insulin/*therapeutic use" }, { "tag": "Insulin/administration & dosage" }, { "tag": "Male" }, { "tag": "Metabolic control" }, { "tag": "Norway" }, { "tag": "Risk Assessment" }, { "tag": "Sex Factors" }, { "tag": "Surveys and Questionnaires" }, { "tag": "health-related quality of life" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "BFMJW6XX", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/BFMJW6XX", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/BFMJW6XX", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Nakamura et al.", "parsedDate": "2010-04", "numChildren": 0 }, "data": { "key": "BFMJW6XX", "version": 2, "itemType": "journalArticle", "title": "Health-related and diabetes-related quality of life in Japanese children and adolescents with type 1 and type 2 diabetes.", "creators": [ { "creatorType": "author", "firstName": "Nobue", "lastName": "Nakamura" }, { "creatorType": "author", "firstName": "Nozomu", "lastName": "Sasaki" }, { "creatorType": "author", "firstName": "Kaichi", "lastName": "Kida" }, { "creatorType": "author", "firstName": "Nobuo", "lastName": "Matsuura" } ], "abstractNote": "BACKGROUND: The aim of this study was to assess (i) the health-related quality of life (HR-QOL) of primary, junior and high school children with type 1 and type 2 diabetes and to compare it with that of healthy school children; and (ii) to compare the diabetes-related QOL (DR-QOL) and the QOL of parents of children with diabetes, between type 1 and type 2 diabetes in Japan. METHODS: Overall, 471 patients aged 9-18 years (368 with type 1 and 103 with type 2 diabetes) and their parents were involved. QOL was assessed using a self-administered questionnaire. RESULTS: The total score for HR-QOL of primary and junior school children with type 1 diabetes was significantly higher than that of those with type 2 diabetes and healthy controls. However, there were no significant differences in high school children. Some subscales regarding HR-QOL were significantly lower for children with type 2 diabetes than for children with type 1 diabetes or healthy controls. The DR-QOL of children with type 1 and type 2 diabetes did not significantly differ. The Family Burden and Family Involvement were significantly greater in parents of children with type 1 diabetes. There were significantly positive correlations between HR-QOL and DR-QOL in both groups. In type 1 diabetes only, there were significant negative correlations between glycated hemoglobin and some subscales of the HR-QOL and QOL of parents of children with diabetes, and weak positive correlation between glycated hemoglobin and Family Burden. CONCLUSIONS: The HR-QOL of school children with type 1 diabetes was higher than that of those with type 2 diabetes and healthy school children. The QOL of school children with type 1 diabetes was not impaired.", "publicationTitle": "Pediatrics international : official journal of the Japan Pediatric Society", "publisher": "", "place": "", "date": "2010 Apr", "volume": "52", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "224-229", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Pediatr Int", "DOI": "10.1111/j.1442-200X.2009.002918.x", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1442-200X 1328-8067", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 20500475", "tags": [ { "tag": "*Diabetes Mellitus, Type 1" }, { "tag": "*Diabetes Mellitus, Type 2" }, { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Child" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Japan" }, { "tag": "Male" }, { "tag": "Young Adult" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "R72T4J87", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/R72T4J87", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/R72T4J87", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "van Bussel et al.", "parsedDate": "2013-06", "numChildren": 0 }, "data": { "key": "R72T4J87", "version": 2, "itemType": "journalArticle", "title": "Goal disturbance and coping in children with type I diabetes mellitus: relationships with health-related quality of life and A1C.", "creators": [ { "creatorType": "author", "firstName": "Annika", "lastName": "van Bussel" }, { "creatorType": "author", "firstName": "Anke", "lastName": "Nieuwesteeg" }, { "creatorType": "author", "firstName": "Eef", "lastName": "Janssen" }, { "creatorType": "author", "firstName": "Hedwig", "lastName": "van Bakel" }, { "creatorType": "author", "firstName": "Bea", "lastName": "van den Bergh" }, { "creatorType": "author", "firstName": "Nienke", "lastName": "Maas-van Schaaijk" }, { "creatorType": "author", "firstName": "Roelof", "lastName": "Odink" }, { "creatorType": "author", "firstName": "Kathinka", "lastName": "Rijk" }, { "creatorType": "author", "firstName": "Esther", "lastName": "Hartman" } ], "abstractNote": "OBJECTIVE: Our first objective was to compare the health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (8-12 years) with that of a healthy reference group, and to compare glycated hemoglobin (A1C) values of these children to recommended guidelines. Our second objective was to examine how goal disturbance and coping behaviour were related to HRQoL and A1C. METHOD: Forty-three children, 8-12 years of age, completed a set of questionnaires that assessed generic and diabetes-specific HRQoL, goal disturbance and coping behaviour. Demographic and clinical characteristics were extracted from medical records. RESULTS: Children with type 1 diabetes reported lower psychosocial HRQoL than healthy references (d=-0.48), especially on emotional functioning (d=-0.58). Goal disturbance was associated with lower generic HRQoL. Furthermore, the coping strategies avoidance, emotional reaction and wishful thinking were negatively associated with lower generic and disease-specific HRQoL (r ranged from -0.33 to -0.65), whereas acceptance was positively associated with disease-specific HRQoL (r=0.36). The average A1C was with 8.1% significantly above the recommended guidelines of 7.5%. Moreover, the coping strategies avoidance (r=0.31) and emotional reaction (r=0.32) were positively associated with higher blood glucose