[ { "key": "AXHX9GPJ", "version": 37, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/AXHX9GPJ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/AXHX9GPJ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "Shields et al.", "parsedDate": "2004-01-01", "numChildren": 0 }, "data": { "key": "AXHX9GPJ", "version": 37, "itemType": "journalArticle", "title": "Decision-Making Role Preferences of Patients Receiving Adjuvant Cancer Treatment: A University of Rochester Cancer Center Community Clinical Oncology Program", "creators": [ { "creatorType": "author", "firstName": "Cleveland G.", "lastName": "Shields" }, { "creatorType": "author", "firstName": "Gary R.", "lastName": "Morrow" }, { "creatorType": "author", "firstName": "Jennifer", "lastName": "Griggs" }, { "creatorType": "author", "firstName": "Julie", "lastName": "Mallinger" }, { "creatorType": "author", "firstName": "Joseph", "lastName": "Roscoe" }, { "creatorType": "author", "firstName": "James L.", "lastName": "Wade" }, { "creatorType": "author", "firstName": "Shaker R.", "lastName": "Dakhil" }, { "creatorType": "author", "firstName": "Tom R.", "lastName": "Fitch" } ], "abstractNote": "This study examined patients' preferences for involvement in treatment decision-making. This was a multisite survey study of 1014 patients diagnosed with a variety of cancers. Patients' treatment decisions, role preferences, and characteristics were assessed with a questionnaire administered at the time of their first visit with a medical or radiation oncologist. The data showed that 35.7% preferred passive roles, 43.7% preferred shared roles, and 20.3% preferred active roles in decision-making. Bivariate analyses indicated that patients with a college education or in professional or managerial occupations preferred more active roles in decisionmaking compared with other patients. Similarly, men with prostate cancer and women with breast cancer, compared with other patients, also preferred more involvement in decision-making. Age was not associated with decision-making role preferences. Avoidant and fatalistic coping were associated with a passive decision-making role. Multinomial logistic regression analysis found that patients in professional/managerial occupations preferred a shared role (odds ratio [OR], 1.6; CI, 1.2–2.4) or an active role (OR, 2.3; CI, 1.5–3.5) compared with patients in other occupations. Patients with prostate or breast cancer preferred shared (OR, 2.3; CI, 1.6–3.2) or active roles (OR, 1.8; CI, 1.2–2.8) compared with patients with other diagnoses. Patients who scored higher on the Mental Adjustment to Cancer fatalism scale were less likely to prefer shared (OR, 0.94; CI, 0.89–0.99) or active roles (OR, 0.90; CI, 0.84–0.96) compared with patients with a less fatalistic orientation. Decision-making role preferences were influenced by multiple factors. Most patients wanted a shared or active role in treatment decision-making. Our results suggest that some patients may require encouragement to take a shared or active role in decision-making.", "publicationTitle": "Supportive Cancer Therapy", "publisher": "", "place": "", "date": "January 1, 2004", "volume": "1", "issue": "2", "section": "", "partNumber": "", "partTitle": "", "pages": "119-126", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Supportive Cancer Therapy", "DOI": "10.3816/SCT.2004.n.005", "citationKey": "", "url": "http://www.sciencedirect.com/science/article/pii/S1543291213600880", "accessDate": "2018-07-02T12:58:30Z", "PMID": "", "PMCID": "", "ISSN": "1543-2912", "archive": "", "archiveLocation": "", "shortTitle": "Decision-Making Role Preferences of Patients Receiving Adjuvant Cancer Treatment", "language": "", "libraryCatalog": "ScienceDirect", "callNumber": "", "rights": "", "extra": "00000", "tags": [ { "tag": "Active role", "type": 1 }, { "tag": "Age", "type": 1 }, { "tag": "Breast cancer", "type": 1 }, { "tag": "Education", "type": 1 }, { "tag": "Passive role", "type": 1 }, { "tag": "Prostate cancer", "type": 1 }, { "tag": "Sharing role", "type": 1 } ], "collections": [], "relations": {}, "dateAdded": "2018-07-02T12:58:30Z", "dateModified": "2018-07-02T12:58:30Z" } }, { "key": "8CJB76C9", "version": 36, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/8CJB76C9", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/8CJB76C9", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "Mallinger et al.", "parsedDate": "2005-06", "numChildren": 2 }, "data": { "key": "8CJB76C9", "version": 36, "itemType": "journalArticle", "title": "Patient-centered care and breast cancer survivors’ satisfaction with information", "creators": [ { "creatorType": "author", "firstName": "Julie B.", "lastName": "Mallinger" }, { "creatorType": "author", "firstName": "Jennifer J.", "lastName": "Griggs" }, { "creatorType": "author", "firstName": "Cleveland G.", "lastName": "Shields" } ], "abstractNote": "Satisfaction with information is an important patient outcome and may be related to the physician's ability to elicit the patients’ concerns, to consider the patients’ psychosocial needs, and to involve patients in treatment decision making; these communication techniques have been described under the umbrella of “patient-centered.” The aim of this study was to examine the relationship between patient-centered care and satisfaction with information among women with a history of breast cancer. We administered a questionnaire to 182 women who had completed treatment for breast cancer. Our findings suggest that, while breast cancer survivors are highly satisfied with information related to treatment, they are less satisfied with information related to the long-term physical, psychological, and social sequelae of the disease and its treatments. In multivariate analysis, patients’ perception of patient-centered behaviors was strongly associated with patients’ satisfaction with information. These results provide support for the theory that patient satisfaction is improved when physicians incorporate patient-centered behaviors into their care.", "publicationTitle": "Patient Education and Counseling", "publisher": "", "place": "", "date": "June 2005", "volume": "57", "issue": "3", "section": "", "partNumber": "", "partTitle": "", "pages": "342-349", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Patient Education and Counseling", "DOI": "10.1016/j.pec.2004.09.009", "citationKey": "", "url": "http://www.sciencedirect.com/science/article/pii/S0738399104003131", "accessDate": "2014-03-10T13:09:35Z", "PMID": "", "PMCID": "", "ISSN": "0738-3991", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "ScienceDirect", "callNumber": "", "rights": "", "extra": "", "tags": [ { "tag": "Breast cancer", "type": 1 }, { "tag": "Doctor patient relations", "type": 1 }, { "tag": "Patient centered care", "type": 1 }, { "tag": "Patient satisfaction", "type": 1 } ], "collections": [], "relations": { "dc:replaces": "http://zotero.org/groups/226911/items/TUNVVA5R" }, "dateAdded": "2014-03-10T13:09:35Z", "dateModified": "2018-07-02T12:56:20Z" } }, { "key": "4MKTQWNQ", "version": 36, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/4MKTQWNQ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/4MKTQWNQ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "Mallinger et al.", "parsedDate": "2006", "numChildren": 2 }, "data": { "key": "4MKTQWNQ", "version": 36, "itemType": "journalArticle", "title": "Family communication and mental health after breast cancer", "creators": [ { "creatorType": "author", "firstName": "J.b.", "lastName": "Mallinger" }, { "creatorType": "author", "firstName": "J.j.", "lastName": "Griggs" }, { "creatorType": "author", "firstName": "C.g.", "lastName": "Shields" } ], "abstractNote": "In the context of a traumatic event, such as a breast cancer diagnosis, talking with others about the event can facilitate emotional adjustment and meaning-finding. Among women with a history of breast cancer, open communication is likely to be of particular importance in the family setting, as the family is frequently a primary source of support. The goal of this cross-sectional survey study was to determine the association between open family communication about cancer and breast cancer survivors’ mental health. Responses from 230 women at various stages post-treatment suggest that the majority of women are able to talk openly with their family about breast cancer. Multivariate regression analysis further indicates that open family communication is independently associated with better mental health outcomes. Given that many women live long after a breast cancer diagnosis, maintaining mental health functioning is an important long-term goal. Efforts to enhance productive communication between patients and their family members may help women cope with and overcome the challenges of breast cancer survivorship.", "publicationTitle": "European Journal of Cancer