[ { "key": "UBJ4EWK6", "version": 6, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/UBJ4EWK6", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/UBJ4EWK6", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Osborne R.H. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "UBJ4EWK6", "version": 6, "itemType": "journalArticle", "title": "The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ).", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Osborne R.H." }, { "creatorType": "author", "firstName": "", "lastName": "Batterham R.W." }, { "creatorType": "author", "firstName": "", "lastName": "Elsworth G.R." }, { "creatorType": "author", "firstName": "", "lastName": "Hawkins M." }, { "creatorType": "author", "firstName": "", "lastName": "Buchbinder R." } ], "abstractNote": "Health literacy has become an increasingly important concept in public health. We sought to develop a comprehensive measure of health literacy capable of diagnosing health literacy needs across individuals and organisations by utilizing perspectives from the general population, patients, practitioners and policymakers. Using a validity-driven approach we undertook grounded consultations (workshops and interviews) to identify broad conceptually distinct domains. Questionnaire items were developed directly from the consultation data following a strict process aiming to capture the full range of experiences of people currently engaged in healthcare through to people in the general population. Psychometric analyses included confirmatory factor analysis (CFA) and item response theory. Cognitive interviews were used to ensure questions were understood as intended. Items were initially tested in a calibration sample from community health, home care and hospital settings (N=634) and then in a replication sample (N=405) comprising recent emergency department attendees. Initially 91 items were generated across 6 scales with agree/disagree response options and 5 scales with difficulty in undertaking tasks response options. Cognitive testing revealed that most items were well understood and only some minor re-wording was required. Psychometric testing of the calibration sample identified 34 poorly performing or conceptually redundant items and they were removed resulting in 10 scales. These were then tested in a replication sample and refined to yield 9 final scales comprising 44 items. A 9-factor CFA model was fitted to these items with no cross-loadings or correlated residuals allowed. Given the very restricted nature of the model, the fit was quite satisfactory: chi2WLSMV(866 d.f.) = 2927, p<0.000, CFI = 0.936, TLI = 0.930, RMSEA = 0.076, and WRMR = 1.698. Final scales included: Feeling understood and supported by healthcare providers; Having sufficient information to manage my health; Actively managing my health; Social support for health; Appraisal of health information; Ability to actively engage with healthcare providers; Navigating the healthcare system; Ability to find good health information; and Understand health information well enough to know what to do. The HLQ covers 9 conceptually distinct areas of health literacy to assess the needs and challenges of a wide range of people and organisations. Given the validity-driven approach, the HLQ is likely to be useful in surveys, intervention evaluation, and studies of the needs and capabilities of individuals.", "publicationTitle": "BMC public health", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1186/1471-2458-13-658", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23855504", "accessDate": "2013-11-06T17:05:13Z", "PMID": "", "PMCID": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-06T17:05:13Z", "dateModified": "2013-11-06T17:05:13Z" } }, { "key": "36GTGQBQ", "version": 6, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/36GTGQBQ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/36GTGQBQ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Easton P. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "36GTGQBQ", "version": 6, "itemType": "journalArticle", "title": "How the stigma of low literacy can impair patient-professional spoken interactions and affect health: insights from a qualitative investigation.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Easton P." }, { "creatorType": "author", "firstName": "", "lastName": "Entwistle V.A." }, { "creatorType": "author", "firstName": "", "lastName": "Williams B." } ], "abstractNote": "Low literacy is a significant problem across the developed world. A considerable body of research has reported associations between low literacy and less appropriate access to healthcare services, lower likelihood of self-managing health conditions well, and poorer health outcomes. There is a need to explore the previously neglected perspectives of people with low literacy to help explain how low literacy can lead to poor health, and to consider how to improve the ability of health services to meet their needs. Two stage qualitative study. In-depth individual interviews followed by