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\nOur discussion of uncomfortable interactions revealed that there is other important territory for HCI to explore when addressing cultural experiences, for example recognising the tradition of provoking and confronting difficult, even taboo, subjects, and feelings.
\nEthics
\nThe lower order of risk involved in social science research makes the formal consent procedures and research ethics committees appear heavy handed [Kent et al. 2002; Pattullo 1982; Whittaker 2005]. In addition, the ‘anticipatory’ nature of consent where issues of concern and risk are identified at the beginning of an investigation are not always desirable in qualitative social science research where such issues themselves may be a matter of enquiry and discovery [Ramcharan and Cutliffe 2001; Riessman 2005]. .
\nFormal consent
\nThese authors argue that formal informed consent procedures are deeply problematic from this viewpoint, in which the focus is shifted (a) from identifying and eliminating potential risks in advance of the study to engaging actively with the moral dilemmas as they emerge in the course of the investigation; and (b) from individualistic concerns to more interpersonal relations.
\nEthical issues
\nIn the latter for example, Fogg et al. [2003] assert that ‘ethical problems arise when the values, goals, and interests of the creators don’t match with those of the people who use the technology’.
\nfocusing on ease of use ignored more sophisticated attributes of users
\nAs technology became increasingly embedded in all areas and aspects of human life, the notion of human values and how these impact upon the design of computers emerged as a further significant area of HCI research [Friedman et al. 2006; Cockton 2006; Sellen et al. 2009; Knobel and Bowker 2011; Luger and Rodden 2013; Luger et al. 2013]. Ethical areas of concern here typically include data ownership and protection, privacy, trust, system bias, autonomy, usability, informed consent, identity, green ICT, and professional ethics.
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"note": "\"there are significant issues as to the extent to which this approach provides information in a manner that is readily understood by, and genuinely informs users\" p1
\nOrdinarily there is a moment of consent - \"a clear interactional moment\" which provides \"an opportunity to inform users about the nature of the service with which they are about to engage\" and \"can reflect on the nature of the service and implications of use\"
\n
\n\"Computers increasingly and continuously gather and exploit personal information generated during our daily interactions in the world. Subsequently, identifying the point at which a user might be both informed of the nature of ubiquitous services, and subsequently consent to their data demands, becomes increasingly problematic.\"
\nChallenges:
\n1. Decouple users from devices (Hong 2009) results in reduction of agency ('operation of social power located in the actions and behaviour of human individuals')
\n2. personal information is gathered implicitly - without people being aware that it is being collected - designed to be unobtrusive
\n3. Delivery in a context aware environment means that there must be access to personal information - drawn upon by services that were not responsible for its initial collection often for purposes other than those originally proposed.
\n\"In reality, the act of informing is complex, highly context and norm-dependent, referentially opaque, inferentially fertile and audience-sensitive, and thereby not adequately served through traditional forms of notice.\" p8
\n
\"Truly informed consent is particularly difficult within pervasive computing, given the growing prominence of autonomous
systems and the embedded algorithms involved.\" p8
\nEmbedded technology makes decisions - \"However, the user may not understand how this decision was arrived at, or even that this was based on
a set of probabilities and uncertainties. Equally an embedded agent might infer, from a sequence of actions, a high degree of probability that an individual is likely to do something, and then act on this assumption. Finding ways of conveying that these actions will occur, and what drives them, represents a major challenge in informing users about what they are consenting to within a pervasive computing environment.\"
\nOften approaches \"fail to acknowledge the principles of a meaningful consensual act ... Instead these approaches dilute and therefore undermine the human knowledge and agency required to a meaningful consensual act\" p8
\n\"The dissolution of two-way interfaces that accompany emerging pervasive environments reduces further the opportunities for user agency. This means that the seeking of explicit consent is increasingly difficult and arduous and may seem impractical from a design perspective (Soppera and Burbrige, 2004)
\nConsent should be \"recast as a negotiated and very specific and context-dependant waiver of rights and obligations 'in limited ways for a limited time for a limited purpose' (Manson and O'Neill, 2007 p187) and therefore should be time-limited or revocable\"
\n
\nCurrently systems are designed to meet the basic regulatory consent standards for data protection. Pervasive systems not only gather more and different data, but also use that data in different and changing ways
\nPervasive systems may need to reconsider how they capture information about users and analyse this. Need to ensure that inhabitants remain connected to the information gathered about them both directly and indirectly and that this information is open and transparent to them
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