levels. CONCLUSIONS: The psychosocial HRQoL of children with type 1 diabetes was affected, which was directly associated with the inability to reach personal goals (goal disturbance). An accepting coping strategy might solve these HRQoL problems and additionally improve A1C values.", "publicationTitle": "Canadian journal of diabetes", "publisher": "", "place": "", "date": "2013 Jun", "volume": "37", "issue": "3", "section": "", "partNumber": "", "partTitle": "", "pages": "169-174", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Can J Diabetes", "DOI": "10.1016/j.jcjd.2013.02.058", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "2352-3840 1499-2671", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "Published by Elsevier Inc.", "extra": "PMID: 24070839", "tags": [ { "tag": "A1C value" }, { "tag": "Adaptation, Psychological/*physiology" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/*blood/epidemiology/*psychology" }, { "tag": "Female" }, { "tag": "Goals" }, { "tag": "Hemoglobin A, Glycosylated/*analysis" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Netherlands/epidemiology" }, { "tag": "Quality of Life" }, { "tag": "Surveys and Questionnaires" }, { "tag": "children" }, { "tag": "comportement d'adaptation" }, { "tag": "coping behaviour" }, { "tag": "diabete sucre de type 1" }, { "tag": "enfants" }, { "tag": "goal disturbance" }, { "tag": "health-related quality of life" }, { "tag": "perturbation des objectifs" }, { "tag": "qualite de vie liee a la sante" }, { "tag": "type 1 diabetes mellitus" }, { "tag": "valeur de l'HbA1c" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "3GXTU2B3", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/3GXTU2B3", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/3GXTU2B3", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Santiprabhob et al.", "parsedDate": "2012-01", "numChildren": 0 }, "data": { "key": "3GXTU2B3", "version": 2, "itemType": "journalArticle", "title": "Glycemic control, quality of life and self-care behavior among adolescents with type 1 diabetes who attended a diabetes camp.", "creators": [ { "creatorType": "author", "firstName": "Jeerunda", "lastName": "Santiprabhob" }, { "creatorType": "author", "firstName": "Pornpimol", "lastName": "Kiattisakthavee" }, { "creatorType": "author", "firstName": "Supawadee", "lastName": "Likitmaskul" }, { "creatorType": "author", "firstName": "Katharee", "lastName": "Chaichanwattanakul" }, { "creatorType": "author", "firstName": "Jirapa", "lastName": "Wekawanich" }, { "creatorType": "author", "firstName": "Hattaya", "lastName": "Dumrongphol" }, { "creatorType": "author", "firstName": "Apiradee", "lastName": "Sriwijitkamol" }, { "creatorType": "author", "firstName": "Thavatchai", "lastName": "Peerapatdit" }, { "creatorType": "author", "firstName": "Wannee", "lastName": "Nitiyanant" } ], "abstractNote": "A prospective study was conducted at the tenth Siriraj diabetes camp with the objectives of evaluating the effectiveness of diabetes camp on 1) glycemic control, 2) knowledge, 3) quality of life, and 4) self-care behavior of adolescents with type 1 diabetes (T1D) who participated in the diabetes camp. During the 5-day camp, twenty-seven participants (mean age 15.6 +/- 2.1 years, mean duration 6.3 +/- 3.0 years) were taught diabetes self-management education (DSME) and engaged in psychosocial support sessions. Post-camp activities were held every 3 months and participants were followed for 12 months post-camp. Glycemic control was assessed prior to the camp, then every 3 months. Knowledge level was assessed prior to the camp, at the end of the camp, and every 3 months. Diabetes self-care behavior and quality of life were evaluated prior to the camp, at 3 months and 12 months after the camp. After attending the camp, participants had improvement in knowledge but there were no changes in HbA1c levels or quality of life scores. Quality of life was not consistently associated with HbA1c. In general, participants did not perceive their quality of life was poor or feel having diabetes affected their social life. The issue participants worried about most was whether they would develop complications from diabetes. There were several weak points found among participant self-care behavior, particularly in diet-related matters. Despite no improvement in glycemic control, participants gained knowledge from attending the camp. Diet related self-care behavior is difficult for teenagers with T1D to be compliant.", "publicationTitle": "The Southeast Asian journal of tropical medicine and public health", "publisher": "", "place": "", "date": "2012 Jan", "volume": "43", "issue": "1", "section": "", "partNumber": "", "partTitle": "", "pages": "172-184", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Southeast Asian J Trop Med Public Health", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0125-1562 0125-1562", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 23082568", "tags": [ { "tag": "*Quality of Life" }, { "tag": "*Self Care" }, { "tag": "Adolescent" }, { "tag": "Blood Glucose/analysis" }, { "tag": "Camping" }, { "tag": "Diabetes Mellitus, Type 1/*psychology/*therapy" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Male" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "2PQNTK7G", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/2PQNTK7G", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/2PQNTK7G", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Gubitosi-Klug et al.", "parsedDate": "2016-02", "numChildren": 0 }, "data": { "key": "2PQNTK7G", "version": 2, "itemType": "journalArticle", "title": "Effects of Prior Intensive Insulin Therapy and Risk Factors on Patient-Reported Visual Function Outcomes in the Diabetes Control and Complications Trial/Epidemiology of Diabetes Interventions and Complications (DCCT/EDIC) Cohort.", "creators": [ { "creatorType": "author", "firstName": "Rose A.", "lastName": "Gubitosi-Klug" }, { "creatorType": "author", "firstName": "Wanjie", "lastName": "Sun" }, { "creatorType": "author", "firstName": "Patricia A.", "lastName": "Cleary" }, { "creatorType": "author", "firstName": "Barbara