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Proulx, Michelle
Leduc, Nicole
Vandelac, Louise
Gregoire, Jean-Pierre
Collin, Johanne
Ireland
Patient Educ Couns. 2007 Sep;68(1):98-106. Epub 2007 Jun 26.

", "tags": [], "relations": {}, "dateAdded": "2015-01-28T21:28:23Z", "dateModified": "2015-01-28T21:28:23Z" } }, { "key": "92Z2SI7C", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/92Z2SI7C", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/92Z2SI7C", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "creatorSummary": "Proulx et al.", "parsedDate": "2007-09", "numChildren": 2 }, "data": { "key": "92Z2SI7C", "version": 308, "itemType": "journalArticle", "title": "Social context, the struggle with uncertainty, and subjective risk as meaning-rich constructs for explaining HBP noncompliance", "creators": [ { "creatorType": "author", "firstName": "M.", "lastName": "Proulx" }, { "creatorType": "author", "firstName": "N.", "lastName": "Leduc" }, { "creatorType": "author", "firstName": "L.", "lastName": "Vandelac" }, { "creatorType": "author", "firstName": "J. P.", "lastName": "Gregoire" }, { "creatorType": "author", "firstName": "J.", "lastName": "Collin" } ], "abstractNote": "OBJECTIVE: To identify the reasons for which people fail to take blood-pressure-lowering medication regularly, a qualitative study was conducted. METHODS: Interviews lasting approximately 90 min were conducted with 27 patients (15 women, 12 men) aged 40-70. The verbatim of the 27 interviews was first read and divided into segments with explanatory value. This was followed by the production of a final text in vignette form for all interviews. An integrative, analytical phase consisted of identifying trends, significant central themes, regularities, and divergences in the vignettes. RESULTS: Analysis revealed the explanatory power that 3 broad groups of subjective meanings could hold for given medication noncompliance scenarios. These scenarios are expressing the role of: (1) stress and living conditions in the occasional skipping or deferral of medication-taking; (2) doubt as the motivating factor for transitory, irregular medication use; (3) subjective risk as the motivating factor for persistent irregular use. CONCLUSION: Life and social contexts, doubt and risk subsume extremely meaning-rich constructs that can help identify dilemmas facing people about medication-taking. PRACTICE IMPLICATIONS: By discussing these dimensions with their patients, health professionals will be better able to understand patient medication behaviors that sometimes run counter to their recommendations.", "publicationTitle": "Patient Educ Couns", "publisher": "", "place": "", "date": "2007 Sep", "volume": "68", "issue": "1", "section": "", "partNumber": "", "partTitle": "", "pages": "98-106", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Patient education and counseling", "DOI": "10.1016/j.pec.2007.05.014", "citationKey": "", "url": "http://www.ncbi.nlm.nih.gov/pubmed/17596901", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "0738-3991 (Print) 0738-3991 (Linking)", "archive": "", "archiveLocation": "17596901", "shortTitle": "Social context, the struggle with uncertainty, and subjective risk as meaning-rich constructs for explaining HBP noncompliance", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [ { "tag": "*Adaptation, Psychological" }, { "tag": "*Risk-Taking" }, { "tag": "*Social Environment" }, { "tag": "*Uncertainty" }, { "tag": "Adult" }, { "tag": "Aged" }, { "tag": "Antihypertensive Agents/adverse effects/therapeutic use" }, { "tag": "Communication" }, { "tag": "Decision Making" }, { "tag": "Female" }, { "tag": "Health Knowledge, Attitudes, Practice" }, { "tag": "Humans" }, { "tag": "Hypertension/drug therapy/*psychology" }, { "tag": "Male" }, { "tag": "Middle Aged" }, { "tag": "Motivation" }, { "tag": "Patient Education as Topic" }, { "tag": "Professional-Patient Relations" }, { "tag": "Qualitative Research" }, { "tag": "Quebec" }, { "tag": "Questionnaires" }, { "tag": "Self Administration/adverse effects/psychology" }, { "tag": "Stress, Psychological/etiology/prevention & control/psychology" }, { "tag": "Treatment Refusal/*psychology/statistics & numerical data" } ], "collections": [ "GKTVSV7N" ], "relations": {}, "dateAdded": "2015-01-28T21:28:23Z", "dateModified": "2015-01-28T21:28:23Z" } }, { "key": "JGD26SNW", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/JGD26SNW", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/JGD26SNW", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/160696/items/8IKGKJDR", "type": "application/json" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "JGD26SNW", "version": 308, "parentItem": "8IKGKJDR", "itemType": "note", "note": "

Kronish, Ian M
Woodward, Mark
Sergie, Ziad
Ogedegbe, Gbenga
Falzon, Louise
Mann, Devin M
1K23DK081665/DK/NIDDK NIH HHS/
1K23HL098359/HL/NHLBI NIH HHS/
HL04458-05/HL/NHLBI NIH HHS/
K23 DK081665/DK/NIDDK NIH HHS/
K23 HL098359/HL/NHLBI NIH HHS/
K23 HL098359-01A1/HL/NHLBI NIH HHS/
Circulation. 2011 Apr 19;123(15):1611-21. doi: 10.1161/CIRCULATIONAHA.110.983874. Epub 2011 Apr 4.