focus groups to confirm analysis and develop suggestions for service improvements. A purposive sample of 29 adults with English as their first language who had sought help with literacy was recruited from an Adult Learning Centre in the UK. Over and above the well-documented difficulties that people with low literacy can have with the written information and complex explanations and instructions they encounter as they use health services, the stigma of low literacy had significant negative implications for participants' spoken interactions with healthcare professionals.Participants described various difficulties in consultations, some of which had impacted negatively on their broader healthcare experiences and abilities to self-manage health conditions. Some communication difficulties were apparently perpetuated or exacerbated because participants limited their conversational engagement and used a variety of strategies to cover up their low literacy that could send misleading signals to health professionals. Participants' biographical narratives revealed that the ways in which they managed their low literacy in healthcare settings, as in other social contexts, stemmed from highly negative experiences with literacy-related stigma, usually from their schooldays onwards. They also suggest that literacy-related stigma can significantly undermine mental wellbeing by prompting self-exclusion from social participation and generating a persistent anxiety about revealing literacy difficulties. Low-literacy-related stigma can seriously impair people's spoken interactions with health professionals and their potential to benefit from health services. As policies increasingly emphasise the need for patients' participation, services need to simplify the literacy requirements of service use and health professionals need to offer non-judgemental (universal) literacy-sensitive support to promote positive healthcare experiences and outcomes.", "publicationTitle": "BMC health services research", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1186/1472-6963-13-319", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23958036", "accessDate": "2013-11-06T17:04:37Z", "PMID": "", "PMCID": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "How the stigma of low literacy can impair patient-professional spoken interactions and affect health", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-11-06T17:04:37Z", "dateModified": "2013-11-06T17:04:37Z" } }, { "key": "3VAQTGDN", "version": 5, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/3VAQTGDN", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/3VAQTGDN", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Gynn M.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "3VAQTGDN", "version": 5, "itemType": "journalArticle", "title": "Health literacy and nurses: a new paradigm to improve health and minimize chronic disease.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Gynn M." } ], "abstractNote": "", "publicationTitle": "The Florida nurse", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23905501", "accessDate": "2013-10-09T20:58:44Z", "PMID": "", "PMCID": "", "ISSN": "0015-4199", "archive": "", "archiveLocation": "", "shortTitle": "Health literacy and nurses", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-10-09T20:58:44Z", "dateModified": "2013-10-09T20:58:44Z" } }, { "key": "65RI7NGB", "version": 5, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/65RI7NGB", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/65RI7NGB", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Melas P.A. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "65RI7NGB", "version": 5, "itemType": "journalArticle", "title": "Mental health literacy about depression and schizophrenia among adolescents in Sweden.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Melas P.A." }, { "creatorType": "author", "firstName": "", "lastName": "Tartani E." }, { "creatorType": "author", "firstName": "", "lastName": "Forsner T." }, { "creatorType": "author", "firstName": "", "lastName": "Edhborg M." }, { "creatorType": "author", "firstName": "", "lastName": "Forsell Y." } ], "abstractNote": "Background: Mental health literacy (MHL) refers to an individual's knowledge of mental disorders, including the ability to recognize psychopathology and being aware of help options. Most studies of MHL have focused on adults. Objective: The purpose of this study was to examine levels of MHL among adolescents. Methods: MHL was examined using two pre-established vignettes that presented an adolescent with symptoms of either depression or schizophrenia. The respondents were 426 adolescents (age mean. = 16). Vignette data were analyzed both qualitatively and quantitatively. Results: The data showed that 42.7% and 34.7% of the respondents identified depression and schizophrenia, respectively. Depression was recognized more often by females than males. Professional help was suggested by a minority of the respondents for managing symptoms of depression (22.5%) or schizophrenia (32.6%). Altruistic behaviors, examined through the willingness to help an acquaintance with mental illness symptoms, were apparent among 58.2% of the respondents and to a greater extent in females than males. Answers following the schizophrenia vignette also revealed stigmatizing attitudes in 11.5% of the participants. Conclusions: There are relatively low levels of MHL among teenagers in Sweden. Awareness campaigns and the implementation of psychoeducation in the school curriculum could increase MHL in this group. 