[ { "key": "JM7RJRRT", "version": 5, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/JM7RJRRT", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/JM7RJRRT", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Knight A.", "parsedDate": "6348", "numChildren": 0 }, "data": { "key": "JM7RJRRT", "version": 5, "itemType": "journalArticle", "title": "Patient experience: A faster pathway from A to B for hepatitis C.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Knight A." } ], "abstractNote": "", "publicationTitle": "The Health service journal", "publisher": "", "place": "", "date": "6348", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "26-27", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emedx&AN=24044324", "accessDate": "2013-11-06T18:12:17Z", "PMID": "", "PMCID": "", "ISSN": "0952-2271", "archive": "", "archiveLocation": "", "shortTitle": "Patient experience", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-06T18:12:17Z", "dateModified": "2013-11-06T18:12:17Z" } }, { "key": "6KGQFRVG", "version": 5, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/6KGQFRVG", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/6KGQFRVG", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Boyd L. and Gracie S.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "6KGQFRVG", "version": 5, "itemType": "journalArticle", "title": "Promoting excellence, quality and safety through a multidisciplinary forum.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Boyd L." }, { "creatorType": "author", "firstName": "", "lastName": "Gracie S." } ], "abstractNote": "In an interventional cardiology unit which completes over 7500 procedures annually, the goal of the team is to optimize patient safety and enhance the patient experience. To meet this goal, objectives were outlined: align nursing care with evidence and best practice, increase front line staff autonomy and accountability, promote leadership opportunities for all staff, and involve input on these items from multidisciplinary team members. To accomplish these goals, the concept of a Multidisciplinary Professional Practice Council (MPPC) was developed. The MPPC is a front line staff led forum, fully supported by management, which meets monthly to address practice issues raised by staff. The council takes full responsibility for evaluating practice issues and suggestions, seeking or generating evidence surrounding the issue, developing proposals and protocols to align practice with evidence and ultimately to disseminate the results. Initiatives have led to significant safety optimization and patient experience enhancement. Resulting benefits are also felt by staff. The council promotes accountability and leadership. Mentorships are formed which strengthen leadership opportunities for front line staff. The council generates enthusiasm and accountability amongst frontline staff when they see their ideas and suggestions investigated and implemented. A healthier workplace is a result. The MPPC is a forum easily transferrable to other practice settings. The increased accountability, leadership opportunities, and enthusiasm generated by the MPPC promote a culture of excellence and quality within the unit.", "publicationTitle": "Journal of Cardiology", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.cjca.2013.07.742", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emedx&AN=71204520", "accessDate": "2013-11-06T18:12:00Z", "PMID": "", "PMCID": "", "ISSN": "0828-282X", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-06T18:12:00Z", "dateModified": "2013-11-06T18:12:00Z" } }, { "key": "9MQG3NUJ", "version": 5, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/9MQG3NUJ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/9MQG3NUJ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Rioux V. and Reid S.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "9MQG3NUJ", "version": 5, "itemType": "journalArticle", "title": "Process improvement: A multi-disciplinary approach to advance patient care.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Rioux V." }, { "creatorType": "author", "firstName": "", "lastName": "Reid S." } ], "abstractNote": "Establishing processes and standards of practice has proven to be an effective method to elevate overall patient experience. The Canadian Cardiovascular Association has identified that having an efficient wait list is an indispensable element of a functional health care system. With the ultimate goal of rising above the Canadian standard, a multidisciplinary Arrhythmia Services Team at the Mazankowski Alberta Heart Institute was established to look for opportunities and implement solutions. The key concerns were: a long wait list, disorganized work flow, lack of team engagement and inadequate quality assurance. Through various Plan, Do, Study, Act (PDSA) cycles the team implemented a number of solutions. They revised procedure requisitions challenging current wait time standards with well defined patient priorities. Through following the patient's journey improvements were realized including standardized equipment packs, case mix, redefining operating hours and defined consent and start times. Most importantly, a standard of work was established