", "tags": [], "relations": {}, "dateAdded": "2015-01-28T21:28:20Z", "dateModified": "2015-01-28T21:28:20Z" } }, { "key": "8IKGKJDR", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/8IKGKJDR", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/8IKGKJDR", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "creatorSummary": "Kronish et al.", "parsedDate": "2011-04-19", "numChildren": 2 }, "data": { "key": "8IKGKJDR", "version": 308, "itemType": "journalArticle", "title": "Meta-analysis: impact of drug class on adherence to antihypertensives", "creators": [ { "creatorType": "author", "firstName": "I. M.", "lastName": "Kronish" }, { "creatorType": "author", "firstName": "M.", "lastName": "Woodward" }, { "creatorType": "author", "firstName": "Z.", "lastName": "Sergie" }, { "creatorType": "author", "firstName": "G.", "lastName": "Ogedegbe" }, { "creatorType": "author", "firstName": "L.", "lastName": "Falzon" }, { "creatorType": "author", "firstName": "D. M.", "lastName": "Mann" } ], "abstractNote": "BACKGROUND: Observational studies suggest that there are differences in adherence to antihypertensive medications in different classes. Our objective was to quantify the association between antihypertensive drug class and adherence in clinical settings. METHODS AND RESULTS: Studies were identified through a systematic search of English-language articles published from the inception of computerized databases until February 1, 2009. Studies were included if they measured adherence to antihypertensives using medication refill data and contained sufficient data to calculate a measure of relative risk of adherence and its variance. An inverse-variance-weighted random-effects model was used to pool results. Hazard ratios (HRs) and odds ratios were pooled separately, and HRs were selected as the primary outcome. Seventeen studies met inclusion criteria. The pooled mean adherence by drug class ranged from 28% for beta-blockers to 65% for angiotensin II receptor blockers. There was better adherence to angiotensin II receptor blockers compared with angiotensin-converting enzyme inhibitors (HR, 1.33; 95% confidence interval, 1.13 to 1.57), calcium channel blockers (HR, 1.57; 95% confidence interval, 1.38 to 1.79), diuretics (HR, 1.95; 95% confidence interval, 1.73 to 2.20), and beta-blockers (HR, 2.09; 95% confidence interval, 1.14 to 3.85). Conversely, there was lower adherence to diuretics compared with the other drug classes. The same pattern was present when studies that used odds ratios were pooled. After publication bias was accounted for, there were no longer significant differences in adherence between angiotensin II receptor blockers and angiotensin-converting enzyme inhibitors or between diuretics and beta-blockers. CONCLUSION: In clinical settings, there are important differences in adherence to antihypertensives in separate classes, with lowest adherence to diuretics and beta-blockers and highest adherence to angiotensin II receptor blockers and angiotensin-converting enzyme inhibitors. However, adherence was suboptimal regardless of drug class.", "publicationTitle": "Circulation", "publisher": "", "place": "", "date": "2011 Apr 19", "volume": "123", "issue": "15", "section": "", "partNumber": "", "partTitle": "", "pages": "1611-21", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Circulation", "DOI": "10.1161/CIRCULATIONAHA.110.983874", "citationKey": "", "url": "http://www.ncbi.nlm.nih.gov/pubmed/21464050", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1524-4539 (Electronic) 0009-7322 (Linking)", "archive": "", "archiveLocation": "21464050", "shortTitle": "Meta-analysis: impact of drug class on adherence to antihypertensives", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [ "GKTVSV7N" ], "relations": {}, "dateAdded": "2015-01-28T21:28:20Z", "dateModified": "2015-01-28T21:28:20Z" } }, { "key": "WGFMIPRP", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/WGFMIPRP", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/WGFMIPRP", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/160696/items/REKS6D5K", "type": "application/json" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "WGFMIPRP", "version": 308, "parentItem": "REKS6D5K", "itemType": "note", "note": "

Marshall, Iain J
Wolfe, Charles D A
McKevitt, Christopher
RP-PG-0407-10184/Department of Health/United Kingdom
England
Clinical research ed.
