A combination of disability history and social/political activism.
\nEmerged in the 1980s as academic counterpart to disability rights advocacy.
\nTo do work of research and critical analysis needed for effort of social reconstruction.
\nAnalyzes the ideas about disability that have shaped society from public policy and social organization to cultural values and interpersonal interactions, to architectural design, professional training, and the delivery of services.
\nExplores experiences of disability, identities, communities, and cultures from the perspective of people with disability themselves -- it respects the knowledge and experience of people with disabilities and takes their stories, perspectives, and knowledge seriously. <-- Self-determination.
\nRaises questions about basic values and arrangements throughout society.
\nDisability has been a common topic of study, so the problem isn't a dearth of attention, but rather how the subject is addressed. \"The danger is not that we will ignore disability, but that we will reach intellectual, socio-cultural, ethical, political, and policy conclusions about disabled people without examining the ignorance, fear, and prejudice that deeply influence our thinking.\" (Longmore 3)
\nThis problem stems from the fact that the medical model, which suggests that social challenges inhere in the physiological condition itself and not in society (and that the condition requires treatment), prevails in medical, social scientific, humanistic, and applied fields.
\nThis model not only medicalizes, but also \"individualizes and privatizes what is in fundamental ways a social and political problem.\" (Longmore 4)
\nWhether disability studies is \"balkanizing\" and unnecessarily narrow.
\nResponse is that this charge that disability studies isn't \"broad based\" misses the fact that disability studies has implications for all areas of study and practice and all parts of society.
\nThat it indoctrinates policy rather than analyzes issues.
\nNaive in the sense that all analyses and arguments are informed by assumptions, moral values, sociocultural norms, and philosophical presuppositions -- Some forms of knowledge are privileged just as are some standpoints over others. Public discourse and analysis are only enriched by challenges to existing suppositions and especially from the \"margins of society.\" (Longmore 7)
", "tags": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "8A5IA6MS", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/8A5IA6MS", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/8A5IA6MS", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/233476/items/JUA237VX", "type": "application/json" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "8A5IA6MS", "version": 2, "parentItem": "JUA237VX", "itemType": "note", "note": "Longmore defines efforts to find a \"usable past\" as efforts to create interpretations of history that \"can aid us in understanding our own present so that we can build a future that will be difference, which is to say more just that it would otherwise probably become.\" (Longmore 9)
\nThis is similar to what I would describe as history's ability to \"denaturalize\" problematic notions in the present using the past.
", "tags": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "42AXHJSM", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/42AXHJSM", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/42AXHJSM", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/233476/items/JUA237VX", "type": "application/json" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "42AXHJSM", "version": 2, "parentItem": "JUA237VX", "itemType": "note", "note": "Gives especial attention to voices and authority.
\nGets at the issue of the fact that people with and people without disabilities often perceive \"disability\" in different ways, such that their assumptions and perceptions can \"radically conflict.\" (Longmore 7)
\nMultiple audiences -- each essay directed at one or more audiences including scholars, historians, general public, etc.