2013 Elsevier Masson SAS.", "publicationTitle": "European Psychiatry", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "404-411", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.eurpsy.2013.02.002", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013562114", "accessDate": "2013-10-09T20:58:36Z", "PMID": "", "PMCID": "", "ISSN": "0924-9338", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-10-09T20:58:36Z", "dateModified": "2013-10-09T20:58:36Z" } }, { "key": "Z57T2NKQ", "version": 5, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/Z57T2NKQ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/Z57T2NKQ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Hansberry D.R. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "Z57T2NKQ", "version": 5, "itemType": "journalArticle", "title": "Quality assessment of online patient education resources for peripheral neuropathy.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Hansberry D.R." }, { "creatorType": "author", "firstName": "", "lastName": "Suresh R." }, { "creatorType": "author", "firstName": "", "lastName": "Agarwal N." }, { "creatorType": "author", "firstName": "", "lastName": "Heary R.F." }, { "creatorType": "author", "firstName": "", "lastName": "Goldstein I.M." } ], "abstractNote": "Given its practicality, the internet is a primary resource for patients afflicted with diseases like peripheral neuropathy. Therefore, it is important that the readily available online resources on peripheral neuropathy are tailored to the general public, particularly concerning readability. Patient education resources were downloaded from the US National Library of Medicine, Mayo Clinic, National Institute of Neurological Disorders and Stroke, Neuropathy.org, GBS/CIDP Foundation International, Hereditary Neuropathy Foundation, Charcot-Marie-Tooth Association, Foundation for Peripheral Neuropathy, and Neuropathy Action Foundation websites. All patient education material related to peripheral neuropathy was evaluated for its level of readability using the Flesch Reading Ease (FRE) and Flesch-Kincaid Grade Level. The FRE scores averaged 43.4 with only the US National Library of Medicine scoring above 60 (76.5). The Flesch-Kincaid Grade Level scores averaged 11.0. All scores were above a seventh-grade level except the US National Library of Medicine, which had a score of a fifth-grade reading level. Most Americans may not fully benefit from patient education resources concerning peripheral neuropathy education on many of the websites. Only the US National Library of Medicine, which is written at a fifth-grade level, is likely to benefit the average American. 2013 Peripheral Nerve Society.", "publicationTitle": "Journal of the peripheral nervous system", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "44-47", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1111/jns5.12006", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23521643", "accessDate": "2013-10-09T20:58:15Z", "PMID": "", "PMCID": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-10-09T20:58:15Z", "dateModified": "2013-10-09T20:58:15Z" } }, { "key": "WTFAVGFK", "version": 5, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/WTFAVGFK", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/WTFAVGFK", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Ghorob A. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "WTFAVGFK", "version": 5, "itemType": "journalArticle", "title": "Health coaching.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Ghorob A." }, { "creatorType": "author", "firstName": "", "lastName": "Willard-Grace R." }, { "creatorType": "author", "firstName": "", "lastName": "Bodenheimer T." } ], "abstractNote": "", "publicationTitle": "The virtual mentor : VM", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "319-326", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1001/virtualmentor.2013.15.4.stas2-1304", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23566781", "accessDate": "2013-10-09T20:57:57Z", "PMID": "", "PMCID": "", "ISSN": "", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-10-09T20:57:57Z", "dateModified": "2013-10-09T20:57:57Z" } }, { "key": "RE9SSFH4", "version": 4, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/RE9SSFH4", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/RE9SSFH4", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Ratzan S.C. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "RE9SSFH4", "version": 4, "itemType": "journalArticle", "title": "The digital health scorecard: A new health literacy metric for NCD prevention and care.