providing the patient with an elevated level of care. Since this work has begun the team has been able to decrease inpatient urgent wait times from 7 days to 3 days. The scheduled outpatient wait time has also seen a significant decrease from 41 weeks to 16 weeks. Over a 2 year course, the patient waiting list went from 256 patients in September 2010 to 141 as of February 2013. By working in a collaborative environment the team was able to decrease care delay and thereby improve patient safety and satisfaction. The focal point is now to continue improving the quality of care delivered.", "publicationTitle": "Journal of Cardiology", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.cjca.2013.07.771", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emedx&AN=71204547", "accessDate": "2013-11-06T18:11:49Z", "PMID": "", "PMCID": "", "ISSN": "0828-282X", "archive": "", "archiveLocation": "", "shortTitle": "Process improvement", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-06T18:11:49Z", "dateModified": "2013-11-06T18:11:49Z" } }, { "key": "MEWDST7Q", "version": 5, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/MEWDST7Q", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/MEWDST7Q", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Price R.A. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "MEWDST7Q", "version": 5, "itemType": "journalArticle", "title": "Valuing patient experience as a unique and intrinsically important aspect of health care quality.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Price R.A." }, { "creatorType": "author", "firstName": "", "lastName": "Elliott M.N." }, { "creatorType": "author", "firstName": "", "lastName": "Zaslavsky A.M." } ], "abstractNote": "", "publicationTitle": "JAMA Surgery", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "985-986", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emedx&AN=2013678033", "accessDate": "2013-11-06T18:11:27Z", "PMID": "", "PMCID": "", "ISSN": "2168-6254", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-06T18:11:27Z", "dateModified": "2013-11-06T18:11:27Z" } }, { "key": "EHBJ8DKF", "version": 4, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/EHBJ8DKF", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/EHBJ8DKF", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Shelton R.C. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "EHBJ8DKF", "version": 4, "itemType": "journalArticle", "title": "Assessing effects of L-methylfolate in depression management: Results of a real-world patient experience trial.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Shelton R.C." }, { "creatorType": "author", "firstName": "", "lastName": "Sloan Manning J." }, { "creatorType": "author", "firstName": "", "lastName": "Barrentine L.W." }, { "creatorType": "author", "firstName": "", "lastName": "Tipa E.V." } ], "abstractNote": "Objective: L-Methylfolate has been shown in retrospective and prospective studies to enhance antidepressant response. The aim of this study was to prospectively assess change in depression severity and medication satisfaction in patients prescribed l-methylfolate within a naturalistic setting. Method: Between November 2010 and April 2012, patients who reported being treated for major depressive disorder rated their experiences before and after 3 months on the prescription medical food l-methylfolate (Deplin) 7.5 mg or 15 mg, through an automated telephone system. Survey questions included the 9-item Patient Health Questionnaire (PHQ-9), as well as quality of life and medication satisfaction questions. The primary outcome was change in depression severity from baseline to endpoint. Results: Of 554 patients, 502 reported that l-methylfolate was added to their existing antidepressant and 52 were treated with l-methylfolate alone, without an antidepressant. Enrolled participants reported a mean reduction of 8.5 points (58.2% decrease) in their PHQ-9 score (mean baseline PHQ-9 score = 14.6, mean follow-up PHQ-9 score = 6.1; P =.000); 376 (67.9%) responded to treatment (50% reduction in baseline PHQ-9 score) and 253 (45.7%) achieved remission (follow-up PHQ-9 score < 5) after an average of 95 days of therapy. In addition, patients achieved significant reductions in self-reported impairment in their work/home/social life (P =.000). Medication satisfaction with l-methylfolate (mean satisfaction score = 7.0) was significantly higher than with prior medication (mean satisfaction score = 5.2; P =.000). Conclusions: Results show that in a naturalistic setting, patients managed with l-methylfolate achieved statistically significant improvements in self-reported depression symptoms and functioning and greater satisfaction with their medication treatment. 2013 Physicians Postgraduate Press, Inc.", "publicationTitle": "Journal of Clinical Psychiatry", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.4088/PCC.13m01520", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013587787", "accessDate": "2013-10-30T21:02:11Z", "PMID": "", "PMCID": "", "ISSN": "1523-5998", "archive": "", "archiveLocation": "", "shortTitle": "Assessing effects of L-methylfolate in depression management", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-10-30T21:02:11Z", "dateModified": "2013-10-30T21:02:11Z" } }, { "key": "GQI7C8XD", "version": 4, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/GQI7C8XD", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/GQI7C8XD", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Liu S.W. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "GQI7C8XD", "version": 4, "itemType": "journalArticle", "title": "The boarding experience from the patient perspective: The wait.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Liu S.W." }, { "creatorType": "author", "firstName": "", "lastName": "Milne L.W." }, { "creatorType": "author", "firstName": "", "lastName": "Yun B.J." }, { "creatorType": "author", "firstName": "", "lastName": "Walsh K." } ], "abstractNote": "Study Objective: Boarding is associated with longer hospital length of stay, delays, errors, adverse events, and mortality. As no study has examined the experience of boarding from the patient perspective, we sought to better understand the experience of being a boarder patient. Methods: We conducted a qualitative study between March and August, 2012 to examine the experience of boarding in an urban, teaching hospital with 90,000 annual emergency department (ED) visits. We included patients boarded in our ED (defined as staying at least 5 hours after bed request time) and excluded patients too unstable to participate. We selected patients based on purposive selection of days when patients were most likely to be boarding. Interviews were semi-structured, consisting of eight main open-ended questions. Based on inductive research methods, the semi-structured questions were followed with probing questions designed to reveal further details of the experience of being a boarder patient. Thus, a general view of the experience of being a boarded patient emerged. Interviews were transcribed and codes were generated inductively by reading and rereading our primary data and deductively from experience and theory. Codes were categorized into themes. We concluded analysis when we achieved thematic saturation. Our institutional review board approved this study. Results: Our final sample included 18 patients. The average age was 62.6. Patients characterized waiting as central to their experience as a boarder patient. One patient stated, \"Well if you have to wait for a bed you have to wait for a bed, it's terrible.\" Another shared, \"The care is different. You seem to be more like somebody waiting in a bakery in the ED - waiting to take a number to be chosen.\" There were three themes that exemplified this waiting experience: 1) during the waiting experience, there was often lack of communication, \"I don't know how many times I have people coming in and out and they all ask me the same questions, they don't seem to know what previous people that have been here have asked. every time that somebody comes they don't seem to know what [is going on],\" 2) often, patients experienced great frustration during this waiting period; \"It's uncomfortable, I'd like to have something to eat, it should be a little bit more comfortable for the patient,\" stated one patient, and yet, 3) patients often differentiated the experience of waiting from the care they were receiving. A patient shared, \"you are not the only pebble on the beach and they are trying to deal with every situation, all kinds of patients, some of whom are terribly ill, some are dying and you feel you want [their] attention, but you know you keep quiet. It's not that they [nurses] forget but they get caught up in something else. So I can't blame them.\" Conclusions: The boarder patient experience was characterized as a waiting game that often was associated with poor communication and frustration; yet, despite the wait, may be an experience where they still feel they receive satisfactory medical care. While ideally boarding would be eliminated, given ED visits are likely to continue to increase, boarding will likely continue to exist. Efforts should be made to improve communication, (eg having a dedicated boarder staff that updates patients on bed status) and alleviate frustration through making the environment more comfortable (eg offering food), while continuing to provide high quality of care.", "publicationTitle": "Annals of Emergency Medicine", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.annemergmed.2013.07.418", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=71190198", "accessDate": "2013-10-30T21:01:54Z", "PMID": "", "PMCID": "", "ISSN": "0196-0644", "archive": "", "archiveLocation": "", "shortTitle": "The boarding experience from the patient perspective", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-10-30T21:01:54Z", "dateModified": "2013-10-30T21:01:54Z" } }, { "key": "SFSCB4FI", "version": 3, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/SFSCB4FI", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/SFSCB4FI", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Saver C.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "SFSCB4FI", "version": 3, "itemType": "journalArticle", "title": "Pain and patient experience: a business partnership.