[ { "key": "CUGB8AE9", "version": 11, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/CUGB8AE9", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/CUGB8AE9", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/314586/items/K6JC2RVX", "type": "application/json" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } } }, "data": { "key": "CUGB8AE9", "version": 11, "parentItem": "K6JC2RVX", "itemType": "attachment", "linkMode": "linked_url", "title": "PubMed entry", "accessDate": "2015-03-11T19:31:19Z", "url": "http://www.ncbi.nlm.nih.gov/pubmed/24715267", "note": "", "contentType": "text/html", "charset": "", "tags": [], "relations": {}, "dateAdded": "2015-03-11T19:31:19Z", "dateModified": "2015-03-11T19:31:19Z" } }, { "key": "K6JC2RVX", "version": 11, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/K6JC2RVX", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/K6JC2RVX", "type": "text/html" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } }, "creatorSummary": "Simanovski et al.", "parsedDate": "2014-07", "numChildren": 1 }, "data": { "key": "K6JC2RVX", "version": 11, "itemType": "journalArticle", "title": "Using breakthrough series collaborative methodology to improve safe delivery of chemotherapy in Ontario", "creators": [ { "creatorType": "author", "firstName": "Vicky", "lastName": "Simanovski" }, { "creatorType": "author", "firstName": "Esther", "lastName": "Green" }, { "creatorType": "author", "firstName": "Elaine", "lastName": "Meertens" }, { "creatorType": "author", "firstName": "Leonard", "lastName": "Kaizer" }, { "creatorType": "author", "firstName": "Noor", "lastName": "Ahmad" }, { "creatorType": "author", "firstName": "Sherrie", "lastName": "Hertz" }, { "creatorType": "author", "firstName": "Roger", "lastName": "Cheng" }, { "creatorType": "author", "firstName": "Judy", "lastName": "Burns" }, { "creatorType": "author", "firstName": "Monika K.", "lastName": "Krzyzanowska" } ], "abstractNote": "PURPOSE: Chemotherapy delivery is complex, involving multiple providers across settings to deliver safe, effective care. Cancer Care Ontario initiated a provincial breakthrough series collaborative, based on methodology from the Institute for Healthcare Improvement (IHI), to improve the safe delivery of chemotherapy, from ordering through preparation and administration.\nMETHODS: Over the 1-year period of the collaborative, three in-person sessions educated participants on improvement methodology. Twenty teams tested and implemented elements of a predefined change package in their local systems. Monthly teleconferences supplemented the education while encouraging a culture of knowledge sharing. Teams completed monthly self-assessment surveys that evaluated their progress using a 6-point scale, where 1 indicated no evidence of improvement and 5 indicated achievement of all goals and improvement objectives.\nRESULTS: Monthly self-assessment surveys revealed that over time, scores improved from 1 to 4, indicating significant progress. Moreover, 100% of participants reported in an exit survey that the collaborative had improved the culture of safety in their organizations. The gains of the collaborative have been sustained through development of a practice community and provision of ongoing coaching through the IHI Open School.\nCONCLUSION: Participation in the collaborative enabled local interdisciplinary teams to develop processes and structures to support ongoing quality improvement, including formation of a sustainable structure for knowledge translation and exchange. However, lack of a shared provincial target limited overall evaluation. Other lessons learned included providing adequate time for planning and clearly defining roles and responsibilities of involved teams and project sponsors.", "publicationTitle": "Journal of Oncology Practice / American Society of Clinical Oncology", "publisher": "", "place": "", "date": "Jul 2014", "volume": "10", "issue": "4", "section": "", "partNumber": "", "partTitle": "", "pages": "e240-246", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "J Oncol Pract", "DOI": "10.1200/JOP.2013.001254", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1935-469X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "NCBI PubMed", "callNumber": "", "rights": "", "extra": "PMID: 24715267", "tags": [], "collections": [], "relations": {}, "dateAdded": "2015-03-11T19:31:19Z", "dateModified": "2015-03-11T19:31:19Z" } }, { "key": "DC8UNPUQ", "version": 5, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/DC8UNPUQ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/DC8UNPUQ", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/314586/items/RHM4QXVH", "type": "application/json" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. 