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Ratzan S.C." }, { "creatorType": "author", "firstName": "", "lastName": "Weinberger M.B." }, { "creatorType": "author", "firstName": "", "lastName": "Apfel F." }, { "creatorType": "author", "firstName": "", "lastName": "Kocharian G." } ], "abstractNote": "According to the World Health Organization, 3 out of 5 deaths worldwide are due to common, chronic conditions, such as heart and respiratory diseases, cancer, and diabetes. These noncommunicable diseases (NCDs) are linked to multiple lifestyle risk factors, including smoking, the harmful use of alcohol, and physical inactivity. They are associated with other \"intermediate\" risk factors, such as elevated body mass index (BMI), hypertension, hyperlipidemia, and hyperglycemia. Taking action to reduce these 7 risk factors can help people protect themselves against leading causes of death. All of these risk factors are measurable and modifiable, but globally available, cost-effective, and easy-to-use outcome metrics that can drive action on all levels do not yet exist. The Digital Health Scorecard is being proposed as a dynamic, globally available digital tool to raise public, professional, and policy maker NCD health literacy (the motivation and ability to access, understand, communicate, and use information to improve health and reduce the incidence of NCD). Its aim is to motivate and empower individuals to make the behavioral and choice changes needed to improve their health and reduce NCD risk factors by giving unprecedented access to global data intelligence, creating awareness, making links to professional and community-based support services and policies, and providing a simple way to measure and track risk changes. Moreover, it provides health care professionals, communities, institutions, workplaces, and nations with a simple metric to monitor progress toward agreed local, national, and global NCD targets. 2013 World Heart Federation (Geneva). Published by Elsevier Ltd. All rights reserved.", "publicationTitle": "Global Heart", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "171-179", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1016/j.gheart.2013.05.006", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013482310", "accessDate": "2013-09-10T19:24:13Z", "PMID": "", "PMCID": "", "ISSN": "2211-8160", "archive": "", "archiveLocation": "", "shortTitle": "The digital health scorecard", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-09-10T19:24:13Z", "dateModified": "2013-09-10T19:24:13Z" } }, { "key": "8XU7X7JJ", "version": 4, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/8XU7X7JJ", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/8XU7X7JJ", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Quarles L.W. et al.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "8XU7X7JJ", "version": 4, "itemType": "journalArticle", "title": "Health literacy, knowledge and competency: Lessons from the swift community study.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Quarles L.W." }, { "creatorType": "author", "firstName": "", "lastName": "Roberts E.T." }, { "creatorType": "author", "firstName": "", "lastName": "Zitouni M." }, { "creatorType": "author", "firstName": "", "lastName": "Boden-Albala B." } ], "abstractNote": "INTRODUCTION: Racial disparities in stroke preparedness and prevention persist. Emerging research emphasizes the importance of stroke knowledge; however significant gaps remain. The aim of this work was to explore factors related to stroke knowledge/preparedness attainment in a stroke-free community setting. Methods: The Stroke Warning Information and Faster Treatment Community (SWIFT) study was a randomized stroke preparedness educational intervention, which prospectively enrolled stroke-free community members from 30 Northern Manhattan community-based organizations. This culturally tailored health literate intervention utilized visuals, and interactive sessions to overcome educational and language barriers. Baseline demographics and a validated stroke knowledge score (SKS) were assessed by interviewer administered questionnaires at each of the community sites. Health literacy was assessed using the Short Test of Functional Health Literacy in Adults. At the end of the intervention, we assessed competency of stroke knowledge and preparedness using an open-ended teach back methodology. Results: The cohort included 423 stroke free community residents; mean age 64.1 years; 77% female; 30% white, 27% black, 40% Hispanic. Mean baseline stroke knowledge score was 72.4%. In a multivariate model adjusted for age, SKS was significantly associated with education (p <.0001) gender (p=.0046) and Latino race (p <.0001) with Latino males having less than high school education scoring 5 points less than white females with HS or more. While 46% demonstrated competency on the multiple choice section, only 26% demonstrated competency on open ended