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Saver C." } ], "abstractNote": "", "publicationTitle": "OR manager", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "9-10", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23821922", "accessDate": "2013-09-10T20:00:51Z", "PMID": "", "PMCID": "", "ISSN": "8756-8047", "archive": "", "archiveLocation": "", "shortTitle": "Pain and patient experience", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-09-10T20:00:51Z", "dateModified": "2013-09-10T20:00:51Z" } }, { "key": "EZ4DTS75", "version": 3, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/EZ4DTS75", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/EZ4DTS75", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Ottosen B. and Pedersen B.D.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "EZ4DTS75", "version": 3, "itemType": "journalArticle", "title": "Patients' experiences of npwt in an outpatient setting in denmark.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Ottosen B." }, { "creatorType": "author", "firstName": "", "lastName": "Pedersen B.D." } ], "abstractNote": "Objective: To study patients' experiences of negative pressure wound therapy (NPWT) used for wounds of various aetiologies in the outpatient setting and the influences on daily life. Method: In this qualitative study, a phenomenological-hermeneutic approach was used. Ten patients underwent qualitative interviews regarding their NPWT treatment. The French philosopher, Ricoeur's, theory of interpretation guided the data analysis, which included three levels: naive reading, structural analysis and critical interpretation and discussion. Results: The patients experienced a high level of dependency on the equipment and a greater confidence as treatment proceeded. There is a link between treatment and tolerance. Duration of treatment influenced the patients' ability to cope with it and the patients gradually developed an acceptance of the technology. The support of relatives was important, particularly after delivery of a baby and wound treatment following caesarean section. Some patients were embarrassed due to the appearance and smell of the exudate. Conclusion: Use of NPWT clearly influences patients' daily life. Patients have a feeling of being dependent on and attached to the equipment, and they experienced embarrassment about odour, anxiety and uneasiness in relation to complications, a need for relatives' support and other socialrelation issues. It was important to include relatives as a resource and make use of the opportunity they presented to assist patients during information sessions about treatment. Declaration of interest: There were no external sources of funding for this study. The authors have no conflicts of interest to report.", "publicationTitle": "Journal of Wound Care", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "197-206", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23702673", "accessDate": "2013-09-10T19:59:40Z", "PMID": "", "PMCID": "", "ISSN": "0969-0700", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-09-10T19:59:40Z", "dateModified": "2013-09-10T19:59:40Z" } }, { "key": "ZQVSUWVM", "version": 3, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/ZQVSUWVM", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/ZQVSUWVM", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Rodriguez S.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "ZQVSUWVM", "version": 3, "itemType": "journalArticle", "title": "Patient experience: Perception is everything.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Rodriguez S." } ], "abstractNote": "", "publicationTitle": "Hospital peer review", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "76-78", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23866562", "accessDate": "2013-09-10T19:59:13Z", "PMID": "", "PMCID": "", "ISSN": "0149-2632", "archive": "", "archiveLocation": "", "shortTitle": "Patient experience", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-09-10T19:59:13Z", "dateModified": "2013-09-10T19:59:13Z" } }, { "key": "JK7B8FDS", "version": 2, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/JK7B8FDS", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/JK7B8FDS", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Donohue C. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "JK7B8FDS", "version": 2, "itemType": "journalArticle", "title": "Patient experience end satisfaction with cardiac anaesthesia: A dual centre service evaluation study.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Donohue C." }, { "creatorType": "author", "firstName": "", "lastName": "Patel H." }, { "creatorType": "author", "firstName": "", "lastName": "Meshykhi L." }, { "creatorType": "author", "firstName": "", "lastName": "Monkhouse A." }, { "creatorType": "author", "firstName": "", "lastName": "Giannaris S." }, { "creatorType": "author", "firstName": "", "lastName": "Walker C." } ], "abstractNote": "Introduction: Positive patient experience and satisfaction is an important outcome measure of service quality. Quantifying patients' perceptions may guide quality improvement measures for anaesthetic service provision. Methods: SOPPCAS (scale of patients' perceptions of cardiac anaesthesia services) is a validated psychometric tool [1]. All eligible patients undergoing elective major cardiac surgery were given a SOPPCAS questionnaire for completion on postoperative day four or five during a five week period. All questionnaires were coded to maintain patient anonymity during data collection and analysis. Results: A 76% response rate across both Trusts was achieved from 124 eligible elective cases undertaken. In general, patients reported high levels of satisfaction with their peri-operative interaction with the anaesthetic service. 