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Norton & Co", "place": "New York", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "223", "ISBN": "1565840259", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "\"What happened to you?", "language": "", "libraryCatalog": "janus.uoregon.edu Library Catalog", "callNumber": "PS508.P56 W43 1996", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "TIQF93P2", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/TIQF93P2", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/TIQF93P2", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Mairs", "parsedDate": "1996", "numChildren": 0 }, "data": { "key": "TIQF93P2", "version": 2, "itemType": "book", "title": "Waist-High in the World: A Life Among the Nondisabled", "creators": [ { "creatorType": "author", "firstName": "Nancy", "lastName": "Mairs" } ], "abstractNote": "'The essayist Nancy Mairs, who has used a wheelchair since 1992 because of progressive multiple sclerosis, realistically explores the problems and rewards of living with a disability in the 10 essays collected in ''Waist-High in the World.'' She discusses sex, infidelity and being looked after, and talks about her thoughts on suicide, her depression and her fears for the future. Her essay on ''The Wider World'' covers subjects as mundane as the size of doorways (will the wheelchair fit into the\nbathroom?) as well as complex topics like how the disabled are perceived, abortion and the ''right to die''; she also includes thoughts from other women with disabilities. Ms. Mairs shows the hope with which these women try ''to live productively and passionately.'''", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "1996", "publisher": "Beacon Press", "place": "Boston, MA", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "212", "ISBN": "0807070866", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Waist-High in the World", "language": "", "libraryCatalog": "janus.uoregon.edu Library Catalog", "callNumber": "RC377 .M25 1996", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "W8SPEH2G", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/W8SPEH2G", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/W8SPEH2G", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Panzarino", "parsedDate": "1994", "numChildren": 0 }, "data": { "key": "W8SPEH2G", "version": 2, "itemType": "book", "title": "The Me in the Mirror", "creators": [ { "creatorType": "author", "firstName": "Connie", "lastName": "Panzarino" } ], "abstractNote": "", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "1994", "publisher": "Seal Press", "place": "Seattle, WA", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "260", "ISBN": "1878067451", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "janus.uoregon.edu Library Catalog", "callNumber": "RC935.M95 P36 1994", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "FEF2B5MG", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/FEF2B5MG", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/FEF2B5MG", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Buck", "parsedDate": "1992", "numChildren": 0 }, "data": { "key": "FEF2B5MG", "version": 2, "itemType": "book", "title": "The Child Who Never Grew", "creators": [ { "creatorType": "author", "firstName": "Pearl S", "lastName": "Buck" } ], "abstractNote": "\"An account of the sorrow and the spiritual rewards the author experienced as the mother of a retarded child.\" -- WorldCat Summary", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "1992", "publisher": "Woodbine House", "place": "Rockville, MD", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "0933149492 9780933149496", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", 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"creators": [ { "creatorType": "author", "firstName": "Mary Herring", "lastName": "Wright" } ], "abstractNote": "\"Mary Herring Wright's book adds an important dimension to current literature in that it is a story about an African American deaf child. Her account is historically significant because it provides valuable descriptive information about the faculty and staff of the residential school for Black deaf and blind students she attended. She writes from a unique perspective because she was both a student and a student teacher. This engrossing narrative details the schools's curriculum, which included a week-long Black History celebration where students learned about important Black figures such as Madame Walker, Paul Laurence Dunbar, and George Washington Carver. It also describes the physical facilities as well as changes in those facilities over the years. Also, the story occurs during two major events in American history, the Depression and World War II.\" \"Wright's account is one of enduring faith, perseverance, and optimism. Her keen observations will serve as a source of inspiration for others who are challenged in their own ways by life's obstacles.\"--BOOK JACKET.", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "1999", "publisher": "Gallaudet University Press", "place": "Washington, D.C.", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "1563680807 9781563680809", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Sounds like home", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "VHVFMNIT", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/VHVFMNIT", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/VHVFMNIT", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Rapp", "parsedDate": "2007", "numChildren": 0 }, "data": { "key": "VHVFMNIT", "version": 2, "itemType": "book", "title": "Poster Child: A Memoir", "creators": [ { "creatorType": "author", "firstName": "Emily", "lastName": "Rapp" } ], "abstractNote": "\"Emily Rapp was born with a birth defect that required, at the age of four, that her left foot be amputated. By the time she was eight she'd had dozens of operations and had lost her entire leg from just above the knee. She had also become the smiling, always perky, indefatigable poster child for the March of Dimes, and spent much of her childhood traveling around Wyoming making appearances and giving pep talks. All the while she was learning to live with what she later called \"my grievous, irrevocable flaw.