BMJ. 2012 Jul 9;345:e3953. doi: 10.1136/bmj.e3953.

", "tags": [], "relations": {}, "dateAdded": "2015-01-28T21:28:16Z", "dateModified": "2015-01-28T21:28:16Z" } }, { "key": "REKS6D5K", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/REKS6D5K", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/REKS6D5K", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "creatorSummary": "Marshall et al.", "parsedDate": "2012", "numChildren": 2 }, "data": { "key": "REKS6D5K", "version": 308, "itemType": "journalArticle", "title": "Lay perspectives on hypertension and drug adherence: systematic review of qualitative research", "creators": [ { "creatorType": "author", "firstName": "I. J.", "lastName": "Marshall" }, { "creatorType": "author", "firstName": "C. D.", "lastName": "Wolfe" }, { "creatorType": "author", "firstName": "C.", "lastName": "McKevitt" } ], "abstractNote": "OBJECTIVE: To synthesise the findings from individual qualitative studies on patients' understanding and experiences of hypertension and drug taking; to investigate whether views differ internationally by culture or ethnic group and whether the research could inform interventions to improve adherence. DESIGN: Systematic review and narrative synthesis of qualitative research using the 2006 UK Economic and Social Research Council research methods programme guidance. DATA SOURCES: Medline, Embase, the British Nursing Index, Social Policy and Practice, and PsycInfo from inception to October 2011. STUDY SELECTION: Qualitative interviews or focus groups among people with uncomplicated hypertension (studies principally in people with diabetes, established cardiovascular disease, or pregnancy related hypertension were excluded). RESULTS: 59 papers reporting on 53 qualitative studies were included in the synthesis. These studies came from 16 countries (United States, United Kingdom, Brazil, Sweden, Canada, New Zealand, Denmark, Finland, Ghana, Iran, Israel, Netherlands, South Korea, Spain, Tanzania, and Thailand). A large proportion of participants thought hypertension was principally caused by stress and produced symptoms, particularly headache, dizziness, and sweating. Participants widely intentionally reduced or stopped treatment without consulting their doctor. Participants commonly perceived that their blood pressure improved when symptoms abated or when they were not stressed, and that treatment was not needed at these times. Participants disliked treatment and its side effects and feared addiction. These findings were consistent across countries and ethnic groups. Participants also reported various external factors that prevented adherence, including being unable to find time to take the drugs or to see the doctor; having insufficient money to pay for treatment; the cost of appointments and healthy food; a lack of health insurance; and forgetfulness. CONCLUSIONS: Non-adherence to hypertension treatment often resulted from patients' understanding of the causes and effects of hypertension; particularly relying on the presence of stress or symptoms to determine if blood pressure was raised. These beliefs were remarkably similar across ethnic and geographical groups; calls for culturally specific education for individual ethnic groups may therefore not be justified. To improve adherence, clinicians and educational interventions must better understand and engage with patients' ideas about causality, experiences of symptoms, and concerns about drug side effects.", "publicationTitle": "BMJ", "publisher": "", "place": "", "date": "2012", "volume": "345", "issue": "", "section": "", "partNumber": "", "partTitle": "", "pages": "e3953", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.1136/bmj.e3953", "citationKey": "", "url": "http://www.ncbi.nlm.nih.gov/pubmed/22777025", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1756-1833 (Electronic) 0959-535X (Linking)", "archive": "", "archiveLocation": "22777025", "shortTitle": "Lay perspectives on hypertension and drug adherence: systematic review of qualitative research", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [ { "tag": "*Global Health" }, { "tag": "Antihypertensive