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Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } } }, "data": { "key": "HZ9PUZTV", "version": 5, "parentItem": "VARBZTVJ", "itemType": "attachment", "linkMode": "linked_url", "title": "PubMed entry", "accessDate": "2014-12-16T14:39:54Z", "url": "http://www.ncbi.nlm.nih.gov/pubmed/20685164", "note": "", "contentType": "text/html", "charset": "", "tags": [], "relations": {}, "dateAdded": "2014-12-16T14:39:54Z", "dateModified": "2014-12-16T14:39:54Z" } }, { "key": "VARBZTVJ", "version": 5, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/VARBZTVJ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/VARBZTVJ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } }, "creatorSummary": "Coolbrandt et al.", "parsedDate": "2011-04", "numChildren": 1 }, "data": { "key": "VARBZTVJ", "version": 5, "itemType": "journalArticle", "title": "Immediate versus delayed self-reporting of symptoms and side effects during chemotherapy: does timing matter?", "creators": [ { "creatorType": "author", "firstName": "Annemarie", "lastName": "Coolbrandt" }, { "creatorType": "author", "firstName": "Koen", "lastName": "Van den Heede" }, { "creatorType": "author", "firstName": "Ellen", "lastName": "Vanhove" }, { "creatorType": "author", "firstName": "Ann", "lastName": "De Bom" }, { "creatorType": "author", "firstName": "Koen", "lastName": "Milisen" }, { "creatorType": "author", "firstName": "Hans", "lastName": "Wildiers" } ], "abstractNote": "PURPOSE: The aim of this study was to examine how patients recall symptoms at a delayed self-report. Accurate insight into toxicity symptoms during chemotherapy is essential so that nurses and doctors can assess therapeutic tolerance and adjust supportive care accordingly.\nMETHOD: A non-experimental, longitudinal design was employed. Using the Therapy-Related Symptoms Checklist (TRSC), respondents (n = 142) reported their initial symptoms during the first 7 days of the chemotherapy cycle at two different times: (1) each day of the first seven days after the chemotherapy administration (immediate self-report), and (2) at their next hospital visit for chemotherapy (delayed self-report). We compared the number and severity of symptoms and side effects reported in the immediate and delayed self-reports.\nRESULTS: Respondents reported significantly fewer symptoms and fewer severe symptoms in the delayed self-report. For 22 out of 25 symptoms the delayed-reported grade was significantly lower than the immediate-reported maximum grade. Compared to the immediate-reported median grade, significant differences occurred in only 10 out of the 25 symptoms. In all cases, except fatigue, the delayed-reported grade was significantly higher than the immediate-reported median grade.\nCONCLUSIONS: This study indicates that delayed self-report of chemotherapy side effects is not an appropriate measure of actual symptoms and side effects experienced by patients. Delayed self-report gives a weaker insight into actual symptom burden. Fatigue is at particular risk to be minimized at the delayed self-report. Therefore it is recommended to assess chemotherapy-related symptoms and side effects by means of immediate self-report.", "publicationTitle": "European Journal of Oncology Nursing: The Official Journal of European Oncology Nursing Society", "publisher": "", "place": "", "date": "Apr 2011", "volume": "15", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "130-136", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Eur J Oncol Nurs", "DOI": "10.1016/j.ejon.2010.06.010", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1532-2122", "archive": "", "archiveLocation": "", "shortTitle": "Immediate versus delayed self-reporting of symptoms and side effects during chemotherapy", "language": "eng", "libraryCatalog": "NCBI PubMed", "callNumber": "", "rights": "", "extra": "PMID: 20685164", "tags": [ { "tag": "Adult", "type": 1 }, { "tag": "Age Distribution", "type": 1 }, { "tag": "Aged", "type": 1 }, { "tag": "Aged, 80 and over", "type": 1 }, { "tag": "Antineoplastic Combined Chemotherapy Protocols", "type": 1 }, { "tag": "Dose-Response Relationship, Drug", "type": 1 }, { "tag": "Drug Administration Schedule", "type": 1 }, { "tag": "Drug-Related Side Effects and Adverse Reactions", "type": 1 }, { "tag": "Female", "type": 1 }, { "tag": "Hospitals, University", "type": 1 }, { "tag": "Humans", "type": 1 }, { "tag": "Incidence", "type": 1 }, { "tag": "Longitudinal Studies", "type": 1 }, { "tag": "Male", "type": 1 }, { "tag": "Middle Aged", "type": 1 }, { "tag": "Neoplasms", "type": 1 }, { "tag": "Risk Assessment", "type": 1 }, { "tag": "Self-Assessment", "type": 1 }, { "tag": "Sensitivity and Specificity", "type": 1 }, { "tag": "Severity of Illness Index", "type": 1 }, { "tag": "Sex Distribution", "type": 1 }, { "tag": "Time Factors", "type": 1 }, { "tag": "Young Adult", "type": 1 } ], "collections": [ "V7AJNZPX" ], "relations": {}, "dateAdded": "2014-12-16T14:39:54Z", "dateModified": "2014-12-16T14:39:54Z" } }, { "key": "EAEFD52D", "version": 4, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/EAEFD52D", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/EAEFD52D", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/314586/items/8CDMCDIU", "type": "application/json" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } } }, "data": { "key": "EAEFD52D", "version": 4, "parentItem": "8CDMCDIU", "itemType": "attachment", "linkMode": "linked_url", "title": "PubMed entry", "accessDate": "2014-12-16T14:37:55Z", "url": "http://www.ncbi.nlm.nih.gov/pubmed/22744208", "note": "", "contentType": "text/html", "charset": "", "tags": [], "relations": {}, "dateAdded": "2014-12-16T14:37:55Z", "dateModified": "2014-12-16T14:37:55Z" } }, { "key": "ITG4KHWU", "version": 3, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/ITG4KHWU", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/ITG4KHWU", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/314586/items/8F8DKVFK", "type": "application/json" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } } }, "data": { "key": "ITG4KHWU", "version": 3, "parentItem": "8F8DKVFK", "itemType": "attachment", "linkMode": "linked_url", "title": "PubMed entry", "accessDate": "2014-12-16T14:26:42Z", "url": "http://www.ncbi.nlm.nih.gov/pubmed/22744208", "note": "", "contentType": "text/html", "charset": "", "tags": [], "relations": {}, "dateAdded": "2014-12-16T14:26:42Z", "dateModified": "2014-12-16T14:26:42Z" } }, { "key": "8F8DKVFK", "version": 3, "library": { "type": "group", "id": 314586, "name": "Patient Engagement and Patient Centeredness", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/314586/items/8F8DKVFK", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_engagement_and_patient_centeredness/items/8F8DKVFK", "type": "text/html" } }, "meta": { "createdByUser": { "id": 780746, "username": "Susan S. Thomason", "name": "Susan S. Thomason", "links": { "alternate": { "href": "https://www.zotero.org/susan_s._thomason", "type": "text/html" } } }, "creatorSummary": "Williams et al.", "parsedDate": "2013-06", "numChildren": 1 }, "data": { "key": "8F8DKVFK", "version": 3, "itemType": "journalArticle", "title": "Therapy-related symptom checklist use during treatments at a cancer center", "creators": [ { "creatorType": "author", "firstName": "Phoebe D.", "lastName": "Williams" }, { "creatorType": "author", "firstName": "Kathleen M.", "lastName": "Graham" }, { "creatorType": "author", "firstName": "Deborah L.", "lastName": "Storlie" }, { "creatorType": "author", "firstName": "Therese M.", "lastName": "Pedace" }, { "creatorType": "author", "firstName": "Kurt V.", "lastName": "Haeflinger" }, { "creatorType": "author", "firstName": "David D.", "lastName": "Williams" }, { "creatorType": "author", "firstName": "Diane", "lastName": "Otte" }, { "creatorType": "author", "firstName": "Jeff A.", "lastName": "Sloan" }, { "creatorType": "author", "firstName": "Arthur R.", "lastName": "Williams" } ], "abstractNote": "BACKGROUND: Cancer treatment efficacy has improved with therapies at high or sustained dosages. However, there is increasing concern about symptom management and patients' quality of life.\nOBJECTIVE: The objective of this study was to assess whether use of a Therapy-Related Symptom Checklist (TRSC) with oncology outpatients increases the number of symptoms documented and managed and whether this improves patients' health-related quality of life (HRQOL).\nMETHODS: This was a sequential cohort trial. Fifty-five oncology outpatients in treatment received standard of care (group 1, G1). Afterward, another 58 patients (group 2, G2) received standard of care at the same clinic; however, these patients additionally answered the TRSC immediately prior to each consultation. The TRSC results were then shared with clinicians. Repeated measures (2-11 visits) were obtained of the number of patient treatment symptoms documented (medical records G1 and TRSC G2), HRQOL, and Karnofsky scores, n = 696 observations (328 G1 and 368 G2). The number of symptoms reported and HRQOL were covariate adjusted using population averaged generalized estimating equations.\nRESULTS: G2 patients had a 7.2% higher population averaged covariate-adjusted HRQOL than G1 patients (3.3 more points on HRQOL, P = .012). One hundred sixteen percent more covariate- and non-covariate-adjusted symptoms were documented/managed in G2 than G1 (6.14 symptoms vs 2.84, P < .0001). The HRQOL, TRSC, and Karnofsky scores correlated r > 0.40.\nCONCLUSION: Use of patient-reported TRSC improves symptom documentation/management and patient HRQOL.\nIMPLICATIONS FOR PRACTICE: Study findings were consistent with recent research that has shown that use of checklists can have powerful influences on both quality and safety of healthcare services and patient outcomes.", "publicationTitle": "Cancer Nursing", "publisher": "", "place": "", "date": "2013 May-Jun", "volume": "36", "issue": "3", "section": "", "partNumber": "", "partTitle": "", "pages": "245-254", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Cancer Nurs", "DOI": "10.1097/NCC.0b013e3182595406", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1538-9804", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "eng", "libraryCatalog": "NCBI PubMed", "callNumber": "", "rights": "", "extra": "PMID: 22744208", "tags": [ { "tag": "Checklist", "type": 1 }, { "tag": "Cohort Studies", "type": 1 }, { "tag": "Fatigue", "type": 1 }, { "tag": "Female", "type": 1 }, { "tag": "Follow-Up Studies", "type": 1 }, { "tag": "Hospitals, University", "type": 1 }, { "tag": "Humans", "type": 1 }, { "tag": "Male", "type": 1 }, { "tag": "Middle Aged", "type": 1 }, { "tag": "Nausea", "type": 1 }, { "tag": "Neoplasms", "type": 1 }, { "tag": "Oncology Service, Hospital", "type": 1 }, { "tag": "Quality of Life", "type": 1 }, { "tag": "Self Report", "type": 1 }, { "tag": "Standard of Care", "type": 1 }, { "tag": "Vomiting", "type": 1 } ], "collections": [ "V7AJNZPX" ], "relations": {}, "dateAdded": "2014-12-16T14:26:42Z", "dateModified": "2014-12-16T14:26:42Z" } } ]