\" This is Rapp's brutally honest and often darkly humorous account of wrestling with the tyranny of self-image as a teenager and then ultimately coming to terms with her own body as a young woman. It's about what it's like to live inside a broken body in a society that values beauty above almost everything else.\" -- From publisher description", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2007", "publisher": "Bloomsbury", "place": "New York", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "1596912561 9781596912564", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Poster Child", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "W6MQ8KRU", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/W6MQ8KRU", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/W6MQ8KRU", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Dully and Fleming", "parsedDate": "2007", "numChildren": 0 }, "data": { "key": "W6MQ8KRU", "version": 2, "itemType": "book", "title": "My Lobotomy: A Memoir", "creators": [ { "creatorType": "author", "firstName": "Howard", "lastName": "Dully" }, { "creatorType": "author", "firstName": "Charles", "lastName": "Fleming" } ], "abstractNote": "== Teaching disability history with memoirs & novels (H-Dis Discussion) ==\n\n\"I use this memoir in my Med Anth course and students have been very moved by it - several reading it in one sitting. As a memoir it provides a good basis for discussing the power (and abuses) of the medical system and the consequences of \"labeling\" - how internalized ideas about oneself can have\ndeterministic lifelong consequences.\"\n\nDr. Shawn M. Phillips\nAssociate Professor of Anthropology\nHuman Osteology Laboratory, Science 147\nDepartment of Earth & Environmental Systems\nIndiana State University\n\n===========\n\nAt twelve, Howard Dully was guilty of the same crimes as other boys his\nage: he was moody and messy, rambunctious with his brothers, contrary just to prove a point, and perpetually at odds with his parents. Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital -- or ice pick -- lobotomy.\n\nAbandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?\"", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2007", "publisher": "Crown Publishers", "place": "New York", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "9780307381262 0307381269", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "My Lobotomy", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "http://www.npr.org/2005/11/16/5014080/my-lobotomy-howard-dullys-journey\n\nhttp://www.nytimes.com/2007/09/14/books/14book.html?_r=0", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "A7NHF6XC", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/A7NHF6XC", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/A7NHF6XC", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Chouinard", "parsedDate": "2010", "numChildren": 0 }, "data": { "key": "A7NHF6XC", "version": 2, "itemType": "journalArticle", "title": "\"Like Alice through the Looking Glass\" II: The Struggle for Accommodation Continues", "creators": [ { "creatorType": "author", "firstName": "Vera", "lastName": "Chouinard" } ], "abstractNote": "", "publicationTitle": "Resources for Feminist Research", "publisher": "", "place": "", "date": "2010", "volume": "33", "issue": "3/4", "section": "", "partNumber": "", "partTitle": "", "pages": "161-178", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0707-8412", "archive": "", "archiveLocation": "", "shortTitle": "\"Like Alice through the Looking Glass'' II", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "6BA7KEJT", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/6BA7KEJT", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/6BA7KEJT", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Smith and Wehmeyer", "parsedDate": "2012", "numChildren": 0 }, "data": { "key": "6BA7KEJT", "version": 2, "itemType": "book", "title": "Good Blood, Bad Blood: Science, Nature, and the Myth of the Kallikaks", "creators": [ { "creatorType": "author", "firstName": "J. David", "lastName": "Smith" }, { "creatorType": "author", "firstName": "Michael L", "lastName": "Wehmeyer" } ], "abstractNote": "", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2012", "publisher": "American Association on Intellectual and Developmental Disabilities", "place": "Washington, DC", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "9781937604035 1937604039", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Good blood, bad blood", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "A87NX4VB", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/A87NX4VB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/A87NX4VB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Clare", "parsedDate": "1999", "numChildren": 0 }, "data": { "key": "A87NX4VB", "version": 2, "itemType": "book", "title": "Exile and Pride: Disability, Queerness, and Liberation", "creators": [ { "creatorType": "author", "firstName": "Eli", "lastName": "Clare" } ], "abstractNote": "", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "1999", "publisher": "SouthEnd Press", "place": "Cambridge, MA", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "147", "ISBN": "0896086062", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Exile and Pride", "language": "", "libraryCatalog": "janus.uoregon.edu Library Catalog", "callNumber": "HQ1426 .C56 1999", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "INUJCRH3", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/INUJCRH3", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/INUJCRH3", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Rousso", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "INUJCRH3", "version": 2, "itemType": "book", "title": "Don't Call Me Inspirational: A Disabled Feminist Talks Back", "creators": [ { "creatorType": "author", "firstName": "Harilyn", "lastName": "Rousso" } ], "abstractNote": "\"Harilyn Rousso (born 1946) is an American disabled rights activist,\npsychotherapist, artist and feminist, often dubbed the “founding Mother” of disabled women’s activism.