Care", "publisher": "", "place": "", "date": "2006", "volume": "15", "issue": "4", "section": "", "partNumber": "", "partTitle": "", "pages": "355–361", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.1111/j.1365-2354.2006.00666.x", "citationKey": "", "url": "http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2354.2006.00666.x/abstract", "accessDate": "2014-03-10T13:00:22Z", "PMID": "", "PMCID": "", "ISSN": "1365-2354", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "en", "libraryCatalog": "Wiley Online Library", "callNumber": "", "rights": "", "extra": "", "tags": [ { "tag": "breast neoplasms", "type": 1 }, { "tag": "family relations", "type": 1 }, { "tag": "mental health", "type": 1 } ], "collections": [], "relations": { "dc:replaces": [ "http://zotero.org/groups/226911/items/3HGIKE2X", "http://zotero.org/groups/226911/items/UEZVD8EX" ] }, "dateAdded": "2014-03-10T13:00:22Z", "dateModified": "2018-07-02T12:56:16Z" } }, { "key": "5X93JZVC", "version": 35, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/5X93JZVC", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/5X93JZVC", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "Shields et al.", "parsedDate": "2009-12-01", "numChildren": 0 }, "data": { "key": "5X93JZVC", "version": 35, "itemType": "journalArticle", "title": "Patient-centered communication and prognosis discussions with cancer patients", "creators": [ { "creatorType": "author", "firstName": "Cleveland G.", "lastName": "Shields" }, { "creatorType": "author", "firstName": "Casey J.", "lastName": "Coker" }, { "creatorType": "author", "firstName": "Shruti S.", "lastName": "Poulsen" }, { "creatorType": "author", "firstName": "Jennifer M.", "lastName": "Doyle" }, { "creatorType": "author", "firstName": "Kevin", "lastName": "Fiscella" }, { "creatorType": "author", "firstName": "Ronald M.", "lastName": "Epstein" }, { "creatorType": "author", "firstName": "Jennifer J.", "lastName": "Griggs" } ], "abstractNote": "Objective\nTo examine physician communication associated with prognosis discussion with cancer patients.\nMethods\nWe conducted a study of physician–patient communication using trained actors. Thirty-nine physicians, including 19 oncologists and 20 family physicians participated in the study. Actors carried two hidden digital recorders to unannounced visits. We coded recordings for eliciting and validating patient concerns, attentive voice tone, and prognosis talk.\nResults\nActor adherence to role averaged 92% and the suspected detection rate was 14%. In a multiple regression, eliciting and validating patient concerns (β=.40, C.I.=0.11–0.68) attentiveness (β=.32, C.I.=0.06–0.58) and being an oncologist vs. a family physician (β=.33, C.I.=0.33–1.36) accounted for 46% of the variance in prognosis communication.\nConclusion\nEliciting and validating patient concerns and attentiveness voice tone is associated with increased discussion of cancer patient prognosis as is physician specialty.\nPractice implications\nEliciting and validating patient concerns and attentive voice tone may be markers of physician willingness to discuss emotionally difficult topics. Educating physicians about mindful practice may increase their ability to collect important information and to attend to patient concerns.", "publicationTitle": "Patient Education and Counseling", "publisher": "", "place": "", "date": "December 1, 2009", "volume": "77", "issue": "3", "section": "", "partNumber": "", "partTitle": "", "pages": "437-442", "series": "Patient-Centered Cancer Communication Research", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Patient Education and Counseling", "DOI": "10.1016/j.pec.2009.09.006", "citationKey": "", "url": "http://www.sciencedirect.com/science/article/pii/S0738399109004224", "accessDate": "2018-07-02T12:50:44Z", "PMID": "", "PMCID": "", "ISSN": "0738-3991", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "ScienceDirect", "callNumber": "", "rights": "", "extra": "00000", "tags": [ { "tag": "Cancer", "type": 1 }, { "tag": "Patient-centered communication", "type": 1 }, { "tag": "Prognosis", "type": 1 }, { "tag": "Voice tone", "type": 1 } ], "collections": [], "relations": {}, "dateAdded": "2018-07-02T12:50:44Z", "dateModified": "2018-07-02T12:50:45Z" } }, { "key": "KTRUR672", "version": 34, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/KTRUR672", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/KTRUR672", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "Shields et