64% of patients reported postoperative pain, but this was relieved effectively in the majority. The SOPPCAS revealed a significant incidence of several complications such as nausea (35%), vomiting (28%), sleep disturbance (58%), sore throat (35%) and hallucinations (31%). 8 out of 124 patients reported being conscious between onset of anaesthesia and end of operation. Further investigation is underway to re-examine the reliability of this particular question and whether these responses did indeed manifest true awareness. Discussion: This study presents important feedback relating to patients' perceptions of their peri-operative journey and may serve as a robust tool for service evaluation. Service improvement at our institutes will focus on reduction of reported pain and other complications. With the advent of professional revalidation, evidence of patient satisfaction with anaesthetic care is likely to become a major aspect of staff appraisal.", "publicationTitle": "Applied Cardiopulmonary Pathophysiology", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=71105134", "accessDate": "2013-07-26T17:51:17Z", "PMID": "", "PMCID": "", "ISSN": "0920-5268", "archive": "", "archiveLocation": "", "shortTitle": "Patient experience end satisfaction with cardiac anaesthesia", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-26T17:51:17Z", "dateModified": "2013-07-26T17:51:17Z" } }, { "key": "N3N2CXTW", "version": 2, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/N3N2CXTW", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/N3N2CXTW", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Morrow E. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "N3N2CXTW", "version": 2, "itemType": "journalArticle", "title": "Mechanisms can help to use patients' experiences of chronic disease in research and practice: An interpretive synthesis.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Morrow E." }, { "creatorType": "author", "firstName": "", "lastName": "Cotterell P." }, { "creatorType": "author", "firstName": "", "lastName": "Robert G." }, { "creatorType": "author", "firstName": "", "lastName": "Grocott P." }, { "creatorType": "author", "firstName": "", "lastName": "Ross F." } ], "abstractNote": "Objective: To identify and examine mechanisms through which patients' experiences of chronic disease can be accessed, understood, and used to improve outcomes, health care costs, and quality of life for individual patients. Study Design and Setting: Interpretive synthesis of the research literature on chronic disease and associated areas of clinical practice and service development. Searches of electronic databases (MEDLINE, EMBASE, and British Nursing Index), Internet searches, and snowballing techniques identified 66 relevant publications. The analysis focused on identifying mechanisms; their strengths, weaknesses, and impact. Results: Ten mechanisms were identified, each with differing potential to access and reach patients; involve patients in decisions about what information is important; enable patients to share experiences/expertise and validate their knowledge; allow professionals and patients to deliberate and build understanding; support shared decision-making, continuity/partnership development, and potential to use patients' experiences. The extent to which patients' experiences led to improved outcomes, health care costs, or quality of life related to the aims of individual studies. Conclusion: Patients can contribute to improving the design and delivery of chronic disease health care and research if appropriate mechanisms are in place. There is a need for future research about optimal configurations of mechanisms and links between mechanisms across health care and research. 2013 Elsevier Inc. All rights reserved.", "publicationTitle": "Journal of Clinical Epidemiology", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "856-864", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.jclinepi.2012.12.019", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013423469", "accessDate": "2013-07-26T17:50:43Z", "PMID": "", "PMCID": "", "ISSN": "0895-4356", "archive": "", "archiveLocation": "", "shortTitle": "Mechanisms can help to use patients' experiences of chronic disease in research and practice", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-26T17:50:43Z", "dateModified": "2013-07-26T17:50:43Z" } }, { "key": "FIMRPEHA", "version": 2, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/FIMRPEHA", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/FIMRPEHA", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Busija L. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "FIMRPEHA", "version": 2, "itemType": "journalArticle", "title": "Systematic review showed measures of individual burden of osteoarthritis poorly capture the patient experience.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Busija L." }, { "creatorType": "author", "firstName": "", "lastName": "Osborne R.H." }, { "creatorType": "author", "firstName": "", "lastName": "Roberts C." }, { "creatorType": "author", "firstName": "", "lastName": "Buchbinder R." } ], "abstractNote": "Objective: The objective of this study was to describe the content of questionnaires used in the assessment of the individual burden of osteoarthritis. Study Design and Setting: A systematic search of computerized databases was conducted to identify self-report measures of osteoarthritis burden. The content of identified measures was assessed against the eight-domain Personal Burden of Osteoarthritis (PBO) model, which covers physical distress, fatigue, physical limitations, psychosocial distress, physical deconditioning, financial hardship, sleep disturbances, and lost productivity. The PBO was derived from extensive consultations with osteoarthritis patients and clinicians. Results: A review of 5,703 publications identified 158 multi-item self-report measures of the individual burden of osteoarthritis. Content analysis showed that the dimensions of physical limitations, physical distress, and psychosocial distress were well represented by the identified questionnaires. The physical deconditioning and financial hardship dimensions were the least represented in the identified measures. The World Health Organization Quality of Life Scale gave the best coverage of PBO elements, with items matching seven of the eight PBO domains. Conclusion: Despite the large number of questionnaires identified, many aspects of the individual burden of osteoarthritis are not well represented by currently available measures. This may result in systematic gaps in how experiences of people with osteoarthritis are represented in research studies. 2013 Elsevier Inc. All rights reserved.", "publicationTitle": "Journal of Clinical Epidemiology", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "826-837", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.jclinepi.2013.03.011", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013423475", "accessDate": "2013-07-26T17:50:26Z", "PMID": "", "PMCID": "", "ISSN": "0895-4356", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-26T17:50:26Z", "dateModified": "2013-07-26T17:50:26Z" } }, { "key": "FZ2NP5G9", "version": 2, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/FZ2NP5G9", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/FZ2NP5G9", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Putre L.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "FZ2NP5G9", "version": 2, "itemType": "journalArticle", "title": "The singing nurse: improving the patient experience with dulcet tones, old hymns and pop standards.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Putre L." } ], "abstractNote": "", "publicationTitle": "Hospitals & health networks / AHA", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23700759", "accessDate": "2013-07-26T17:50:01Z", "PMID": "", "PMCID": "", "ISSN": "1068-8838", "archive": "", "archiveLocation": "", "shortTitle": "The singing nurse", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-26T17:50:01Z", "dateModified": "2013-07-26T17:50:01Z" } }, { "key": "3PVA49MB", "version": 2, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/3PVA49MB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/3PVA49MB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Leigh E.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "3PVA49MB", "version": 2, "itemType": "journalArticle", "title": "Five factors to dramatically improve the patient experience.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Leigh E." } ], "abstractNote": "", "publicationTitle": "Journal of the Michigan Dental Association", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "44-47", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23767222", "accessDate": "2013-07-26T17:49:51Z", "PMID": "", "PMCID": "", "ISSN": "0026-2102", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-26T17:49:51Z", "dateModified": "2013-07-26T17:49:51Z" } }, { "key": "INB5WUN6", "version": 2, "library": { "type": "group", "id": 189720, "name": "patient_exp_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189720/items/INB5WUN6", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/patient_exp_bdd_embase/items/INB5WUN6", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Stempniak M.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "INB5WUN6", "version": 2, "itemType": "journalArticle", "title": "The patient experience. Taking it to the next level.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Stempniak M." } ], "abstractNote": "", "publicationTitle": "Hospitals & health networks / AHA", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "41-47", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23700758", "accessDate": "2013-07-26T17:49:19Z", "PMID": "", "PMCID": "", "ISSN": "1068-8838", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-26T17:49:19Z", "dateModified": "2013-07-26T17:49:19Z" } } ]