H.", "lastName": "Braffett" }, { "creatorType": "author", "firstName": "Lloyd Paul", "lastName": "Aiello" }, { "creatorType": "author", "firstName": "Arup", "lastName": "Das" }, { "creatorType": "author", "firstName": "William", "lastName": "Tamborlane" }, { "creatorType": "author", "firstName": "Ronald", "lastName": "Klein" } ], "abstractNote": "IMPORTANCE: Preservation of vision in patients with diabetes mellitus is critical. Interventions to improve glycemic control through early intensive treatment of diabetes reduce rates of severe retinopathy and preserve visual acuity. OBJECTIVE: To assess the effects of prior intensive insulin treatment and risk factors on patient-reported visual function in the Diabetes Control and Complications Trial/Epidemiology of Diabetes Interventions and Complications (DCCT/EDIC) cohort. DESIGN, SETTING, AND PARTICIPANTS: Cohort study of 1184 participants with type 1 diabetes from the DCCT/EDIC study (randomized clinical trial followed by an observational follow-up study) who completed the 25-item National Eye Institute Visual Function Questionnaire (NEI-VFQ-25) during EDIC years 17 through 20 (September 1, 2009, through April 30, 2014) in 28 institutions across the United States and Canada. MAIN OUTCOMES AND MEASURES: The primary outcome was the composite NEI-VFQ-25 score. Secondary outcomes were visual acuity (measured by the Early Treatment Diabetic Retinopathy Study protocol), retinopathy level (determined by masked grading of stereoscopic color fundus photographs), and NEI-VFQ-25 subscale scores. The composite NEI-VFQ-25 scale and its subscales were scored 0 to 100, corresponding to poor to excellent function, respectively. RESULTS: The overall average NEI-VFQ-25 score for 1184 DCCT/EDIC participants (mean [SD] age, 52.3 [6.9] years; 48% female) with a", "publicationTitle": "JAMA ophthalmology", "publisher": "", "place": "", "date": "2016 Feb", "volume": "134", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "137-145", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "JAMA Ophthalmol", "DOI": "10.1001/jamaophthalmol.2015.4606", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "2168-6173 2168-6165", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 26584339 \nPMCID: PMC4825807", "tags": [ { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Blood Glucose/metabolism" }, { "tag": "Diabetes Mellitus, Type 1/*drug therapy/epidemiology/physiopathology" }, { "tag": "Diabetic Retinopathy/diagnosis/epidemiology/*physiopathology" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/metabolism" }, { "tag": "Humans" }, { "tag": "Hypoglycemic Agents/*therapeutic use" }, { "tag": "Insulin/*therapeutic use" }, { "tag": "Male" }, { "tag": "Middle Aged" }, { "tag": "Quality of Life" }, { "tag": "Risk Factors" }, { "tag": "Sickness Impact Profile" }, { "tag": "Surveys and Questionnaires" }, { "tag": "Visual Acuity/*physiology" }, { "tag": "Young Adult" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "VKXCNIVB", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/VKXCNIVB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/VKXCNIVB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Lawrence et al.", "parsedDate": "2012-08", "numChildren": 0 }, "data": { "key": "VKXCNIVB", "version": 2, "itemType": "journalArticle", "title": "Demographic and clinical correlates of diabetes-related quality of life among youth with type 1 diabetes.", "creators": [ { "creatorType": "author", "firstName": "Jean M.", "lastName": "Lawrence" }, { "creatorType": "author", "firstName": "Joyce P.", "lastName": "Yi-Frazier" }, { "creatorType": "author", "firstName": "Mary Helen", "lastName": "Black" }, { "creatorType": "author", "firstName": "Andrea", "lastName": "Anderson" }, { "creatorType": "author", "firstName": "Korey", "lastName": "Hood" }, { "creatorType": "author", "firstName": "Giuseppina", "lastName": "Imperatore" }, { "creatorType": "author", "firstName": "Georgeanna J.", "lastName": "Klingensmith" }, { "creatorType": "author", "firstName": "Michelle", "lastName": "Naughton" }, { "creatorType": "author", "firstName": "Elizabeth J.", "lastName": "Mayer-Davis" }, { "creatorType": "author", "firstName": "Michael", "lastName": "Seid" } ], "abstractNote": "OBJECTIVES: To evaluate the reliability and cluster structure of the Pediatric Quality of Life Inventory Type 1 Diabetes Module 3.0 (PedsQL-T1DM) and associated subscales and to explore the associations between PedsQL-T1DM total score and demographic and clinical characteristics and clinical indicators among a large racially/ethnically diverse cohort of youth with type 1 diabetes. STUDY DESIGN: Principal components analysis was conducted on responses from the PedsQL-T1DM child self-report forms completed by SEARCH for Diabetes in Youth study participants aged >/= 5 years. Multivariate linear regression models were fit to examine the associations among PedsQL-T1DM total score, demographic and clinical characteristics, and clinical indicators. RESULTS: The sample comprised 2602 youth with a mean age of 13.6 +/- 4.1 years and a mean T1DM duration of 62.1 +/- 47.0 months. Principal components analysis did not support the 5 existing PedsQL-T1DM subscales. In multivariate analyses, the PedsQL-T1DM total score was negatively and significantly associated with younger age (5-7 years), female sex, receiving insulin by injection (vs pump), having parents without a college degree, Medicaid/Medicare insurance, and having a comorbid medical condition. Youth with poor glycemic control based on their age-specific hemoglobin A1c target values and those with depressive symptoms had significantly lower PedsQL-T1DM scores than their counterparts with good control and no or limited depressive symptoms. CONCLUSION: This study has identified sociodemographic and clinical characteristics of youth with T1DM more likely to experience poor diabetes-specific quality of life. The association of lower PedsQL-T1DM scores with depressive symptoms and poor glycemic control is especially concerning and may be the focus of future interventions and studies.", "publicationTitle": "The Journal of pediatrics", "publisher": "", "place": "", "date": "2012 