Agents/administration & dosage/adverse effects/*therapeutic use" }, { "tag": "Female" }, { "tag": "Health Knowledge, Attitudes, Practice/*ethnology" }, { "tag": "Humans" }, { "tag": "Hypertension/*drug therapy/ethnology/psychology" }, { "tag": "Intention" }, { "tag": "Male" }, { "tag": "Medication Adherence/ethnology/psychology" }, { "tag": "Qualitative Research" }, { "tag": "Stress, Psychological/complications/*ethnology" } ], "collections": [ "GKTVSV7N" ], "relations": {}, "dateAdded": "2015-01-28T21:28:16Z", "dateModified": "2015-01-28T21:28:16Z" } }, { "key": "69UJ5TSG", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/69UJ5TSG", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/69UJ5TSG", "type": "text/html" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "creatorSummary": "Fried et al.", "parsedDate": "2011-05-23", "numChildren": 2 }, "data": { "key": "69UJ5TSG", "version": 308, "itemType": "journalArticle", "title": "Effects of benefits and harms on older persons' willingness to take medication for primary cardiovascular prevention", "creators": [ { "creatorType": "author", "firstName": "T. R.", "lastName": "Fried" }, { "creatorType": "author", "firstName": "M. E.", "lastName": "Tinetti" }, { "creatorType": "author", "firstName": "V.", "lastName": "Towle" }, { "creatorType": "author", "firstName": "J. R.", "lastName": "O'Leary" }, { "creatorType": "author", "firstName": "L.", "lastName": "Iannone" } ], "abstractNote": "BACKGROUND: Quality-assurance initiatives encourage adherence to evidenced-based guidelines based on a consideration of treatment benefit. We examined older persons' willingness to take medication for primary cardiovascular disease prevention according to benefits and harms. METHODS: In-person interviews were performed with 356 community-living older persons. Participants were asked about their willingness to take medication for primary prevention of myocardial infarction (MI) with varying benefits in terms of absolute 5-year risk reduction and varying harms in terms of type and severity of adverse effects. RESULTS: Most (88%) would take medication, providing an absolute benefit of 6 fewer persons with MI out of 100, approximating the average risk reduction of currently available medications. Of participants who would not take it, 17% changed their preference if the absolute benefit was increased to 10 fewer persons with MI, and, of participants who would take it, 82% remained willing if the absolute benefit was decreased to 3 fewer persons with MI. In contrast, large proportions (48%-69%) were unwilling or uncertain about taking medication with average benefit causing mild fatigue, nausea, or fuzzy thinking, and only 3% would take medication with adverse effects severe enough to affect functioning. CONCLUSIONS: Older persons' willingness to take medication for primary cardiovascular disease prevention is relatively insensitive to its benefit but highly sensitive to its adverse effects. These results suggest that clinical guidelines and decisions about prescribing these medications to older persons need to place emphasis on both benefits and harms.", "publicationTitle": "Arch Intern Med", "publisher": "", "place": "", "date": "2011 May 23", "volume": "171", "issue": "10", "section": "", "partNumber": "", "partTitle": "", "pages": "923-8", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "Archives of internal medicine", "DOI": "10.1001/archinternmed.2011.32", "citationKey": "", "url": "http://www.ncbi.nlm.nih.gov/pubmed/21357797", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1538-3679 (Electronic) 0003-9926 (Linking)", "archive": "", "archiveLocation": "21357797", "shortTitle": "Effects of benefits and harms on older persons' willingness to take medication for primary cardiovascular prevention", "language": "eng", "libraryCatalog": "", "callNumber": "", "rights": "", "extra": "", "tags": [ { "tag": "*Drug-Related Side Effects and Adverse Reactions" }, { "tag": "*Health Knowledge, Attitudes, Practice" }, { "tag": "*Patient Participation" }, { "tag": "Aged" }, { "tag": "Aged, 80 and over" }, { "tag": "Aspirin/administration & dosage/adverse effects" }, { "tag": "Cardiotonic