[ { "key": "2SB8KVIN", "version": 23, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/2SB8KVIN", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/2SB8KVIN", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Valero", "parsedDate": "2019", "numChildren": 0 }, "data": { "key": "2SB8KVIN", "version": 23, "itemType": "report", "title": "Datos abiertos y sanidad: contexto tecnológico, actores implicados y marco jurídico", "creators": [ { "creatorType": "author", "firstName": "Julián", "lastName": "Valero" } ], "abstractNote": "El desafío de la transformación digital en el ámbito sanitario precisa de instrumentos que\nnecesariamente se basan en el uso avanzado y masivo de datos. Estos datos no sólo tienen que ser de ámbito general sino, además, referidos a las concretas circunstancias de las personas usuarias de los servicios y, asimismo, de los tratamientos a los que se someten.\nSin embargo, debido a la naturaleza especialmente sensible del ámbito al que se refieren, existen importantes reticencias a la disponibilidad de los mismos conforme a las exigencias técnicas que permitan su reutilización de manera automatizada, en particular cuando dicho\ntratamiento vaya a ser realizado por entidades privadas.\nMás allá de consideraciones ideológicas, en las páginas que siguen realizaremos un análisis\nestrictamente jurídico que nos permita:\n1. Conocer los condicionamientos, limitaciones y restricciones que imponen las vigentes\nnormas jurídicas.\n2. Plantear cómo deberían adaptarse las garantías que ofrece el Derecho a una nueva\nrealidad basada en la innovación tecnológica.\nEstas cuestiones resultan de enorme importancia no sólo para una mejor prestación del\nservicio sanitario a quienes han de afrontar el delicado trance que supone una enfermedad sino, además, para adoptar políticas públicas en el ámbito de la salud con la mayor eficacia posible, sin perder de vista la imprescindible exigencia de eficiencia que reclama el gasto\npúblico en un ámbito caracterizado por un coste cada vez más elevado.", "reportNumber": "", "reportType": "", "institution": "Iniciativa APORTA", "place": "", "date": "Diciembre 2019", "seriesTitle": "", "seriesNumber": "", "pages": "49", "DOI": "", "ISBN": "", "citationKey": "", "url": "https://datos.gob.es/sites/default/files/doc/file/datos_abiertos_y_sanidad_contexto_tecnologico_actores_implicados_y_marco_juridico_0.pdf", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2020-01-24T09:40:45Z", "dateModified": "2020-01-24T09:40:45Z" } }, { "key": "39BBQD9T", "version": 22, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/39BBQD9T", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/39BBQD9T", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Tenopir et al.", "parsedDate": "2019", "numChildren": 0 }, "data": { "key": "39BBQD9T", "version": 22, "itemType": "report", "title": "“Research Data Services in Academic Libraries: Where are We Today?”", "creators": [ { "creatorType": "author", "firstName": "Carol", "lastName": "Tenopir" }, { "creatorType": "author", "firstName": "Jordan", "lastName": "Kaufman" }, { "creatorType": "author", "firstName": "Robert", "lastName": "Sanduski" }, { "creatorType": "author", "firstName": "Danielle", "lastName": "Pollock" } ], "abstractNote": "", "reportNumber": "", "reportType": "", "institution": "ACRL/Choice", "place": "", "date": "2019", "seriesTitle": "", "seriesNumber": "", "pages": "", "DOI": "", "ISBN": "", "citationKey": "", "url": "http://choice360.org/librarianship/whitepaper.", "accessDate": "2020-01-22", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2020-01-24T08:43:48Z", "dateModified": "2020-01-24T08:43:48Z" } }, { "key": "USVFEUMQ", "version": 21, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/USVFEUMQ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/USVFEUMQ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Union", "parsedDate": "2018-11-26", "numChildren": 0 }, "data": { "key": "USVFEUMQ", "version": 21, "itemType": "webpage", "title": "Turning FAIR data into reality : final report and action plan from the European Commission expert group on FAIR data.", "creators": [ { "creatorType": "author", "firstName": "Publications Office of the European", "lastName": "Union" } ], "abstractNote": "To take advantage of the digital revolution, to accelerate research, to engage the power of machine analysis at scale while ensuring