Aug", "volume": "161", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "201-207.e2", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "J Pediatr", "DOI": "10.1016/j.jpeds.2012.01.016", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1097-6833 0022-3476", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "Copyright (c) 2012 Mosby, Inc. All rights reserved.", "extra": "PMID: 22361221 \nPMCID: PMC4503360", "tags": [ { "tag": "*Diabetes Mellitus, Type 1/blood/complications/psychology/therapy" }, { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Blood Glucose/analysis" }, { "tag": "Body Mass Index" }, { "tag": "Child" }, { "tag": "Child, Preschool" }, { "tag": "Depression/complications" }, { "tag": "Female" }, { "tag": "Health Status" }, { "tag": "Hemoglobin A, Glycosylated/analysis" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Socioeconomic Factors" }, { "tag": "Surveys and Questionnaires" }, { "tag": "Young Adult" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "V3UA64QI", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/V3UA64QI", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/V3UA64QI", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Ingerski et al.", "parsedDate": "2010-12", "numChildren": 0 }, "data": { "key": "V3UA64QI", "version": 2, "itemType": "journalArticle", "title": "Correlates of glycemic control and quality of life outcomes in adolescents with type 1 diabetes.", "creators": [ { "creatorType": "author", "firstName": "Lisa M.", "lastName": "Ingerski" }, { "creatorType": "author", "firstName": "Lori", "lastName": "Laffel" }, { "creatorType": "author", "firstName": "Dennis", "lastName": "Drotar" }, { "creatorType": "author", "firstName": "David", "lastName": "Repaske" }, { "creatorType": "author", "firstName": "Korey K.", "lastName": "Hood" } ], "abstractNote": "BACKGROUND: A major focus of pediatric multidisciplinary diabetes care is promoting glycemic control (A1c) while ensuring high quality of life (QOL). The current study investigated factors associated with A1c and QOL using a methodology that considered these variables as simultaneous outcomes. METHOD: A total of 261 adolescents (aged 13-18) with type 1 diabetes completed measures of blood glucose monitoring (BGM) frequency, diabetes-specific QOL, negative affect, and depression. Caregivers completed measures of demographic and disease characteristics, depression, and family conflict. RESULTS: A1c was negatively correlated with QOL (r = -0.18 to -0.29, p < 0.01) across all subscales. Based on clinical A1c goals and median QOL scores, adolescents fell into four glycemic control-QOL groups. Multinomial logistic regression determined correlates of group membership utilizing adolescents with suboptimal glycemic control-low QOL as the referent group. Adolescents with optimal glycemic control-high QOL reported increased BGM frequency (OR = 1.87), less negative affect (OR = 1.32), and were more likely to use CSII (OR = 5.41). Adolescents with optimal A1c-low QOL reported greater BGM frequency (OR = 1.91) and shorter disease duration (OR = 1.09). Adolescents with suboptimal glycemic control-high QOL reported greater BGM frequency (OR = 1.41), fewer depressive symptoms (OR = 1.13), and less negative affect (OR = 1.31). CONCLUSIONS: Results reveal disease, management, and psychosocial characteristics that differentiate glycemic control-QOL outcome groups and identify risk factors related to this relationship. Further appreciation of these characteristics may increase clinicians' understanding and attention to these important clinical outcomes and help tailor the most appropriate interventions (e.g., individual psychotherapy vs. family problem-solving interventions) to help adolescents achieve glycemic control without sacrificing QOL.", "publicationTitle": "Pediatric diabetes", "publisher": "", "place": "", "date": "2010 Dec", "volume": "11", "issue": "8", "section": "", "partNumber": "", "partTitle": "", "pages": "563-571", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Pediatr Diabetes", "DOI": "10.1111/j.1399-5448.2010.00645.x", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1399-5448 1399-543X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "(c) 2010 John Wiley & Sons A/S.", "extra": "PMID: 20149122", "tags": [ { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Blood Glucose Self-Monitoring/psychology" }, { "tag": "Blood Glucose/*metabolism" }, { "tag": "Depression/blood" }, { "tag": "Diabetes Mellitus, Type 1/*blood/*psychology" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/*metabolism" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "5VUU5DE6", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/5VUU5DE6", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/5VUU5DE6", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Mutlu et al.", "parsedDate": "2015-11-01", "numChildren": 1 }, "data": { "key": "5VUU5DE6", "version": 2, "itemType": "journalArticle", "title": "Association of physical activity level with depression, anxiety, and quality of life in children with type 1 diabetes mellitus.", "creators": [ { "creatorType": "author", "firstName": "Ebru Kaya", "lastName": "Mutlu" }, { "creatorType": "author", "firstName": "Caner", "lastName": "Mutlu" }, { "creatorType": "author", "firstName": "Hanifegul", "lastName": "Taskiran" }, { "creatorType": "author", "firstName": "Ilker Tolga", "lastName": "Ozgen" } ], "abstractNote": "BACKGROUND: Children with type 1 diabetes mellitus (T1DM) have low physical activity levels and are at high risk for psychosocial morbidities, including depression, heightened anxiety and low health-related quality of life (HRQoL). OBJECTIVE: The aim of this study was to assess the associations of physical activity level with depression, anxiety, and HRQoL in children with T1DM. SUBJECTS AND METHODS: A cross-sectional study design, including children with T1DM aged between 8 and 12 years and healthy controls, was used. Physical activity (PA) level was assessed with the Physical Activity Questionnaire for Older Children (PAQ-C). Anxiety was screened by The Screen for Anxiety