al.", "parsedDate": "2013-10-01", "numChildren": 0 }, "data": { "key": "KTRUR672", "version": 34, "itemType": "journalArticle", "title": "Pain Assessment: The Roles of Physician Certainty and Curiosity", "creators": [ { "creatorType": "author", "firstName": "Cleveland G.", "lastName": "Shields" }, { "creatorType": "author", "firstName": "Michelle A.", "lastName": "Finley" }, { "creatorType": "author", "firstName": "Cezanne M.", "lastName": "Elias" }, { "creatorType": "author", "firstName": "Casey J.", "lastName": "Coker" }, { "creatorType": "author", "firstName": "Jennifer J.", "lastName": "Griggs" }, { "creatorType": "author", "firstName": "Kevin", "lastName": "Fiscella" }, { "creatorType": "author", "firstName": "Ronald M.", "lastName": "Epstein" } ], "abstractNote": "Undertreatment of pain is common even when caused by serious illness. We examined whether physician–patient communication (particularly language indicating physician certainty) was associated with incomplete (i.e., premature closure) of pain assessment among patients with serious illness. Standardized patients (SPs) trained to portray patients with serious illness conducted unannounced, covertly audio-recorded visits to 20 consenting family physicians and 20 medical specialists. We coded extent of pain assessment, physician voice tone, and a measure of the degree to which physicians explored and validated patient concerns. To assess physician certainty, we searched transcripts for use of words that conveyed certainty using the Linguistic Inquiry and Word Count program. SP role fidelity was 94%, and few physicians were suspicious that they had seen an SP (14% of visits). Regression analyses showed that physicians who used more certainty language engaged in less thorough assessment of pain (β = –0.48, p < .05). Conversely, physicians who engaged in more exploring and validating of patient concerns (β = 0.27, p < .05) had higher ratings on anxiety/concerned voice tone (β = 0.25, p <.01) and engaged in more thorough assessment of pain. Together, these three factors accounted for 38% of the variance in pain assessment. Physicians who convey certainty in discussions with patients suffering from pain may be more likely to close prematurely their assessment of pain. We found that expressions of physician concern and responsiveness (curiosity) were associated with superior pain assessment. Further study is needed to determine whether these associations are causal and mutable.", "publicationTitle": "Health Communication", "publisher": "", "place": "", "date": "October 1, 2013", "volume": "28", "issue": "7", "section": "", "partNumber": "", "partTitle": "", "pages": "740-746", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.1080/10410236.2012.715380", "citationKey": "", "url": "https://doi.org/10.1080/10410236.2012.715380", "accessDate": "2018-07-02T12:49:48Z", "PMID": "", "PMCID": "", "ISSN": "1041-0236", "archive": "", "archiveLocation": "", "shortTitle": "Pain Assessment", "language": "", "libraryCatalog": "Taylor and Francis+NEJM", "callNumber": "", "rights": "", "extra": "00000 \nPMID: 23356451", "tags": [], "collections": [], "relations": {}, "dateAdded": "2018-07-02T12:49:48Z", "dateModified": "2018-07-02T12:49:49Z" } }, { "key": "ATAQAA63", "version": 33, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/ATAQAA63", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/ATAQAA63", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "Loader et al.", "parsedDate": "2002-12-01", "numChildren": 0 }, "data": { "key": "ATAQAA63", "version": 33, "itemType": "journalArticle", "title": "Patient vs. Physician as the Target of Educational Outreach about Screening for an Inherited Susceptibility to Colorectal Cancer", "creators": [ { "creatorType": "author", "firstName": "Starlene", "lastName": "Loader" }, { "creatorType": "author", "firstName": "Cleveland", "lastName": "Shields" }, { "creatorType": "author", "firstName": "Jeffrey C.", "lastName": "Levenkron" }, { "creatorType": "author", "firstName": "Richard", "lastName": "Fishel" }, { "creatorType": "author", "firstName": "Peter T.", "lastName": "Rowley" } ], "abstractNote": "Are patients identified from a cancer registry better educated directly or via their physician about screening for an inherited susceptibility for colorectal cancer? Of 974 patients diagnosed with colorectal cancer at ≤60 years from 1987 to 1999 in a five-county area including Rochester, the physicians of 651 patients (67%) forwarded a cancer family history survey to their patient; 459 (71%) completed the survey. Of these 459, 167 (36%) reported having at least one first- or second-degree relative with colon cancer and were sent a set of questionnaires and a more detailed family cancer history form. Of the 167, a total of 101 (60%) continued to qualify by returning the questionnaires. These 101 qualifying patients were randomized to either the patient-education or physician-education group. Of the 101, a total of 47 (47%) came for a free genetic evaluation. Individuals were more likely to accept evaluation if they were parents (p = 0.001), had more cancers of all kinds in their families (p = 0.02), and had a larger social network (p = 0.04). Of the 47 counseled, 36 (77%) chose to have DNA testing at no cost. Of these 47, individuals were more likely to choose DNA testing if they had more cancers in the family (p = 0.04) and fewer symptoms of depression (p = 0.05). Of the 36 tested patients, 6 (20%) were found to have mutations. In summary, acceptance of genetic services was related to the magnitude of the threat (more cancers in the family), perceived ability to deal with the threat (perceived good health and a supportive network), and a desire to inform relatives (being a parent). The two approaches to educating patients, viz. direct patient education vs. education via their physician, did not significantly differ in terms of percentages of patients receiving counseling (42% vs. 51%, respectively) or the percentage choosing DNA testing (32% vs. 37%, respectively).", "publicationTitle": "Genetic Testing", "publisher": "", "place": "", "date": "December 1, 2002", "volume": "6", "issue": "4", "section": "", "partNumber": "", "partTitle": "", "pages": "281-290", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Genetic Testing", "DOI": "10.1089/10906570260471813", "citationKey": "", "url": "https://www.liebertpub.com/doi/abs/10.1089/10906570260471813", "accessDate": "2018-07-02T12:49:07Z", "PMID": "", "PMCID": "", "ISSN": "1090-6576", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "liebertpub.com (Atypon)", "callNumber": "", "rights": "", "extra": "00000", "tags": [], "collections": [], "relations": {}, "dateAdded": "2018-07-02T12:49:07Z", "dateModified": "2018-07-02T12:49:07Z" } }, { "key": "M8KYUZUP", "version": 32, "library": { "type": "group", "id": 226911, "name": "ClevePapers", "links": { "alternate": { "href": "https://www.zotero.org/groups/clevepapers", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/226911/items/M8KYUZUP", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/clevepapers/items/M8KYUZUP", "type": "text/html" } }, "meta": { "createdByUser": { "id": 128154, "username": "cgshields1953", "name": "Cleveland G Shields", "links": { "alternate": { "href": "https://www.zotero.org/cgshields1953", "type": "text/html" } } }, "creatorSummary": "PhD et al.", "parsedDate": "2010-11-02", "numChildren": 0 }, "data": { "key": "M8KYUZUP", "version": 32, "itemType": "journalArticle", "title": "An Intervention to Improve Communication Between Breast Cancer Survivors and Their Physicians", "creators": [ { "creatorType": "author", "firstName": "Cleveland G. Shields", "lastName": "PhD" }, { "creatorType": "author", "firstName": "Kim Wagler Ziner", "lastName": "PhD" }, { "creatorType": "author", "firstName": "CCRP", "lastName": "Sara A. Bourff MPH" }, { "creatorType": "author", "firstName": "Katherine Schilling", "lastName": "PhD" }, { "creatorType": "author", "firstName": "Qianqian Zhao", "lastName": "MS" }, { "creatorType": "author", "firstName": "Patrick Monahan", "lastName": "PhD" }, { "creatorType": "author", "firstName": "George Sledge", "lastName": "MD" }, { "creatorType": "author", "firstName": "Victoria Champion", "lastName": "DNS" } ], "abstractNote": "Breast cancer survivors often use clues to convey their concerns to their oncologists. The authors conducted a randomized trial of a communication coaching intervention in which 22 female breast cancer survivors were randomized to the coaching and 22 to treatment as usual. They hypothesized that the intervention would increase breast cancer self-efficacy, improve mood, and reduce fears of recurrence. Through a series of ANCOVAs they found that the intervention led to increases in self-efficacy. Changes in self-efficacy predicted changes in anxiety, depression, and womanhood fears. 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