transparency, reproducibility and societal utility, data and other digital objects created by and used for research need to be FAIR. Advancing the global Open Science movement and the development of the European Open Science Cloud is the unambiguous objective for this report. This document is both a report and an action plan for turning FAIR into reality. It offers a survey and analysis of what is needed to implement FAIR and it provides a set of concrete recommendations and actions for stakeholders in Europe and beyond. It is our intention that it should provide a framework that will greatly assist the creation of the European Open Science Cloud, and will be applicable to other comparable initiatives globally.", "websiteTitle": "", "websiteType": "Website", "date": "2018-11-26", "publisher": "", "place": "", "DOI": "", "citationKey": "", "url": "https://publications.europa.eu/en/publication-detail/-/publication/7769a148-f1f6-11e8-9982-01aa75ed71a1/language-en/format-PDF", "accessDate": "2018-12-06T09:19:57Z", "shortTitle": "Turning FAIR data into reality", "language": "en", "rights": "", "extra": "", "tags": [ { "tag": "fair" }, { "tag": "research data" } ], "collections": [], "relations": {}, "dateAdded": "2018-12-06T09:36:35Z", "dateModified": "2018-12-06T09:36:35Z" } }, { "key": "IZ2DDGMW", "version": 20, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/IZ2DDGMW", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/IZ2DDGMW", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Mayernik", "parsedDate": "2016", "numChildren": 0 }, "data": { "key": "IZ2DDGMW", "version": 20, "itemType": "journalArticle", "title": "Research data and metadata curation as institutional issues", "creators": [ { "creatorType": "author", "firstName": "Matthew S.", "lastName": "Mayernik" } ], "abstractNote": "Research data curation initiatives must support heterogeneous kinds of projects, data, and metadata. This article examines variability in data and metadata practices using “institutions” as the key theoretical concept. Institutions, in the sense used here, are stable patterns of human behavior that structure, legitimize, or delegitimize actions, relationships, and understandings within particular situations. Based on prior conceptualizations of institutions, a theoretical framework is presented that outlines 5 categories of “institutional carriers” for data practices: (a) norms and symbols, (b) intermediaries, (c) routines, (d) standards, and (e) material objects. These institutional carriers are central to understanding how scientific data and metadata practices originate, stabilize, evolve, and transfer. This institutional framework is applied to 3 case studies: the Center for Embedded Networked Sensing (CENS), the Long Term Ecological Research (LTER) network, and the University Corporation for Atmospheric Research (UCAR). These cases are used to illustrate how institutional support for data and metadata management are not uniform within a single organization or academic discipline. Instead, broad spectra of institutional configurations for managing data and metadata exist within and across disciplines and organizations.", "publicationTitle": "Journal of the Association for Information Science and Technology", "publisher": "", "place": "", "date": "Abril 1, 2016", "volume": "67", "issue": "4", "section": "", "partNumber": "", "partTitle": "", "pages": "973-993", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "J Assn Inf Sci Tec", "DOI": "10.1002/asi.23425", "citationKey": "", "url": "http://onlinelibrary.wiley.com/doi/10.1002/asi.23425/abstract", "accessDate": "2016-03-30T08:16:48Z", "PMID": "", "PMCID": "", "ISSN": "2330-1643", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "en", "libraryCatalog": "Wiley Online Library", "callNumber": "", "rights": "© 2015 ASIS&T", "extra": "", "tags": [ { "tag": "Information infrastructure", "type": 1 }, { "tag": "data", "type": 1 }, { "tag": "organizational environment", "type": 1 } ], "collections": [], "relations": {}, "dateAdded": "2017-10-05T08:49:28Z", "dateModified": "2017-10-05T08:49:28Z" } }, { "key": "DLCGF9Z5", "version": 20, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/DLCGF9Z5", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/DLCGF9Z5", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Kindling et al.", "parsedDate": "2017", "numChildren": 0 }, "data": { "key": "DLCGF9Z5", "version": 20, "itemType": "journalArticle", "title": "The Landscape of Research Data Repositories in 2015: A re3data Analysis", "creators": [ { "creatorType": "author", "firstName": "Maxi", "lastName": "Kindling" }, { "creatorType": "author", "firstName": "Heinz", "lastName": "Pampel" }, { "creatorType": "author", "firstName": "Stephanie", "lastName": "van de Sandt" }, { "creatorType": "author", "firstName": "Jessika", "lastName": "R?cknagel" }, { "creatorType": "author", "firstName": "Paul", "lastName": "Vierkant" }, { "creatorType": "author", "firstName": "Gabriele", "lastName": "Kloska" }, { "creatorType": "author", "firstName": "Michael", "lastName": "Witt" }, { "creatorType": "author", "firstName": "Peter", "lastName": "Schirmbacher" }, { "creatorType": "author", "firstName": "Roland", "lastName": "Bertelmann" }, { "creatorType": "author", "firstName": "Frank", "lastName": "Scholze" } ], "abstractNote": "", "publicationTitle": "D-Lib Magazine", "publisher": "", "place": "", "date": "03/2017", "volume": "23", "issue": "3/4", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.1045/march2017-kindling", "citationKey": "", "url": "http://www.dlib.org/dlib/march17/kindling/03kindling.html", "accessDate": "2017-07-02T10:46:01Z", "PMID": "", "PMCID": "", "ISSN": "1082-9873", "archive": "", "archiveLocation": "", "shortTitle": "The Landscape of Research Data Repositories in 2015", "language": "en", "libraryCatalog": "CrossRef", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2017-10-05T08:48:31Z", "dateModified": "2017-10-05T08:48:31Z" } }, { "key": "IXDREQCZ", "version": 19, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/IXDREQCZ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/IXDREQCZ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Tenopir et al.", "parsedDate": "2017-02-14", "numChildren": 0 }, "data": { "key": "IXDREQCZ", "version": 19, "itemType": "journalArticle", "title": "Research Data Services in European Academic Research Libraries", "creators": [ { "creatorType": "author", "firstName": "Carol", "lastName": "Tenopir" }, { "creatorType": "author", "firstName": "Sanna", "lastName": "Talja" }, { "creatorType": "author", "firstName": "Wolfram", "lastName": "Horstmann" }, { "creatorType": "author", "firstName": "Elina", "lastName": "Late" }, { "creatorType": "author", "firstName": "Dane", "lastName": "Hughes" }, { "creatorType": "author", "firstName": "Danielle", "lastName": "Pollock" }, { "creatorType": "author", "firstName": "Birgit", "lastName": "Schmidt" }, { "creatorType": "author", "firstName": "Lynn", "lastName": "Baird" }, { "creatorType": "author", "firstName": "Robert", "lastName": "Sandusky" }, { "creatorType": "author", "firstName": "Suzie", "lastName": "Allard" } ], "abstractNote": "Article: Research Data Services in European Academic Research Libraries", "publicationTitle": "LIBER Quarterly", "publisher": "", "place": "", "date": "2017-02-14", "volume": "27", "issue": "1", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.18352/lq.10180", "citationKey": "", "url": "http://www.liberquarterly.eu/articles/10.18352/lq.10180/", "accessDate": "2017-10-05T08:32:54Z", "PMID": "", "PMCID": "", "ISSN": "2213-056X", "archive": "", "archiveLocation": "academic libraries", "shortTitle": "", "language": "en", "libraryCatalog": "www.liberquarterly.eu", "callNumber": "", "rights": "Authors who publish with this journal agree to the following terms: Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal. Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal. Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access ). All third-party images reproduced on this journal are shared under Educational Fair Use. For more information on Educational Fair Use , please see this useful checklist prepared by Columbia University Libraries . All copyright of third-party content posted here for research purposes belongs to its original owners. Unless otherwise stated all references to characters and comic art presented on this journal are ©, ® or ™ of their respective owners. No challenge to any owner’s rights is intended or should be inferred.", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2017-10-05T08:33:11Z", "dateModified": "2017-10-05T08:33:11Z" } }, { "key": "99XK7L8J", "version": 18, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/99XK7L8J", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/99XK7L8J", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Research