Related Emotional Disorders (SCARED) questionnaire. Depressive symptoms were evaluated using the Children's Depression Inventory (CDI). Quality of life was assessed with the The Pediatric Quality of Life Inventory 4.0 (PedsQL 4.0). RESULTS: Forty-seven T1DM and 55 healthy children were included with mean ages of 9.87+/-1.63 and 9.56+/-1.60 years, respectively. The T1DM group had significantly higher depression and anxiety score (p<0.05) and lower HRQoL-child self-report score (p<0.05, for all) compared with the control group. Significant associations were found between PAQ-C and PedsQL 4.0 (p<0.05), between SCARED and PedsQL 4.0 (p<0.05), and between HbA1c and PedsQL 4.0 (p<0.05) in children with T1DM. CONCLUSIONS: The result of our study suggested that only HRQoL was related to physical activity, anxiety and HbA1c in children with T1DM.", "publicationTitle": "Journal of pediatric endocrinology & metabolism : JPEM", "publisher": "", "place": "", "date": "2015 Nov 1", "volume": "28", "issue": "11-12", "section": "", "partNumber": "", "partTitle": "", "pages": "1273-1278", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "J Pediatr Endocrinol Metab", "DOI": "10.1515/jpem-2015-0082", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "2191-0251 0334-018X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 26197465", "tags": [ { "tag": "*Motor Activity" }, { "tag": "Anxiety/*psychology" }, { "tag": "Child" }, { "tag": "Cross-Sectional Studies" }, { "tag": "Depression/*psychology" }, { "tag": "Diabetes Mellitus, Type 1/*psychology" }, { "tag": "Exercise/*psychology" }, { "tag": "Female" }, { "tag": "Health Status" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Quality of Life/*psychology" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "SAHJHHVV", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/SAHJHHVV", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/SAHJHHVV", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Al-Hayek et al.", "parsedDate": "2014-07", "numChildren": 1 }, "data": { "key": "SAHJHHVV", "version": 2, "itemType": "journalArticle", "title": "Assessment of health-related quality of life among adolescents with type 1 diabetes mellitus in Saudi Arabia.", "creators": [ { "creatorType": "author", "firstName": "Ayman A.", "lastName": "Al-Hayek" }, { "creatorType": "author", "firstName": "Asirvatham A.", "lastName": "Robert" }, { "creatorType": "author", "firstName": "Huda M.", "lastName": "Abbas" }, { "creatorType": "author", "firstName": "Mohamed B.", "lastName": "Itani" }, { "creatorType": "author", "firstName": "Abdulghani H.", "lastName": "Al-Saeed" }, { "creatorType": "author", "firstName": "Amal E.", "lastName": "Juhani" }, { "creatorType": "author", "firstName": "Hanouf S.", "lastName": "Al-Goudah" }, { "creatorType": "author", "firstName": "Fahad S.", "lastName": "Al-Sabaan" } ], "abstractNote": "OBJECTIVE: To evaluate the health-related quality of life (HRQoL) for adolescents with type 1 diabetes mellitus (T1DM). METHODS: A cross-sectional study was conducted among 214 adolescents (13-18 years) with T1DM at the Diabetes Treatment Center, Prince Sultan Military Medical City, Riyadh, Saudi Arabia from June to September 2013. Respondents were selected by their availability during routine visits to outpatient clinics, and interviewed using the Arabic translated version of the Pediatric Quality of Life Inventory 3.0 Diabetes Module (PedsQL 3.0 DM) independently. RESULTS: Female gender, multiple daily injection (MDI), longer duration of T1DM (>7 years), diabetic ketoacidosis (DKA) and adolescents with >7 HbA1c level had at least one poor HRQoL outcome. Multivariate linear regression analysis showed that age, treatment type (MDI), DKA, and >7 HbA1c were independent influencing factors for subscale diabetes symptoms, whereas >7 HbA1c was the independent influencing factor for treatment barriers and overall HRQoL. The DKA was the independent influencing factor for the subscale of worry, and female gender was the independent influencing factor for the subscale of communication. CONCLUSION: Female gender, age, treatment type, >7 HbA1c, and DKA are the strongest determinants for lower HRQoL for at least one subscale of the PedsQL 3.0 DM.", "publicationTitle": "Saudi medical journal", "publisher": "", "place": "", "date": "2014 Jul", "volume": "35", "issue": "7", "section": "", "partNumber": "", "partTitle": "", "pages": "712-717", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Saudi Med J", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0379-5284 0379-5284", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 25028228", "tags": [ { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Diabetes Mellitus, Type 1/*physiopathology/psychology" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Male" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "TRE9KBVB", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/TRE9KBVB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/TRE9KBVB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "de Wit et al.", "parsedDate": "2012-12", "numChildren": 0 }, "data": { "key": "TRE9KBVB", "version": 2, "itemType": "journalArticle", "title": "Assessing diabetes-related quality of life of youth with type 1 diabetes in routine clinical care: the MIND Youth Questionnaire (MY-Q).", "creators": [ { "creatorType": "author", "firstName": "Maartje", "lastName": "de Wit" }, { "creatorType": "author", "firstName": "Per", "lastName": "Winterdijk" }, { "creatorType": "author", "firstName": "Henk-Jan", "lastName": "Aanstoot" }, { "creatorType": "author", "firstName": "Barbara", "lastName": "Anderson" }, { "creatorType": "author", "firstName": "Thomas", "lastName": "Danne" }, { "creatorType": "author", "firstName": "Larry", "lastName": "Deeb" }, { "creatorType": "author", "firstName": "Karin", "lastName": "Lange" }, { "creatorType": "author", "firstName": "Anja Ostergren", "lastName": "Nielsen" }, { "creatorType": "author", "firstName": "Soren", "lastName": "Skovlund" }, { "creatorType": "author", "firstName": "Mark", "lastName": "Peyrot" }, { "creatorType": "author", "firstName": "Frank", "lastName": "Snoek" } ], "abstractNote": "AIM: It is recommended to assess health-related quality of life (HRQoL) in teenagers with diabetes as part of their ongoing medical care. Here, we describe the development and psychometric evaluation of the Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q), a multi-dimensional self-report HRQoL questionnaire designed for use in pediatric diabetes care. DESIGN AND METHODS: In expert meetings, characteristics and domains of interest were defined. Existing questionnaires were reviewed, topics selected, and new items added, resulting in the 36-item MY-Q. To test face validity, we interviewed 22 teenagers. In addition, 84 teenagers with type 1 diabetes (age 10-18 yr) completed the MY-Q and Pediatric Quality of Life Inventory (PedsQL) generic and diabetes-modules to examine psychometric properties. Hemoglobin A1c (HbA1c) values were obtained by chart audit. RESULTS: The MY-Q consists of seven subscales (social impact, parents, diabetes control perceptions, responsibility, worries, treatment satisfaction, and body image and eating behavior) as well as general HRQoL and emotional well-being. Cronbach's alpha for the total scale was 0.80. Strong correlations between MY-Q total and PedsQL generic and diabetes-module scores (r = 0.58 and r = 0.71, p < 0.001) confirmed concurrent validity. Higher HbA1c was associated with lower diabetes control perceptions (r = -0.35, p = 0.001), worries (r = -0.24, p = 0.029), and body image and eating behavior (r = -0.26, p = 0.019) scores. Younger age was associated with higher diabetes control perceptions (r = -0.26, p = 0.020) and body image and eating behavior (r = -0.23, p = .038), and lower responsibility (r = 0.25, p = 0.027) scores. CONCLUSION: The", "publicationTitle": "Pediatric diabetes", "publisher": "", "place": "", "date": "2012 Dec", "volume": "13", "issue": "8", "section": "", "partNumber": "", "partTitle": "", "pages": "638-646", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Pediatr Diabetes", "DOI": "10.1111/j.1399-5448.2012.00872.x", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1399-5448 1399-543X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "(c) 2012 John Wiley & Sons A/S.", "extra": "PMID: 23173877", "tags": [ { "tag": "*Quality of Life" }, { "tag": "*Surveys and Questionnaires" }, { "tag": "Adolescent" }, { "tag": "Body Image" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/blood/*psychology/therapy" }, { "tag": "Feeding Behavior" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/analysis" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Parents" }, { "tag": "Patient Satisfaction" }, { "tag": "Reproducibility of Results" }, { "tag": "Social Behavior" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "PDMUI8UU", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/PDMUI8UU", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/PDMUI8UU", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Wagner et al.", "parsedDate": "2005-08", "numChildren": 0 }, "data": { "key": "PDMUI8UU", "version": 2, "itemType": "journalArticle", "title": "Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus.", "creators": [ { "creatorType": "author", "firstName": "Verena M.", "lastName": "Wagner" }, { "creatorType": "author", "firstName": "Esther", "lastName": "Muller-Godeffroy" }, { "creatorType": "author", "firstName": "Simone", "lastName": "von Sengbusch" }, { "creatorType": "author", "firstName": "Stefan", "lastName": "Hager" }, { "creatorType": "author", "firstName": "Ute", "lastName": "Thyen" } ], "abstractNote": "The effects of illness and treatment of diabetes mellitus extend beyond medical outcomes. We therefore evaluated health-related quality of life (HRQOL) in children (aged 8-12 years) and adolescents (aged 13-16 years) with type 1 diabetes to compare their results with healthy peers and to identify HRQOL determinants. A total of 68 children and adolescents from a tertiary care clinic which specialises in the management of diabetes, completed the generic KINDL-R questionnaire. This instrument for children and adolescents has six dimensions and an additional module assessing condition-related HRQOL. Overall, the HRQOL was not different between patients with type 1 diabetes and healthy controls. In some areas, children and adolescents with diabetes reported a better HRQOL compared to healthy peers: adolescents reported better psychological well-being (P < 0.05) and children higher levels of well-being in the school domain (P < 0.05). In general, children reported a better HRQOL (P < 0.05) than adolescents with type 1 diabetes confirming age-related differences in HRQOL in the general population. Lower HbA1c (<8%) and intensified insulin therapy (>3 injections/day) were associated with a better HRQOL in different domains (P < 0.05). The subscale \"chronic illness\" showed a better HRQOL (P < 0.001) in children and adolescents with diabetes compared to age-matched controls with other chronic conditions. CONCLUSION: Children and adolescents from a paediatric department specialising in diabetes management report good health-related quality of life. Younger age, good metabolic control and intensified insulin therapy are associated with a better health-related quality of life. Dimensions of health-related quality of life appear to play different roles at different ages, emphasising the importance of the multidimensional health-related quality of life concept and the value of age-appropriate self-reports.", "publicationTitle": "European journal of pediatrics", "publisher": "", "place": "", "date": "2005 Aug", "volume": "164", "issue": "8", "section": "", "partNumber": "", "partTitle": "", "pages": "491-496", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Eur J Pediatr", "DOI": "10.1007/s00431-005-1681-4", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0340-6199 0340-6199", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 15875213", "tags": [ { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Age Factors" }, { "tag": "Blood Glucose/metabolism" }, { "tag": "Case-Control Studies" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/blood/*drug