Agents/administration & dosage/adverse effects" }, { "tag": "Cardiovascular Diseases/prevention & control" }, { "tag": "Female" }, { "tag": "Humans" }, { "tag": "Interviews as Topic" }, { "tag": "Male" }, { "tag": "Myocardial Infarction/*prevention & control" }, { "tag": "Patient Compliance" }, { "tag": "Patient Selection" }, { "tag": "Pharmaceutical Preparations/administration & dosage" }, { "tag": "Primary Prevention/*methods" }, { "tag": "Questionnaires" }, { "tag": "Risk Assessment" } ], "collections": [ "GKTVSV7N" ], "relations": {}, "dateAdded": "2015-01-28T21:28:14Z", "dateModified": "2015-01-28T21:28:14Z" } }, { "key": "9FPHDGMN", "version": 308, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/9FPHDGMN", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/9FPHDGMN", "type": "text/html" }, "up": { "href": "https://api.zotero.org/groups/160696/items/69UJ5TSG", "type": "application/json" } }, "meta": { "createdByUser": { "id": 2259866, "username": "cbettis", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/cbettis", "type": "text/html" } } }, "numChildren": 0 }, "data": { "key": "9FPHDGMN", "version": 308, "parentItem": "69UJ5TSG", "itemType": "note", "note": "

Fried, Terri R
Tinetti, Mary E
Towle, Virginia
O'Leary, John R
Iannone, Lynne
K24 AG028443/AG/NIA NIH HHS/
K24 AG028443-01A2/AG/NIA NIH HHS/
P30AG21342/AG/NIA NIH HHS/
Arch Intern Med. 2011 May 23;171(10):923-8. doi: 10.1001/archinternmed.2011.32. Epub 2011 Feb 28.

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Rosenbaum, Lisa
N Engl J Med. 2015 Jan 8;372(2):183-7. doi: 10.1056/NEJMms1409015.

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Open ended interview questions were used to explore stress and coping across the illness trajectory and during continuing care. With permission, 49 of the 50 interviews were audiotaped. Interviews also involved the use of the Impact of Events Scale-Revised (IES-R), the Ways of Coping (WAYS) and the Lubben Social Support Network Scale (LSNS-6). Data analysis involved a sequential quantitative (dominant)-qualitative (non-dominant) design.A mean-split procedure was used to compare lower and higher distress. The overall IES-R score as well as the Avoidance, Intrusions, and Hyperarousal subscales were all statistically significant between the higher-lower distress groups. Fourteen of the 22 individual IES-R items were significantly different between groups.WAYS subscale scores were not significantly different but 21% of the individual items were. Stress involves (1) physical stressors and(2) psychosocial stressors: (fear of recurrence and family-focused concerns). Coping involves (1) activity-based strategies, (2) cognitive strategies, and (3) spiritual strategies. Breast cancer survivors experience persistent concern about recurrence and uncertainty about the future. Understanding the nature of distress and how women cope during and after treatment are key to improved care for women who have breast cancer.", "publicationTitle": "Journal of Psychosocial Oncology", "publisher": "", "place": "", "date": "2011", "volume": "29", "issue": "4", "section": "", "partNumber": "", "partTitle": "", "pages": "450-473", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "J Psychosoc Oncol", "DOI": "", "citationKey": "", "url": "", "accessDate": "", "PMID": "", "PMCID": "", "ISSN": "1540-7586", "archive": "", "archiveLocation": "", "shortTitle": "“Waiting for the other shoe to drop", "language": "eng", "libraryCatalog": "NCBI PubMed", "callNumber": "", "rights": "", "extra": "PMID: 21966727", "tags": [ { "tag": "Adaptation, Psychological", "type": 1 }, { "tag": "Adult", "type": 1 }, { "tag": "Aged", "type": 1 }, { "tag": "Breast Neoplasms", "type": 1 }, { "tag": "Female", "type": 1 }, { "tag": "Humans", "type": 1 }, { "tag": "Interviews as 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"firstName": "Ellen N.", "lastName": "Heyman" }, { "creatorType": "author", "firstName": "Tanujit", "lastName": "Dey" }, { "creatorType": "author", "firstName": "Harold S.", "lastName": "Haller" } ], "abstractNote": "", "publicationTitle": "Journal of Psychosocial