\n\nFor psychotherapist, painter, feminist, filmmaker, writer, and disability activist Harilyn Rousso, hearing well-intentioned people tell her, \"You're so inspirational!\" is patronizing, not complimentary.\n\nIn her empowering and at times confrontational memoir, Don't Call Me\nInspirational, Rousso, who has cerebral palsy, describes overcoming the prejudice against disability -- not overcoming disability. She addresses the\noften absurd and ignorant attitudes of strangers, friends, and family.\n\nRousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals\nherself with honesty and humor and measures her personal growth as she goes\nfrom \"passing\" to embracing and claiming her disability as a source of pride, positive identity, and rebellion.\n\nA collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.\n\nhttp://www.huffingtonpost.com/angela-bonavoglia/dont-call-me-inspirationa_b_2778003.html\"", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2013", "publisher": "Temple University Press", "place": "Philadelphia, PA", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "9781439909362 1439909369 9781439909379 1439909377 9781439909386 1439909385", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Don't Call Me Inspirational", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "98Z25V5T", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/98Z25V5T", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/98Z25V5T", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Itani", "parsedDate": "2003", "numChildren": 0 }, "data": { "key": "98Z25V5T", "version": 2, "itemType": "book", "title": "Deafening", "creators": [ { "creatorType": "author", "firstName": "Frances", "lastName": "Itani" } ], "abstractNote": "\"Elegantly written and profoundly moving, Frances Itani's debut novel, Deafening, is a tale of virtuosity and power, set on the eve of the Great War and spanning two continents and the life of a young deaf woman in Canada named Grania O'Neill.\" -- WorldCat Summary", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2003", "publisher": "Atlantic Monthly Press", "place": "New York", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "0871139022 9780871139023", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "8NAUNEK9", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/8NAUNEK9", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/8NAUNEK9", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Luxenberg", "parsedDate": "2009", "numChildren": 0 }, "data": { "key": "8NAUNEK9", "version": 2, "itemType": "book", "title": "Annie's Ghosts: A Journey into a Family Secret", "creators": [ { "creatorType": "author", "firstName": "Steve", "lastName": "Luxenberg" } ], "abstractNote": "\"Traces the author's surprise discovery that his late mother had had a sister who was sent away under mysterious circumstances and never mentioned by the family again, his efforts to research his long-lost aunt's story and whereabouts, and his struggles to understand the secrecy of her existence.\"", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2009", "publisher": "Hyperion", "place": "New York", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "9781401322472 1401322476", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Annie's ghosts", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "UW3UR83P", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/UW3UR83P", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/UW3UR83P", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/233476/items/JUA237VX", "type": "application/json" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "UW3UR83P", "version": 2, "parentItem": "JUA237VX", "itemType": "note", "note": "\"[S]eek to demonstrate the importance of disability issues in virtually every sphere of society and the consequent necessity of serious scholarly inquiry into them.\" (Longmore 6)
\nAn \"attempt to explain contemporary advocacy and current academic studies as responses to a historical pattern of systemic prejudice and institutionalized discrimination against people with disabilities.\" (Longmore 1)
\nSeries of articles and essays produced over the course of 20 years that both reflect on and are a part of the \"disability rights revolution\" of that time period.
\nSee also, goal of disability studies articulated in {{Note: Longmore's brief history...}}.
\nIncludes \"a basic reconceptualization of 'disability'\" that disputes the medical model. (Longmore 1)
\nMedical Model: The dominant paradigm for understanding disability that has especially shaped the social sciences. Pathologizes physiological conditions and identifies them as the primary obstacles to disabled people's \"social integration.\" \"Defining disability as limitations in social and vocational functioning, it makes disability the exclusive and inevitable consequence of physiological impairments.\" (Longmore 1) This model situates the root of disability within the bodies of individuals through their physiological impairments, rather than originating in an inflexible society.