therapy" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/metabolism" }, { "tag": "Humans" }, { "tag": "Hypoglycemic Agents/*administration & dosage" }, { "tag": "Injections, Subcutaneous" }, { "tag": "Insulin/*administration & dosage" }, { "tag": "Male" }, { "tag": "Population Surveillance" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "VVA2CC4Z", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/VVA2CC4Z", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/VVA2CC4Z", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Ladyzynski et al.", "parsedDate": "2014", "numChildren": 0 }, "data": { "key": "VVA2CC4Z", "version": 2, "itemType": "journalArticle", "title": "Validation of a hemoglobin A1c model in patients with type 1 and type 2 diabetes and its use to go beyond the averaged relationship of hemoglobin A1c and mean glucose level.", "creators": [ { "creatorType": "author", "firstName": "Piotr", "lastName": "Ladyzynski" }, { "creatorType": "author", "firstName": "Piotr", "lastName": "Foltynski" }, { "creatorType": "author", "firstName": "Marianna I.", "lastName": "Bak" }, { "creatorType": "author", "firstName": "Stanislawa", "lastName": "Sabalinska" }, { "creatorType": "author", "firstName": "Janusz", "lastName": "Krzymien" }, { "creatorType": "author", "firstName": "Jerzy", "lastName": "Kawiak" } ], "abstractNote": "BACKGROUND: Glycated hemoglobin A1c (HbA1c) has been used as an index of glycemic control in the management, guidance, and clinical trials of diabetic patients for the past 35 years. The aim of this study was to validate the HbA1c model in patients with type 1 and type 2 diabetes and to use it to support interpretation of HbA1c in different clinical situations. METHODS: The HbA1c model was identified in 30 patients (15 with type 1 diabetes and 15 with type 2 diabetes) by estimating the overall glycation rate constant (k), based on results of continuous glucose monitoring. The model was validated by assessing its ability to predict HbA1c changes in cultures of erythrocytes in vitro and to reproduce results of the A1C-Derived Average Glucose (ADAG) study. The model was used to simulate the influence of different glucose profiles on HbA1c. RESULTS: The mean k was equal to 1.296 +/- 0.216 x 10(-9) l mmol(-1) s(-1) with no difference between type 1 and type 2 diabetes. The mean coefficient of variation of k was equal to 16.7%. The model predicted HbA1c levels in vitro with a mean absolute difference less than 0.3% (3.3 mmol/mol). It reproduced the linear relationship of HbA1c and mean glucose levels established in the ADAG study. The simulation experiments demonstrated that during periods of unstable glycemic control, glycemic profiles with the same mean glucose might result in much different HbA1c levels. CONCLUSIONS: Patients with type 1 and type 2 diabetes are characterized by the same mean value of k, but there is considerable interindividual variation in the relationship of HbA1c and mean glucose level. Results suggest that reciprocal changes in glycation rate and the life span of erythrocytes exist in a wide range of HbA1c values. Thus, for an average patient with diabetes, no modifications of parameters of the glycation model are required to obtain meaningful HbA1c predictions. Interpreting HbA1c as a measure of the mean glucose is fully justified only in the case of stable glycemia. The model and more frequent tests of HbA1c might be used to decrease ambiguity of interpreting HbA1c in terms of glycemic control.", "publicationTitle": "Journal of translational medicine", "publisher": "", "place": "", "date": "2014", "volume": "12", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "328", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "J Transl Med", "DOI": "10.1186/s12967-014-0328-5", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1479-5876 1479-5876", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 25491199 \nPMCID: PMC4268801", "tags": [ { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Blood Glucose/*metabolism" }, { "tag": "Diabetes Mellitus, Type 1/*metabolism" }, { "tag": "Diabetes Mellitus, Type 2/*metabolism" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/*metabolism" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Middle Aged" }, { "tag": "Young Adult" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "IRTPZWGA", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/IRTPZWGA", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/IRTPZWGA", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Vanelli et al.", "parsedDate": "2003", "numChildren": 0 }, "data": { "key": "IRTPZWGA", "version": 2, "itemType": "journalArticle", "title": "Relationship between metabolic control and quality of life in adolescents with type 1 diabetes. Report from two Italian centres for the management of diabetes in childhood.", "creators": [ { "creatorType": "author", "firstName": "Maurizio", "lastName": "Vanelli" }, { "creatorType": "author", "firstName": "Francesco", "lastName": "Chiarelli" }, { "creatorType": "author", "firstName": "Giovanni", "lastName": "Chiari" }, { "creatorType": "author", "firstName": "Stefano", "lastName": "Tumini" } ], "abstractNote": "This study is aimed at answering the question whether the demands of the intensified diabetes management and good metabolic control may influence the Quality of Life (QOL) of adolescents with Type 1 Diabetes (T1D), and that of their parents. Overall, 153 adolescents were involved (78 males, mean age 15.0 +/- 2.3 median age 14.6 years; average diabetes duration 6.5 +/- 3.5 years) from the Regional Centres of the Universities of Chieti and Parma. HbA1c determination was centralized and the adolescents were tested according to the adolescent version of the questionnaire developed by Ingersoll and Marrero on the impact of diabetes, worries about diabetes, satisfaction with life, and health perception. The burden on the family was assessed following a newly constructed questionnaire. The average HbA1c value was 7.7 +/- 1.4% (boys 8.0 +/- 1.4 and girls 7.5 +/- 1.2%). The impact of diabetes was similar for both boys and girls (average scores: 