Consulting and OpenAIRE", "parsedDate": "2017-02", "numChildren": 0 }, "data": { "key": "99XK7L8J", "version": 18, "itemType": "report", "title": "Towards a Competitive and Sustainable OA Market in Europe: a study of the Open Access Market and Policy Environment", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Research Consulting" }, { "creatorType": "author", "firstName": "", "lastName": "OpenAIRE" } ], "abstractNote": "A study prepared for the OpenAIRE 2020 project, on behalf of the European Commission", "reportNumber": "", "reportType": "", "institution": "", "place": "", "date": "February 2017", "seriesTitle": "", "seriesNumber": "", "pages": "77", "DOI": "", "ISBN": "", "citationKey": "", "url": "https://blogs.openaire.eu/wp-content/uploads/2017/03/OA-market-report-28Final-13-March-201729-1.pdf", "accessDate": "2017-07-01T17:59:05Z", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Report", "language": "", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [ { "tag": "acceso abierto" }, { "tag": "revistas científicas" }, { "tag": "scholarly communication" } ], "collections": [], "relations": {}, "dateAdded": "2017-10-03T08:06:44Z", "dateModified": "2017-10-03T08:06:44Z" } }, { "key": "9BP4QY8Q", "version": 18, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/9BP4QY8Q", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/9BP4QY8Q", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Sicilia et al.", "parsedDate": "2017", "numChildren": 0 }, "data": { "key": "9BP4QY8Q", "version": 18, "itemType": "journalArticle", "title": "Community Curation in Open Dataset Repositories: Insights from Zenodo", "creators": [ { "creatorType": "author", "firstName": "Miguel-Angel", "lastName": "Sicilia" }, { "creatorType": "author", "firstName": "Elena", "lastName": "García-Barriocanal" }, { "creatorType": "author", "firstName": "Salvador", "lastName": "Sánchez-Alonso" } ], "abstractNote": "", "publicationTitle": "Procedia Computer Science", "publisher": "", "place": "", "date": "2017", "volume": "106", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "54-60", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.1016/j.procs.2017.03.009", "citationKey": "", "url": "http://linkinghub.elsevier.com/retrieve/pii/S1877050917302776", "accessDate": "2017-07-02T09:37:15Z", "PMID": "", "PMCID": "", "ISSN": "18770509", "archive": "", "archiveLocation": "", "shortTitle": "Community Curation in Open Dataset Repositories", "language": "en", "libraryCatalog": "CrossRef", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2017-10-03T08:06:41Z", "dateModified": "2017-10-03T08:06:41Z" } }, { "key": "APECBMAN", "version": 17, "library": { "type": "group", "id": 411024, "name": "Curatore", "links": { "alternate": { "href": "https://www.zotero.org/groups/curatore", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/411024/items/APECBMAN", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/curatore/items/APECBMAN", "type": "text/html" } }, "meta": { "createdByUser": { "id": 178839, "username": "tonyatlantico", "name": "Tony", "links": { "alternate": { "href": "https://www.zotero.org/tonyatlantico", "type": "text/html" } } }, "creatorSummary": "Briney et al.", "parsedDate": "2015", "numChildren": 0 }, "data": { "key": "APECBMAN", "version": 17, "itemType": "journalArticle", "title": "Do You Have an Institutional Data Policy? A Review of the Current Landscape of Library Data Services and Institutional Data Policies", "creators": [ { "creatorType": "author", "firstName": "Kristin", "lastName": "Briney" }, { "creatorType": "author", "firstName": "Abigail", "lastName": "Goben" }, { "creatorType": "author", "firstName": "Lisa", "lastName": "Zilinski" } ], "abstractNote": "", "publicationTitle": "Journal of Librarianship and Scholarly Communication", "publisher": "", "place": "", "date": "2015", "volume": "3", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.7710/2162-3309.1232", "citationKey": "", "url": "http://jlsc-pub.org/articles/10.7710/2162-3309.1232", "accessDate": "2015-10-16T08:34:20Z", "PMID": "", "PMCID": "", "ISSN": "21623309", "archive": "", "archiveLocation": "", "shortTitle": "Do You Have an Institutional Data Policy?", "language": "", "libraryCatalog": "CrossRef", "callNumber": 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