behavioral intent questions. Health literacy level was significantly correlated (r=.324, p=.0001) with total stroke knowledge score, but was not correlated with post-intervention competency assessment (r=.116, p=.116). Of the 76% that had a competency score, 77% demonstrated full competency post intervention. Discussion: Mismatch between multiple choice knowledge score and competency indicate that not all evaluation methods correspond to true learning. Appropriate intervention can overcome disparities in health literacy to improve stroke education for all.", "publicationTitle": "Stroke", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=71144554", "accessDate": "2013-09-10T19:19:53Z", "PMID": "", "PMCID": "", "ISSN": "0039-2499", "archive": "", "archiveLocation": "", "shortTitle": "Health literacy, knowledge and competency", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-09-10T19:19:53Z", "dateModified": "2013-09-10T19:19:53Z" } }, { "key": "U938P9VF", "version": 4, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/U938P9VF", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/U938P9VF", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Protheroe J. and Rowlands R.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "U938P9VF", "version": 4, "itemType": "journalArticle", "title": "Matching clinical information with levels of patient health literacy.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Protheroe J." }, { "creatorType": "author", "firstName": "", "lastName": "Rowlands R." } ], "abstractNote": "Good communication between healthcare professionals and patients is central to therapeutic relationships, and patients need to know how to access, understand and make use of services and information to promote and maintain their health. This article describes how practising effective communication can improve patient care and how nurses, with their central role in patient advocacy, are well placed to become health literacy champions for their patients and the wider NHS.", "publicationTitle": "Nursing Management", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "20-21", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23841233", "accessDate": "2013-09-10T19:17:36Z", "PMID": "", "PMCID": "", "ISSN": "1354-5760", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-09-10T19:17:36Z", "dateModified": "2013-09-10T19:17:36Z" } }, { "key": "ISQSQFG2", "version": 3, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/ISQSQFG2", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/ISQSQFG2", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Corrarino J.E.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "ISQSQFG2", "version": 3, "itemType": "journalArticle", "title": "Health Literacy and Women's Health: Challenges and Opportunities.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Corrarino J.E." } ], "abstractNote": "Introduction: This article describes the impact of health literacy on women's health and provides strategies for addressing this public health issue. Methods: A comprehensive literature review was conducted of peer-reviewed journals. Multiple electronic databases were used, including CINAHL, MEDLINE, PubMed, and Google Scholar. Key words were used to identify articles and were combined to include health literacy, health behavior, women's health, patient education, and professional role. Additional articles were identified as a result of reviewing reference lists found during the electronic search. Results: Health literacy is a complex issue that affects many women and can adversely affect women's knowledge, ability to adhere to clinical plans of care, and health outcomes for women and their children. It is estimated that 36% of adults in the United States possess limited health literacy skills. Effective strategies can be used by health care providers to address this serious problem, including clear and effective communication, development of health education materials, professional education, and development of community partnerships. Discussion: Health literacy is a serious problem. Effective approaches can be employed to blunt the adverse effect on women's health. Health care providers are well positioned to demonstrate leadership within the health care system regarding health literacy. 2013 by the American College of Nurse-Midwives.", "publicationTitle": "Journal of Midwifery and Women", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "257-264", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1111/jmwh.12018", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013379142", "accessDate": "2013-07-25T17:40:33Z", "PMID": "", "PMCID": "", "ISSN": "1526-9523", "archive": "", "archiveLocation": "", "shortTitle": "Health Literacy and Women's Health", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-25T17:40:33Z", "dateModified": "2013-07-25T17:40:33Z" } }, { "key": "6J3JH7XW", "version": 3, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/6J3JH7XW", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/6J3JH7XW", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Tomsik E. and Briggs B.