Oncology", "publisher": "", "place": "", "date": "2010-01-14", "volume": "28", "issue": "1", "section": "", "partNumber": "", "partTitle": "", "pages": "1-22", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "", "DOI": "10.1080/07347330903438883", "citationKey": "", "url": "http://www.tandfonline.com/doi/abs/10.1080/07347330903438883", "accessDate": "2014-06-25T00:48:13Z", "PMID": "", "PMCID": "", "ISSN": "0734-7332, 1540-7586", "archive": "", "archiveLocation": "", "shortTitle": "", "language": "en", "libraryCatalog": "CrossRef", "callNumber": "", "rights": "", "extra": "", "tags": [], "collections": [ "JM2CUF2G" ], "relations": {}, "dateAdded": "2014-06-25T00:48:13Z", "dateModified": "2014-06-25T00:48:13Z" } }, { "key": "EPSGD3NM", "version": 293, "library": { "type": "group", "id": 160696, "name": "Healthwise Persona Research", "links": { "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research", "type": "text/html" } } }, "links": { "self": { "href": "https://api.zotero.org/groups/160696/items/EPSGD3NM", "type": "application/json" }, "alternate": { "href": "https://www.zotero.org/groups/healthwise_persona_research/items/EPSGD3NM", "type": "text/html" } }, "meta": { "createdByUser": { "id": 520298, "username": "rosed", "name": "", "links": { "alternate": { "href": "https://www.zotero.org/rosed", "type": "text/html" } } }, "creatorSummary": "Leydon et al.", "parsedDate": "2000-07", "numChildren": 1 }, "data": { "key": "EPSGD3NM", "version": 293, "itemType": "journalArticle", "title": "Faith, hope, and charity: an in-depth interview study of cancer patients' information needs and information-seeking behavior", "creators": [ { "creatorType": "author", "firstName": "null", "lastName": "Leydon" }, { "creatorType": "author", "firstName": "null", "lastName": "Boulton" }, { "creatorType": "author", "firstName": "null", "lastName": "Moynihan" }, { "creatorType": "author", "firstName": "null", "lastName": "Jones" }, { "creatorType": "author", "firstName": "null", "lastName": "Mossman" }, { "creatorType": "author", "firstName": "null", "lastName": "Boudioni" }, { "creatorType": "author", "firstName": "null", "lastName": "McPherson" } ], "abstractNote": "OBJECTIVE: To explore why cancer patients do not want or seek information about their condition beyond that volunteered by their physicians at times during their illness. DESIGN: Qualitative study based on in-depth interviews. SETTING: Outpatient oncology clinics at a London cancer center. PARTICIPANTS: 17 patients with cancer diagnosed in previous 6 months. Main outcome measures Analysis of patients' narratives to identify key themes and categories. RESULTS: While all patients wanted basic information on diagnosis and treatment, not all wanted further information at all stages of their illness. Three overarching attitudes to their management of cancer limited patients' desire for and subsequent efforts to obtain further information : faith, hope, and charity. Faith in their doctor's medical expertise precluded the need for patients to seek further information themselves. Hope was essential for patients to carry on with life as normal and could be maintained through silence and avoiding information, especially too detailed or \"unsafe\" information. Charity to fellow patients, especially those seen as more needy than themselves, was expressed in the recognition that scarce resources-including information and explanations-had to be shared and meant that limited information was accepted as inevitable. CONCLUSIONS: Cancer patients' attitudes to cancer and their strategies for coping with their illness can constrain their wish for information and their efforts to obtain it. In developing recommendations, the government's cancer information strategy should attend to variations in patients' desires for information and the reasons for them.", "publicationTitle": "The Western Journal of Medicine", "publisher": "", "place": "", "date": "Jul 2000", "volume": "173", "issue": "1", "section": "", "partNumber": "", "partTitle": "", "pages": "26-31", "series": "", "seriesTitle": "", "seriesText": "", "journalAbbreviation": "West. J. 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