\nMinority Model (US) or Social Model (UK) - the Disability Rights model: A new conceptualization of disability coming out of the disability rights movement that suggests \"that for most people with most kinds of disabilities most of the time the greatest limitations are not somatic but social: prejudice and discrimination, inaccessibility and lack of accommodations.\" (Longmore 2) They stipulate the challenges in social and vocational functioning (and quality of life) for people with disabilities does not spring inevitably from their physiology, but are instead \"products of the interaction between the social and built environment as presently arranged and individuals who look or function in nonstandard ways.\" (Longmore 2) The minority model in the US grows out of the notions of identity and shared experience as foundations for organized political action.
\nGives especial attention to voices and authority.
\nLongmore makes clear that he combines, and moves back and forth between, analysis and activism, historian and advocate: \"I make no pretense of a spurious objectivity, no false pose of a stance outside and therefore independent of the welter of human concerns and contentions.\" (Longmore 8)
\nToo much work on disability (a) is unable to get past the medical model that naturalizes what are, for the most part, social constructions; and (b) depicts the history of people with disabilities from any perspective except their own, such that disabled people are clients or patients or recipients or victims, but rarely active participants.
", "tags": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "FTQDIJBB", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/FTQDIJBB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/FTQDIJBB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Frank", "parsedDate": "2000", "numChildren": 0 }, "data": { "key": "FTQDIJBB", "version": 2, "itemType": "book", "title": "Venus on Wheels: Two Decades of Dialogue on Disability, Biography, and Being Female in America", "creators": [ { "creatorType": "author", "firstName": "Gelya", "lastName": "Frank" } ], "abstractNote": "", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2000", "publisher": "University of California Press", "place": "Berkeley, Calif", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "284", "ISBN": "0520217152", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Venus on wheels", "language": "", "libraryCatalog": "janus.uoregon.edu Library Catalog", "callNumber": "HV3021.W66 F73 2000", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "MA9WXIX6", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/MA9WXIX6", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/MA9WXIX6", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Grinker", "parsedDate": "2007", "numChildren": 0 }, "data": { "key": "MA9WXIX6", "version": 2, "itemType": "book", "title": "Unstrange Minds: Remapping the World of Autism", "creators": [ { "creatorType": "author", "firstName": "Roy Richard", "lastName": "Grinker" } ], "abstractNote": "== Teaching disability history with memoirs & novels (H-Dis Discussion) ==\n\n\"_Unstrange Minds_ by Roy Grinker. It's part memoir (about raising a\ndaughter with autism) and part analytical study. In addition to providing a straight-forward history, Grinker offers an excellent analysis of the current \"epidemic.\"\n\nFran\"\n\n\"A father's attempt to understand his daughter's autism leads him on a journey around the world to learn how societies view the widely diagnosed disorder.\"", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2007", "publisher": "Basic Books", "place": "New York", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "", "ISBN": "9780465027637 0465027636", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Unstrange Minds", "language": "English", "libraryCatalog": "Open WorldCat", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } }, { "key": "3JG8R8BP", "version": 2, "library": { "type": "group", "id": 233476, "name": "Disability, Novels and Memoir", "links": { "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/233476/items/3JG8R8BP", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/disability_novels_and_memoir/items/3JG8R8BP", "type": "text/html" } }, "meta": { "createdByUser": { "id": 18189, "username": "a.turner", "name": "Adam Turner", "links": { "alternate": { "href": "https://www.zotero.org/a.turner", "type": "text/html" } } }, "creatorSummary": "Mintz", "parsedDate": "2007", "numChildren": 0 }, "data": { "key": "3JG8R8BP", "version": 2, "itemType": "book", "title": "Unruly Bodies: Life Writing by Women with Disabilities", "creators": [ { "creatorType": "author", "firstName": "Susannah B.", "lastName": "Mintz" } ], "abstractNote": "", "series": "", "seriesNumber": "", "volume": "", "numberOfVolumes": "", "edition": "", "date": "2007", "publisher": "University of North Carolina Press", "place": "Chapel Hill", "originalDate": "", "originalPublisher": "", "originalPlace": "", "format": "", "numPages": "251", "ISBN": "9780807831335", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "Unruly bodies", "language": "", "libraryCatalog": "janus.uoregon.edu Library Catalog", "callNumber": "HV1569.3.W65 M56 2007", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-22T06:29:15Z", "dateModified": "2013-11-22T06:29:15Z" } } ]