44.68 vs 45.00) with no effect regarding age or the duration of diabetes, but the influence of HbA1c values was significant (p < 0.001). Compared with boys, girls had an earlier (at about 12 years of age) and more significant increase in worries (p < 0.01). Lower HbA1c values were associated with fewer worries (p < 0.02). Satisfaction deterioration appeared earlier in girls than in boys and was associated with high levels of HbA1c (p < 0.01). Health perception was poorer in girls than in boys and was influenced by HbA1c values (p < 0.005) in both girls and boys. The burden on the family with diabetes decreased with the age of the adolescent. In conclusion, in our group of adolescents with T1D, lower HbA1c was also associated with better QOL and with a lower perception of a burden on the family. These findings justify the efforts to assess QOL perception in adolescents in order to facilitate achieving better metabolic control.", "publicationTitle": "Acta bio-medica : Atenei Parmensis", "publisher": "", "place": "", "date": "2003", "volume": "74 Suppl 1", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "13-17", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Acta Biomed", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0392-4203 0392-4203", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 12817795", "tags": [ { "tag": "*Quality of Life" }, { "tag": "Adolescent" }, { "tag": "Adult" }, { "tag": "Anxiety" }, { "tag": "Child" }, { "tag": "Diabetes Mellitus, Type 1/blood/drug therapy/*psychology" }, { "tag": "Family Health" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/analysis" }, { "tag": "Hospitals, University" }, { "tag": "Hospitals, Urban" }, { "tag": "Humans" }, { "tag": "Insulin/*therapeutic use" }, { "tag": "Male" }, { "tag": "Parents/psychology" }, { "tag": "Patient Satisfaction" }, { "tag": "Surveys and Questionnaires" }, { "tag": "Treatment Outcome" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } }, { "key": "DHP4XIWG", "version": 2, "library": { "type": "group", "id": 698342, "name": "QoL and GC", "links": { "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/698342/items/DHP4XIWG", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/qol_and_gc/items/DHP4XIWG", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2375565, "username": "JoaoDRFernandes", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/joaodrfernandes", "type": "text/html" } } }, "creatorSummary": "Nardi et al.", "parsedDate": "2008-10", "numChildren": 0 }, "data": { "key": "DHP4XIWG", "version": 2, "itemType": "journalArticle", "title": "Quality of life, psychological adjustment and metabolic control in youths with type 1 diabetes: a study with self- and parent-report questionnaires.", "creators": [ { "creatorType": "author", "firstName": "Laura", "lastName": "Nardi" }, { "creatorType": "author", "firstName": "Stefano", "lastName": "Zucchini" }, { "creatorType": "author", "firstName": "Franco", "lastName": "D'Alberton" }, { "creatorType": "author", "firstName": "Silvana", "lastName": "Salardi" }, { "creatorType": "author", "firstName": "Giulio", "lastName": "Maltoni" }, { "creatorType": "author", "firstName": "Nicoletta", "lastName": "Bisacchi" }, { "creatorType": "author", "firstName": "Daniela", "lastName": "Elleri" }, { "creatorType": "author", "firstName": "Alessandro", "lastName": "Cicognani" } ], "abstractNote": "OBJECTIVE: To evaluate self and parent reports on quality of life (QoL) and psychological adjustment of youths with type 1 diabetes, in comparison to a general paediatric population, and identify relationships between disease duration, metabolic control and psychological parameters. RESEARCH DESIGN AND METHODS: Participants included 70 youths with type 1 diabetes and their parents. They were compared with 70 non-diabetic subjects. Data were analyzed in the whole group and in subgroups aged 6-10, 11-13 and 14-18 yr. All cases performed pediatric QoL, Child Behaviour Checklist, filled in by parents, and Youth Self-Report, filled in by youths. Data were compared with haemoglobin A1c (HbA1c) values and disease duration. RESULTS: Self-reports showed a psychological adjustment of youths with type 1 diabetes similar to that of controls. Parent reports showed that parents of children with type 1 diabetes were more worried than those of controls (p < 0.01). Adolescents showed a worse QoL and more frequent psychological disturbances. In this group, for youth and parent reports, HbA1c levels correlated positively with psychological problems (p < 0.05) and negatively with QoL (p < 0.05). Only for parent reports, in the whole group and in subgroups aged 6-10 and 11-13 yr, disease duration correlated positively with psychological adjustment (p < 0.05). CONCLUSIONS: Before adolescence, youths with type 1 diabetes showed only slight problems in psychological adjustment and QoL, with an association with disease duration reported by parents. In adolescence, both youths and their parents reported more emotional and behavioural problems, independent of disease duration. Better metabolic control and psychological well-being seemed directly related.", "publicationTitle": "Pediatric diabetes", "publisher": "", "place": "", "date": "2008 Oct", "volume": "9", "issue": "5", "section": "", "partNumber": "", "partTitle": "", "pages": "496-503", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Pediatr Diabetes", "DOI": "10.1111/j.1399-5448.2008.00414.x", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1399-5448 1399-543X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "PMID: 18507786", "tags": [ { "tag": "*Adaptation, Psychological" }, { "tag": "*Self-Assessment" }, { "tag": "Adolescent" }, { "tag": "Child" }, { "tag": "Cohort Studies" }, { "tag": "Diabetes Mellitus, Type 1/metabolism/*psychology" }, { "tag": "Female" }, { "tag": "Hemoglobin A, Glycosylated/metabolism" }, { "tag": "Humans" }, { "tag": "Male" }, { "tag": "Parents/*psychology" }, { "tag": "Quality of Life/*psychology" }, { "tag": "Surveys and Questionnaires" } ], "collections": [], "relations": {}, "dateAdded": "2016-09-14T14:36:53Z", "dateModified": "2016-09-14T14:36:53Z" } } ]