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "6J3JH7XW", "version": 3, "itemType": "journalArticle", "title": "Empowering patients through advanced EMR use. The role of patient education and health literacy in patient portals.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Tomsik E." }, { "creatorType": "author", "firstName": "", "lastName": "Briggs B." } ], "abstractNote": "", "publicationTitle": "Health management technology", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "14-15", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23547441", "accessDate": "2013-07-25T17:39:23Z", "PMID": "", "PMCID": "", "ISSN": "1074-4770", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-25T17:39:23Z", "dateModified": "2013-07-25T17:39:23Z" } }, { "key": "SU2V9SI7", "version": 3, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/SU2V9SI7", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/SU2V9SI7", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Armstrong I. and Harries C.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "SU2V9SI7", "version": 3, "itemType": "journalArticle", "title": "Patient information that promotes health literacy.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Armstrong I." }, { "creatorType": "author", "firstName": "", "lastName": "Harries C." } ], "abstractNote": "Health literacy is the ability to make informed health decisions in everyday life. For many patients and carers, decisionmaking is made more difficult by the fact that high-quality information is unavailable to them. The Pulmonary Hypertension Association has created patient materials that promote health literacy to help patients and their families make decisions that are well informed.", "publicationTitle": "Nursing Times", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "23-25", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=23631098", "accessDate": "2013-07-25T17:38:24Z", "PMID": "", "PMCID": "", "ISSN": "0954-7762", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-25T17:38:24Z", "dateModified": "2013-07-25T17:38:24Z" } }, { "key": "337IQ86F", "version": 2, "library": { "type": "group", "id": 189251, "name": "litteratie_bdd_embase", "links": { "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/189251/items/337IQ86F", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/litteratie_bdd_embase/items/337IQ86F", "type": "text/html" } }, "meta": { "createdByUser": { "id": 1183839, "username": "pschum", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/pschum", "type": "text/html" } } }, "creatorSummary": "Dageforde L.A. and Cavanaugh K.L.", "parsedDate": "2013", "numChildren": 0 }, "data": { "key": "337IQ86F", "version": 2, "itemType": "journalArticle", "title": "Health Literacy: Emerging Evidence and Applications in Kidney Disease Care.", "creators": [ { "creatorType": "author", "firstName": "", "lastName": "Dageforde L.A." }, { "creatorType": "author", "firstName": "", "lastName": "Cavanaugh K.L." } ], "abstractNote": "Health literacy represents the communication among patients, their social networks, providers, and health systems to promote patients' understanding and engagement in their care. This is particularly relevant in kidney disease, in which the complexity of the medical condition and the extent of the health-care team require strategies to overcome health-literacy-related barriers. Limited literacy is common in patients with all stages of kidney disease and is associated with important outcomes, including reduced knowledge, less adherence, hospitalization, and death. A growing understanding and characterization of the health system, or organizational health literacy, may further our understanding of this dynamic relationship. Although various valid methods exist, assessment of health literacy within individuals or systematically within care settings has not been routinely performed. This may be in part due to the limited research in kidney-specific strategies to address limited health literacy. Future research to understand the mechanisms of health literacy will permit targeted, efficient interventions to bridge gaps and improve outcomes even in patients with complex kidney disease. 2013 National Kidney Foundation, Inc.", "publicationTitle": "Advances in Chronic Kidney Disease", "publisher": "", "place": "", "date": "2013", "volume": "", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "311-319", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "http://dx.doi.org/10.1053/j.ackd.2013.04.005", "citationKey": "", "url": "http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=emed11&AN=2013419723", "accessDate": "2013-07-25T17:35:35Z", "PMID": "", "PMCID": "", "ISSN": "1548-5595", "archive": "", "archiveLocation": "", "shortTitle": "Health Literacy", "language": "", "libraryCatalog": "Ovid (Embase)", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [], "relations": {}, "dateAdded": "2013-07-25T17:35:35Z", "dateModified": "2013-07-25T17:35:35Z" } } ]